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    Old 08-23-2004, 12:26 PM   #1
    eden3
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    Angry depo provera horror

    anybody have any horror stories about depo? i would like info on the class action suit against the manufacturer. my problems have been severe and long term from just one shot. now i have been unable to get pregnant and afraid i could now be sterle. so if have any info for me please reply.

     
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    Old 08-25-2004, 12:11 AM   #2
    barton93
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    Re: depo provera horror

    I have a depo story:

    I had a baby in August of 1994. After the baby was born, I decided that I wanted to go on some sort of birth control. I decided against the pill, since I have always been bad about taking pills, and after discussing it with my doc, I decided that Depo was right for me.

    I had my first injection in September of 1994. At that time I wore a size 7 and I am 5'6". Not long after my first injection, I started noticing some hair growth on my chin. I mentioned it to my doc, but he said that it isn't because of the Depo. As the months went by the hair growth got worse........started popping up in other places. I also started gaining a LOT of weight.

    In 1996, I had my last injection. At that time, I was a size 18!!! My hubby and I decided that we would try to have another baby. Our daughter was 2 at the time, and we wanted to try to have about 3 years between children. My doc said that I should get my period within 6 months. 6 months went by........and still no period. 7 months, 8 months........same thing.

    Meanwhile, my husband and I are not using any protection since we want another child, so as these months pass and I am not getting a period, I am thinking "Well, maybe I got pregnant"......so each month I was taking pregnancy tests hoping that it would happen. It didn't. I remember that like it was yesterday. I desperately wanted to have another child, and I remember crying every month when my test would come back negative. It was horrible.

    During all of this, I was diagnosed with diabetes, which I believe is a result of the weight gain. My doc said that because my blood sugars were under control, I could continue trying to conceive.

    Finally in May of 1998, I went to an infertility specialist and he put me on fertility drugs. In September of 1998, I found out I was pregnant. During my months of infertility treatment, I was finally getting my period. But after my son's birth in May of 1999, I went back to the same routine......no periods.

    I didn't mind not getting one then because I got my baby. So, I was enjoying it. Then in August of 2000, I came across an article on the internet about periods. It said that not having your period is a serious problem, unless of course you are pregnant. Since I wasn't pregnant and had been off of the Depo for 4 years, I got scared.

    I decided to dig and find out more about the risk of not getting your period. I came across some other sites and one caught my eye. It was a sight for Polycystic Ovary Syndrome. While reading it, I realized that I had alot of the symptoms.....no periods, abnormal hair growth, diabetes, over weight, among other symptoms. I didn't have all of the symptoms, but I did have a lot of them......so I decided to talk to my doc about it.

    He didn't think that I had anything to worry about. He didn't run any tests on me or anything. Because he was too lazy to help me figure out why I had these problems, I decided to see another doctor. I couldn't find a doctor in my area that knew much about PCOS, so I decided to see a Reproductive Endocrinologist who studies PCOS at Mayo Clinic in Rochester, Minnesota. He ran a lot of tests on me and confirmed what I believed..........I have PCOS.

    I also learned at that time that due to my lack of periods (total of 6 years if you count the 2 years that I was on Depo) which he said was caused by Depo (he has seen it take many, many years for women to regulate), my endometrial lining was 4 times thicker than normal, which puts me at an extremely high risk for cancer. I also learned that I am at a high risk for heart disease (which is common with PCOS). I have been put on med's for my heart and on birth control pills to force my body to have a period each month to thin out my endometrial lining.

    Here is a list of some of the problems that I have developed since I started using Depo Provera.

    * Hair growth in all the unwanted areas. To give you an idea, I could probably grow a mean *** beard! I have noticed that the hair on my legs even grows at a faster rate, and I have more hair on my arms as well.

    * My vision has changed.

    * I was diagnosed with diabetes in 1997.

    * I was diagnosed with Polycystic Ovary Syndrome in 2000.

    * The lining of my uterus was 4 x’s thicker than it should have been due to not having a period, which puts me at a high risk for ovarian cancer.

