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accessn12 01-02-2010 10:20 AM

Graves and Anti-thyroid meds
I ran across this recently published study and thought I'd pass it on for those who might be interested. It may require registration for those who've never used Medscape before but it's well worth the read:
Steroid Injection Prevents Relapse of Grave's Disease After Medication Withdrawal[/B][/I]

GravesGirl73 01-02-2010 01:35 PM

Re: Graves and Anti-thyroid meds
Hey Helen!
How the heck are ya?? I'm doing well and am in the process of weaning off the methimazole. I'm only on 1.25, I can hardly see it to take it and splitting it....what a pain in the A**!! I'm taking it 6 days a week, then 5 and so on. I have a tsh of 1.32 and a FT4 of 0.90. I haven't been hyper in over 21/2 years. I just was mis- managed by my first endo and probably could have been off these sooner but anyway... Someone on another message board brought this up about the steroid, I'll have to print it for my endo. Thanks H and pm me if you want.

accessn12 01-02-2010 04:21 PM

Re: Graves and Anti-thyroid meds
Hiya gg!!!

You sound the ideal candidate for this. I was really impressed with the results of the study. The whole thing makes so much sense too in the why it would work so well.
Congrats on the 2 1/2yrs. That's really awesome and shows what perseverance can accomplish.

I's still kickin'. Haven't had a hyper episode since february when we increased the cytomel to 25mcg. I'm down to only 25mg atenolol twice a day and things are pretty darned stable. Labs every 3mos now with the goal of keeping the TSH suppressed but measurable. Last labs were a tsh of 0.253 with the ft4 at 0.97 and the ft3 at 2.88. The gp's pleased as punch with it. I am too. :D

Next stop is to go under the knife to remove my remaining ovary and the lesion that's attached to it. It sorta showed up on the pet scan that I had in september that 3 radiologists didn't see in 3 different scans after I asked "what's that?". I'm still trying to figure out how they missed it other than just not even bothering to look but why should they care? They get paid per scan read, not per diagnosis. I see the gyn on tuesday to get that set up. I saw him before the holidays and then he looked over the scans and consulted with his radiologist, talked to my gp and told him to pass on the news since I was going to be seeing my gp first. I had a big battle with the insurance company over getting the referral cause my gyn is not in network so I ended up dropping out of my managed care plan so I could see him and not lose the cover of the catastrophic cap. I wasn't going to let anyone else touch me. He knows my thyroid quite well. :eek: He got to come in to consult when I was in thyroid storm many moons ago. He's also a really good doc and I trust him.

I ain't looking forward to this but I get to go first. Then we deal with the hubby's prostate cancer. :(

GravesGirl73 01-03-2010 05:40 PM

Re: Graves and Anti-thyroid meds
Well H everything sounds pretty good with you,crazy thing about the ovary,YOU were the one who spotted it??! Geez...hey the prostate c is pretty common it seems, know quite a few mwn who've undergone treatment for it and are doing well. It still sucks anyway...I feel pretty lucky though, got the worst news about my hubby's second cousin. She lost her Mom (my hubby's first cousin) the end of August, she didn't feel well, went to go lie down, his cousin checked on her twice, the third time she was unresponsive. She died in her home. I just got the news her husband dropped dead a few days again in the home also! Now this was a dream home they built and haven't been there a year yet. Sounds more like a nightmare to me. I feel SO bad, I was close to my hubby's cousin (her Mom) that passed. That was a shock but now this, he was only 53 and leaves 2 young sons.She's only 46 her Mom that died was 66. I mean to lose a Mom and husband in less than 4 months! Her sister's long time boyfriend dropped like this too 3 weeks after the Mom died, it's like they're cursed, I can't believe it..I hate to answer the phone if it's from that family now, don't want to hear anymore bad news. That's all I'm thinking about this weekend, so sad. It makes you count your blessings that's for sure and makes you wonder was her husband that told me about his sister in laws boyfriend dropping dead and now HE did too,that's 2 guys that were pall bearers at my hubby's cousin's funeral.Another one, who carried her casket, her grandson just became a father, isn't that so weird? If someone had told me this would have happened by the end of this year, i wouldn't have believed it!:(

accessn12 01-04-2010 05:35 AM

Re: Graves and Anti-thyroid meds
I wish things were that good. Other than the thyroid, it's been a pretty wickedly bad year between the heart failure, the rabies, the bell's palsy, the pneumonia and whatever else that's kept me living in doctor's offices for over a year now. I even managed to catch the swine flu. So no, things really haven't been that good. Just been a bit busy.

Yeah, I'm the one who spotted it. Those pet scans are really cool to look at. It's so totally awesome at what they can see now. The tech burned me a copy and I had it up on my screen watching it spin and a spot caught my eye. It wasn't in the report. I showed it to my gp. He called the radiologist and the guy got all snippy with him and said he didn't need to look at it again so the gp sent me to have an u/s. It's big as life on that but all the report says is that the ovary isn't visible. Doesn't say anything else. Well yeah, it is kinda hidden behind the mass. So then it was off to the mri. That's the report that says I have a full bladder. Nothing else. I coulda told them I had to pee. It woulda helped if he'd taken a little peek behind the full bladder. The tech did a wonderful job capturing a really nice picture of it. I got fed up, reached in the pocketbook and sent the pet scan to a second opinion radiology place for another full reading and got a nice, full report back with all kinds of findings that were missed by the the other rad guys and also stating that there was increased uptake in that area but that the tumor hadn't spread into the pelvic side wall. The tumor? The invisible tumor actually came to life for a couple extra dollars? Well ok, I wasn't nuts afterall. My gp kept telling me I wasn't cause he could see it too but after 3mos of this crap, I was really starting to wonder. I'm just hoping that getting out of managed care is going to improve the quality and efficiency of my medical care. I'm so fed up with in-network specialists I could scream.

For a short period, I felt relief. So now that I'm over my desperation and I know it's not a figment of my imagination and that it's finally going to be taken out of there, the nervousness is setting in. It's like now I'm not really sure I wanna know what it is. I just want it to go away.

GravesGirl73 01-04-2010 02:13 PM

Re: Graves and Anti-thyroid meds
My God Helen, what a friggin year you've been through...I am so sorry all these things have happened! I knew about a couple of them but not the bell's palsy and pnumonia too and the swine flu?? and now prayers are with you for sure and hopefully this year and all it's troubles are behind you now.Pleas don't be too nervous cause if so many missed it it's probably not bad,that's what I think poor kid, jeez.. sending hugs and good healing thoughts your way.

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