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Bone Disorders Message Board

CRMO Dialog wanted


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Old 08-22-2017, 12:30 PM   #1
AKCheryl
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CRMO Dialog wanted

I just found this board, so i wanted to see how your doing with diagnosis of CRMO? my daughter just is turning 15,she was diagnosed 3 yrs ago, it was so overwhelming & Heart wrenching, so when i read your post i totally relate! we needed to have open dialog to whats helping as a treatment,diets, any ideas that show hope :}
I homeschooled the kids and at let them make choices upon Jr High for us it starts at 6th grade,(they attend the jr.high school), she was very active in sports when she was hit in the face playing soccer from there is when the whole fiasco started so if you are still on this board, it would be nice to see were you and your daughter/sons are in this diagnosis, how they aredoing exchange thoughts, treatments ect..
Thanks in Advance

 
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