    * My cholesterol level is high, which also puts me at high risk for heart disease. (This is due to the PCOS……but what caused the PCOS???)

    * It took me almost 2 years to conceive my 2nd child, when it took me about 5 minutes to conceive my 1st child, and on top of that my hormones were so out of whack, that I had to take hormone shots the 1st 4 months of my pregnancy, in order for my uterus to hold the baby.

    * I also have mood swings, depression…..which I am trying to control these days.

    * I have gained about 50 pounds. I wore a size 5/7 and now I wear a size 18.

    * I have lost a lot of hair as well. I used to have a head full of beautiful wavy thick hair. Now my hair is pretty thin and the texture has changed. It’s nasty now.

    * I have also experience pain during intercourse. It doesn’t happen every time, but every other time, I know to expect it.

    * I also feel as if my muscles have been affected tremendously as well. I am very weak. I feel as if all of my muscle strength has disappeared.

    * I also suffer from constant fatigue.

    * I have problems with my circulation as well (3 times I have woken up in the morning with my left arm a purplish color and limp as a noodle. I cannot feel nothing. Then about an hour after waking up, it goes back to normal, but remains sore the rest of the day)…….possibly from my diabetes.

    * I also sometimes get severe chest pains (only when I inhale). They get so bad sometimes that I can feel it in my back too.

    I DID NOT HAVE ONE OF THESE PROBLEMS BEFORE DEPO. THESE ALL CAME AFTER.

    Also…….when I began taking Depo the side effects that were listed were very minor. Many people think that we are just not investigating this drug enough…….but I can say in my case that a lot of these side effects were not listed. The makers of Depo revised their list to include many more side effects in recent years. We were misinformed by the makers of Depo……..not by our doctors.

    Also………….you know that we are being injected with poison when the exact substance that we use to prevent pregnancy is being used to non-surgically castrate sex offenders!!!!! That is another disturbing fact that has been brought to light in recent years!!!

    I don't know if this is just coincidence or not, but I have met other people who have taken Depo that have some of the same problems as me. Is Depo causing these illnesses or did it just happen? I hope to one day have all my questions answered.
    I just find it hard to believe that healthy people start these injections, then they are all stricken with minor to massive health problems. Why is that? Coincidence or DEPO???

    Sorry this is so long........I just have a lot to say about this horrible so called birth control.

     
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    Old 08-25-2004, 12:39 AM   #3
    timothy22
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    Post Re: depo provera horror

    Quote:
    Originally Posted by eden3
    anybody have any horror stories about depo? i would like info on the class action suit against the manufacturer. my problems have been severe and long term from just one shot. now i have been unable to get pregnant and afraid i could now be sterle. so if have any info for me please reply.

    Did you read everything you had to read before taking this...If yes did you read anything about what it was and the effects on other people. you know when you watch a comercial and they say some side effects are then they lists the side effects then say how many cases the side effects were shown in. all of these things could stop you from having a solid case against the company. good luck

    Last edited by timothy22; 08-25-2004 at 12:41 AM. Reason: grammer

     
    Old 08-25-2004, 10:04 PM   #4
    barton93
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    Re: depo provera horror

    I disagree with the above for a couple of reasons. In my particular case, it was 10 years ago that I began the shot.........and the pamphlets did NOT include any of the symptoms or side effects that I did experience. Many of those have since been added. Another problem with this BC is that many of us have developed a lot of the same illnesses and the makers of Depo are trying to say that it is just coincidence! Also, up until recently....doctors didn't tell you not to take this drug if you plan on having children in the future. Many doctors still don't tell you that.....and of course the makers won't tell you that either. Their pamphlet is still misleading. It still tells you that your periods will take up to 18 months (or something like that) to regulate.........well, I have been off of the shot for 8 years.........and I am still don't have regular periods! Yet, they blame that on my PCOS, which I am willing to accept that answer. But, no one can tell me why I developed PCOS til after I took that shot. PCOS is something that usually is onset with puberty..........not mid to late 20's..........and I've met other women out there who developed it well into their 30's after taking Depo. Also, a lot of women took Depo after having children.........which shows that they were obviously fertile before taking the shot...........yet most women after taking Depo experience infertility. I myself experienced that. It took me all of 5 minutes to conceive my first child. 2nd child.............took me 2 years!!!

