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Neuromuscular Diseases
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How My Health Is Changing My Life - Part 4

Posted 02-07-2012 05:49 AM by dogmum

So, at this point I was feeling pretty frustrated with the whole system. In total over the last 4 months I've been in the ER a total of 10 times. The last time, the ER doc gave me the name of yet another MS specialist in another city on the sly when the neurologist on call just read my file, gave me a painkiller and sent me home.

I did a VEP test, at my own request, during which my neurologist came in to look at the results and yelled at me for "not trying hard enough"....
Senior Member
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How My Health Is Changing My Life - Part 2

Posted 02-07-2012 05:07 AM by dogmum

This past summer, apart from the intestinal disturbances, was absolutely lovely! I worked as a volunteer with animals (dogs and mini farm animals) at a center that provides pet therapy to the local hospital as well as day trips to local schools. So, LOTS of activity. Lots of rewards emotionally. And lots of exercise and sunshine. It was in this beautiful sunshine, near the end of July, that I started to experience occasional double vision and severe light sensitivity. I bought a hat and a...
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My mysterious 10 year journey! Yeah me!

Posted 09-10-2011 04:41 PM by Eyeball gal

My symptoms

Ok so here's a somewhat short version list of symptoms that one neurologist, one neuro-Opthamologist, one Opthamologist, one family doc and a bunch of assorted ER docs have not figured out what's been going on for the past 9yrs so here it goes
-radiating eyeball pain, in one eye! But switches to opposite eye on occasion, pain is a #9 and it never goes away, large doses of anvil curb it to a point, these episodes over the years have progressively gotten worst! Some...
Eyeball gal
Views 851 Comments 0 Eyeball gal is offline

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