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Old 07-14-2011, 05:04 AM   #1
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Join Date: Jul 2011
Location: UK
Posts: 26
mysteriousmilli HB User
Help needed

Hi, this is my first time on this board and I hope someone can shed some light onto my symptons and potential causes. 3 years ago I had glandular fever (Mono) was quite ill with it, and last year I had a GF flare up. Almost 4 months ago gland behind my right ear swelled considerably and was painful and sore, I went to the doctor who sent me off for blood tests. My IgA levels came back elevated. I have had 2 more repeat tests since then and both have come back high. Protein electrophresis test has come back negative. Ultrasound showed a cyst on my thyroid (which I knew about), and lumps down the left side of my neck and on lymph notes but they are benign. I am due for a chest xray next week looking at my mediastinal glands. I've yesterday had a retest for Glandular fever and other infections and also a chest xray Then repeat IgA test and serum ACE first week of august. Other symptons include extreme fatigue, tiredness, general feeling of malaise. I get night sweats down the central part of my body, ie from neck to belly button - not very severe, my clothes aren't soaking but its def noticeable. I get regular headaches. No weightloss, in fact I struggle to lose weight. Ive got a "heavy" leg feeling which is now constant, a pin and needs or goose bump feeling in my legs and face but without the goose bumps, brain fog, aching around my ankles feet. regular on set of flu symptons that then pass usually within a few hours.

My doctor seems to just want to keep having one more IgA test before referring me to a specialist, I just want to feel normal and healthy again. I sleep anything between 8-12 hours a night, its good quality sleep but I still feel exhausted. No anaemia. He seems to think its due to a viral infection and at somepoint it will just disappear from the test results.

I had a spotty rash in my hair, upper torso and back, it seems to have cleared up, I put it down to the disgusting conditions at my old gym (showers smelt of sewerage), as its virtually cleared up since I left the gym.

Can't think of anything else to add or I've forgotten, any ideas what I might be dealing with here would be very much appreciated. Thanks

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Old 07-18-2011, 08:48 AM   #2
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Join Date: Jul 2011
Location: UK
Posts: 26
mysteriousmilli HB User
Re: Help needed

Quick update, chest xray come back normal which is great. IMST and LDH tests (for mono - according to docs receptionist are negative - somewhat surprised at this) but doc wants to talk to me about some of my other tests - assuming serology? Got appointment tomorrow. I think its maybe immune system related as I keep picking up infections, but hopefully I will know more tomorrow.

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