    There is not one person out there who can make me believe that this is all just coincidence...........because I know for a fact that none of these problems existed before I took that shot!

    Last edited by barton93; 08-25-2004 at 10:04 PM.

     
    Old 08-26-2004, 07:17 AM   #5
    Adriane25
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    Re: depo provera horror

    I went on depo provera when I was about 19 or 20. I noticed a significant amount of weight gain from it. I decided to switch to the pill. I was on the pill for many years until I was suffering from severe migranes, hair loss and galactorrhea (which is the production of milk from a non-pregnant women). I had a prolatin test right away and it turned out to be normal. Not wanting to suffer from migraines anymore, I decided to switch back to the depo in May of last year. Right after my third injection, a week later my right foot big toe became numb. The next morning the bottom of my foot was numb. Within two weeks the numbness spread from my other foot and it went up from my feet to my legs, to my buttocks, to my hips. It was constant, it never went away. I decided to see a doctor who refered me to a neurologist. I had an emg done, mri of my lumbar, thoracic area, brain, blood tests and subjected to a spinal tap. They thought I had MS or lupus. They had to diagnois me with parasthesia since my test results were inconclusive. I went to a dermatologist about my hair loss, which is still continuing. He told me to stop the depo, that it may be the cause. Meanwhile I am still experiencing galactorrhea, hair loss, bone pain in my spine, legs and pelvis. I went to see a homopathy doctor. After seeing him the parasthesia went away, either by what he has given me or by course of nature. I stopped seeing him and went to an internalist to get more answers. He said I may have fibromyalga but wants to send me to a physiatrist for the bone pain. Ugh! I am so tired. I have been reading all these horror stories on the web about the side effects from depo provera and I believe I am one of the 1% who suffers from these side effects that were not listed when I signed my body up to be subjected to this poisonious birth control. None of my doctors are listening to me. "Oh, it can't be the depo that is causing your pain." BS! Who am I to see now? Who the heck is going to listen to me about a birth control, that is suppose to be doctor approved. Certainly not a doctor, certainly not my gynocologist. So for now I have to wonder if all these symptoms of bone pain is being caused by the depo. I am off it now, my last injection was suppose to be in July. So I guess what hope do I have that I will ever heal or if this physiatrist is going to subject me to more pain and costly bills. I would love to sue the jerks if only I had legal proof from a doctor that depo is the cause of all this hell.

     
    Old 08-26-2004, 09:28 AM   #6
    KimRick
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    Re: depo provera horror

    I, too, had the shot - just one. I had my daughter in 1996 and decided to get the shot afterwards. Before the shot, my periods were so regular, that I'd get them on the same day of every month and they would last for 4 days and stop - like clockwork. After the shot, I didn't have a period for over a year and when it finally did come, it came for almost 2 weeks at a time and the pain was, and still is, SOOOOOOOOOOOOO unbearable! I gained an enormous amount of weight, I started breaking out, the depression and the fatigue were so out of control that I could bearly take care of my own daughter without some sort of assistance. I was also diagnosed with some sort of pre-cancerous cells without HPV, that I been dealing with EVER SINCE! I'm now on Ortho-Tricyclen Lo in order to regulate my periods.

    This is something that I TOTALLY regret taking and I will try my damnedest to convince anyone else not to take it either!

    P.S.: I did hear on the news the other day that there was a study going on with Depo and they concluded that women who take Depo were more likely to be infected with Chlamidia and Gonnoreah. In other words, Depo makes it more easier for these women to get infected than any other contraceptive on the market!!!

