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Hemochromatosis- Maybe?

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Old 03-28-2011, 07:17 PM   #1
Join Date: Mar 2011
Location: Rockwall, TX, US
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ginagaile HB User
Question Hemochromatosis- Maybe?

Most doctors don't seem to know much about hemochromatosis- grrrr

I first got high iron readings about 7 years ago- I stopped taking iron supplements and my iron went back to normal. I didn't worry about it much after that- just watched red meat intake, etc. My doctor at that time said it *might* be hemochromatosis, but didn't seem worried ( I am a pre-menopausal female).

My most recent bloodwork shows high HGB, high HCT, and high MCH. I moved to a different city so this is a new doctor. She did not mention hemochromatosis AT ALL. The elevations are very slight, but I'm thinking I probably do have hemochromatosis?? I have no symptoms, thankfully. I do have slightly elevated blood pressure; that's the only symptom I can think of. It's odd that I have high BP; I am not overweight, eat a very healthy diet, and work out almost every day.

I guess the next step is to find a specialist- should I go to a hepatologist?

Just trying to take care of this before it DOES become a problem!


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Old 03-29-2011, 09:47 PM   #2
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Location: Calif, USA
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Re: Hemochromatosis- Maybe?

There is a specific test for hemochromotosis and you should have it. My MIL didn't know she had it until she switched insurance plans. It can cause some problems so you want to know. My husband and kids were checked and thankfully they didn't inherit it.

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