It appears you have not yet Signed Up with our community. To Sign Up for free, please click here....

Blood and Blood Vessel Message Board

Polycythemia Vera

Post New Thread   Closed Thread
LinkBack Thread Tools Search this Thread
Old 10-22-2012, 05:33 PM   #1
Join Date: Oct 2012
Posts: 1
1234567pv HB User
Talking Polycythemia Vera

Hi Maggie

I was diagnosed with Polycythemia Vera in 2003 I was 127 pounds in 2003. Every year since then I have loss weight gradually. I have loss about 25 pounds. I have been trying everything to gain weight (protein powders, natural supplements, extra meals, and exercise). Have you found any ways to gain your weight back? Please let me know. Talk to you soon.


Sponsors Lightbulb
Old 11-09-2012, 12:33 PM   #2
Senior Member
Join Date: Dec 2006
Location: Overland Park, KS, USA
Posts: 101
BiggerMac HB User
Re: Polycythemia Vera

I've been dealing with polycythemia for about 7 years now, taking Hydroxurea and getting phlebotomies every two months or so.

I took various anti-itch pills for a couple of years. But I gave them up as a useless expense and... yeah... the itchig is less frequent and less severe now. Nightsweats is another symptom of polycy. For those I found a nightly dose of Ambien works pretty well.

Sorry to say, I can't help you on the weight loss. I maintained 175 on my 6'3" frame till this summer. Now I'm down to 160, but I seem to have stabilized there. My oncologist says I shouldn't worry as long as the loss is not polonged and severe.

Hang in,


Old 12-02-2012, 09:58 PM   #3
Join Date: Nov 2012
Posts: 6
tav555 HB User
Re: Polycythemia Vera

Polycythemia vera is a myeloproliferative blood disorder in which the bone marrow makes too many red blood cells.

Old 01-05-2013, 04:55 PM   #4
Join Date: Jan 2013
Location: Olympia, WA, USA
Posts: 9
ameliajo HB User
Re: Polycythemia Vera

Hi Sheba!
Are you a vegan or vegetarian? I've been wondering if eating more animal products might be helpful to people with PV, but I really don't know. All I know is everyone I've talked to so far with PV doesn't eat very much animal protein.

Closed Thread

Thread Tools Search this Thread
Search this Thread:

Advanced Search

Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is Off
HTML code is Off
Trackbacks are Off
Pingbacks are Off
Refbacks are Off

Sign Up Today!

Ask our community of thousands of members your health questions, and learn from others experiences. Join the conversation!

I want my free account

All times are GMT -7. The time now is 10:46 PM.

Site owned and operated by HealthBoards.comô
© 1998-2018 HealthBoards.comô All rights reserved.
Do not copy or redistribute in any form!