     
    Old 08-26-2004, 11:43 AM   #7
    barton93
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    Re: depo provera horror

    It is so sad to hear about the hell that all of these women go through as a result of Depo and even more sad when people think that we are just crazy to think that our problems are a result of birth control. I have also had many people say to me "Well, how could you have taken this method of birth control without knowing anything about it"? Well, not only did the pamphlet NOT contain the symptoms and side effects that we are experiencing...............but what about the fact that we are not doctors??? We were all given this injection by a doctor. They obviously don't even know what they are injecting into us. I'm sure they've all heard complaints from patients...........yet they still administer this drug like it's water!!! That is what makes me sick! The doctors should be jumping in and investigating this as well. They have a responsibility to their patients and yet when it comes to this..........we are being neglected by our doctors!!!

    My heart goes out to all women out there who have experienced the devastating effects of this poison.........I'm riding in the same boat! Just keep your fingers crossed...........this has to come to an end at some point. It may take time (like everything else does) and unfortunately we'll probably have to hear many more stories like ours..........but it's bound to happen.

     
    Old 08-26-2004, 12:55 PM   #8
    Adriane25
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    Re: depo provera horror

    As per my story before, I was so frustrated this morning about reading everyone's stories and mine that I decided to call my doctor's office and speak with the nurse. She listened to me very well and even said that she too knows they are now discovering new side effects from depo. I told her I don't think my case is going to get any better until my doctor looks into the possible underlying cause of my symptoms to be associated with the depo. I have been reading pdf files from the makers of depo that includes new side effects of ostoporosis and many other horrible side effects. Wait! That is not a side effect! This drug is causing disease! Disease in young women, like me. I wish I could curse here in this forum. I want to give those bast**d's a piece of my mind (not my doc of course, because he was not responsible for the injection). If it turns out the nurse calls me back after speaking with my doctor, I will let this forum know my findings and will definitley recommend an internalist (they have more education than most physicans).

    Last edited by Adriane25; 08-26-2004 at 12:58 PM.

     
    Old 08-26-2004, 07:35 PM   #9
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    Re: depo provera horror

    I was on Depo-Provera for 3 years. I switched to the pill and the pill is SO MUCH BETTER THAN DEPO. Instantly that drugged feeling went away, dizziness, blurry vision. I don't forget things all the time. I have *A* sex drive.

    Oh god, I can even keep weight off a little better. I did gain about a total of 30 pds on depo. I got 15 of them off and kept them off, but I worked out 4 days a week and watched everything I put in my mouth. I'm having more trouble keeping it off now than when I was on it, go figure. You can lose weight when on Depo but it's really really hard.

    Also, my constant neck PAIN stopped and my hair stopped falling out. I'm not a depressive person usually and I wanted to commit suicide so many times. I got random rage and had to stop myself from freaking out constantly on my poor fiance. One and only good thing I got from Depo was learning how to insanely control my emotions and think logically!

    As you can tell Depo didn't work for me either. I tried Yasmin first but my breasts were so tender I had to wear certain kinds of bras b/c if they moved alot it hurt. That could be my body though. Going to the generic of OTC, is what the drug store gave me, called Tri-nessa, so far I've heard good things. On my Yasmin inactives so in a few days I get to see if my breasts feel normal again! *hopes*


    Last edited by Demile; 08-26-2004 at 07:51 PM.

     
    Old 08-27-2004, 03:49 PM   #10
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    Re: depo provera horror

    Hello,

    I agree that Depo is not a bad choice for everyone--if it was causing these effects in everyone that tried it, I'm sure it wouldn't be used anymore. That said, it does sound like this drug is responsible for your health problems, and I am really sorry that you have had to go through this, without being informed of these potential effects. My question is: I have been on depo for about a year and I am thrilled with it as a form of birth control. I haven't had any side effects at all--does this mean it has not reacted badly for me, and that I won't have the long term problems such as infertility? I don't want to get pregnant for at least 10 years, but I am very scared now that I won't be able to when the time comes. Does anyone have any advice for me?

