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ET - Blood Disorder

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Old 11-30-2007, 06:16 PM   #1
Miss Molly
Join Date: Nov 2007
Location: Auburn, WA
Posts: 3
Miss Molly HB User
Unhappy ET - Blood Disorder

I am new to this message board, but am looking for some fellow ET supporters. I feel like I am on an island. Here is my delimma _ I am 49 year old female; diagnosed with ET six years ago. I have noticed that the hydrea is taking a real toll on my body - tons of wrinkles on the face, fatigue, hair falling out, etc. My doctor told me that these side effects are rare and are usually caused by our hectic lifestyle. I also failed to mention that my teeth are going to hell too (since May - have had 3 crowns, 3 cavities, and gum surgery). The doc said the hydrea does not affect the teeth. Any of you have any of these symptons?

I really want to discontinue using hydrea. Just wondering if anyone else has gone through this dilemma. My count is currently 645,000 and at its highest - it was near a million.

Would love any contact from any ET isolates.

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Old 12-02-2007, 03:19 PM   #2
Junior Member
Join Date: Feb 2005
Location: Michigan
Posts: 43
Karenann12342 HB User
Re: ET - Blood Disorder

Hi, I took hyrea for a short while. I had so many mouth sores and stomach trouble also a really nasty matalic taste. I went back to argylin. I hope things get better for you.

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