    Thanks,
    Stacy

     
    Old 08-28-2004, 09:19 PM   #11
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    Re: depo provera horror

    Hi Stacy.........I didn't really have any problems while I was on it either. I had gained some weight. I really didn't realize how bad it messed me up until I tried to have another baby. To be honest with you...........I LOVED Depo while I was on it. I didn't get my period...........and who wouldn't like that??? I did develop some different problems, but I didn't think anything of it being because of the Depo. Those problems were a result of PCOS........which I was diagnosed with a few years ago. But........the more I read other stories........the more I suspect that the Depo onset the PCOS. I have read about many other women out there with the same story as mine, which is why I suspect Depo as the source of my problems. I don't think this is coincidence for all of these people, including myself.

    It is your choice to remain on the Depo or not. You may not be one of the unfortunate ones. But, if you do find that your body is not bouncing back after getting off of it, whether you are ready to have children or not at that point.....act on it! Just listen to your body. Make sure that you watch your menstrual cycles and make sure that they return to normal. If after some time they don't (I would say a year to 18 months later at the very most) I would see a doctor so that you can try to get your body back to normal. This drug has done much damage to a lot of people.

    Just keep in mind that there is a possibility of you landing in the same boat as I am in.....and if you do........there is still hope for children. I have had one child since Depo....but it took me 2 years to get pregnant. I have been off of Depo for 8 years and I still don't get my periods on a regular basis........not even semi regular. So far this year..........I have had 3 periods.......and we are almost 9 months into the year.

    Best of luck to you.

     
    Old 09-01-2004, 01:23 PM   #12
    kind heart
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    Re: depo provera horror

    Unfortunetly these are all classic symptoms of DEPO. I had friends who were on it and they had simular experiences. Fortuantely for them they never went back for a 2nd shot. All if the symptoms you mentioned were probably listed in their package insert that very few people read. That's how they protect themselves. I'm sorry you had such a bad experience.

     
    Old 09-01-2004, 05:45 PM   #13
    barton93
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    Re: depo provera horror

    When I started this injection (10 years ago)............not a single one of these problems was listed in the pamphlets!!! The pamphlets have been revised to include many of these symptoms in recent years. Problem is that these symptoms should subside when discontinuing use of the shot............and for many people, they don't. Their pamphlets don't tell you that you may possibly experience these side effects for life!!! So, knowing that fact (and it is a fact......read some horror stories), what is there to be said about that? With any other med out there, any symptoms that you experience quickly subside when discontinuing use of the product.

    So, whether or not people read the pamphlets..................bottom line is this.......the pamphlets are not telling potential users everything they should know. If the pamphlets disclosed all of the information and included that these symptoms may not go away even after discontinuing the product.............I don't think people would be willing to take the risk.

    My point in all of this is simple...............If I can stop just one person from experiencing what I as well as countless others have, then I'll be happy. Depo should be pulled from the market. Not only that, but doesn't anyone find it disturbing knowing that Depo is used as chemical castration in sex offenders as well as being used as birth control??? That fact can be supported............do a search on the internet..........you'll find out for yourself.

    This drug should be pulled.............and I firmly believe that one day it will. There are too many people developing the same illnesses after taking that shot. This is not coincidence. This is not about someone just being careless and not reading their pamphlet.

     
    Old 09-02-2004, 07:43 AM   #14
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    Re: depo provera horror

    I am really thankful for everyone posting their experience with this product. If it wasn't for this board, I would of considered taking this birth control. I have read posts on this board about the problems with depo. I never expressed my gratitude, but now I am saying thank you. You have saved me from making a huge mistake.

    Last edited by SnowBnny; 09-02-2004 at 07:44 AM.

     
    Old 09-02-2004, 07:58 AM   #15
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    Re: depo provera horror

    My daughter at 17 had the depo injection and within 12 months went from a size 10 to a size 22 and has deep red stretch marks on her arms , legs , stomach,breasts and thighs.She has never been well since having it and coming off it has not made her health problems go away.The doc told her it was side effects from the injection.

     
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