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  • Calcaneal Ostyotomy Nightmare

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    Old 06-06-2004, 11:17 PM   #1
    penybobeny
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    Calcaneal Ostyotomy Nightmare

    I have had two seperate Calcaneal Ostyotomies in the past 5 years to try to repair damage ( to put it bluntly, the doc <known to me as id-jet> cut my heelbone the first time crossways and moved it over 1/2 inch then re-attached it with a couple of screws and the second time he cut it in a different spot and added a 1/2 inch bone graft to lengthen it )
    In all I have had 12 surgeries in the past 5 years, 3 of them to try to correct a non-union from the last calcaneal ostyotomy... bluntly put, the bone graft didn't take, they put in a new bone graft and an internal bone stimulator, then cut and removed my sural nerve because of pain... didn't do squat for the pain. The screws, bone stimulator and all that are out now, my foot is twisted inwards and looks like a ( , the swelling and pain keep me up, because the sural nerve removal numbed the skin, NOT where the pain is. <id-jet just says "what can I say, you have pain..." but has not taken an x-ray since the plates and stimulator were removed in Feburary>
    My word of advice... before any surgery, seek a second opinion, or even a third... this was done under Workmans Comp, so I don't have that luxury, instead I walk with the use of a crutch, I live in constant pain, my foot is grossly deformed and any Doc I even try to talk to is afraid to touch me, so much has been done, they wouldn't know where to start.
    Ok... venting done... I see id-jet in about 11 hours to try to force an x-ray or at least something, anything so I can sleep through the pain.
    peny

     
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    Old 06-07-2004, 11:53 AM   #2
    StephanieVD
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    Re: Calcaneal Ostyotomy Nightmare

    I had a calcaneal osteotomy along with a ligament reconstruction in February. I got two opinions from 2 different ankle specialists, both agreed on the calcaneal osteotomy and one thought the lig recon would help more if it was added. I got a deep bone infection after surgery that took 2 months to diagnose. The screw is now out, and the heel bone is somewhat fused but not completely, and I have huge holes in the middle of the heel now. The surgeries were to fix a malalignment problem which isn't even fixed now.. I have only had 6 surgeries total on the ankle thus far but have been told I will probably need a fusion in the next 5 years (I am 19). Hope you don't feel as alone now. I know it can be hard and stressful, I have been dealing with my ankle 3 years now.. Good luck.

     
    Old 06-09-2004, 08:46 PM   #3
    penybobeny
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    Re: Calcaneal Ostyotomy Nightmare

    Hi there Stephanie... well, the doctor's appointment went rotten... the ostyotomies corrected the 'flat foot' problem I had from a ruptured posterior tib tendon... and the id-jet listened for a change and took another x-ray, something called a 'stress view' talar tilt test which showed that I have a 15 degree tilt from two more tendon ruptures that were not caught because my foot was compensating by rolling in causing an 'instable ankle', which means... more surgery. I wish they had just fused it three surgeries ago like they said they would, but id-jet changed his mind at the last moment, and now... I just don't see an end to this... 5 years of constant pain, 12 surgeries with more to come... I honestly want to just take a chainsaw to it and let them fix the stump so I can get back to life. Lets just say that I am not a happy camper.
    It is good that you got a second opinion, insist on a second before any proceedure, and keep a diary of your progress, noting everything.
    good luck
    peny

     
    Old 06-12-2004, 06:58 PM   #4
    StephanieVD
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    Re: Calcaneal Ostyotomy Nightmare

    I have had four surgeries for ankle instabilty, that is why I started having all these surgeries in the first place.. I had a high arch before my calcaneal osteotomy which was increasing the chance for my ankle to roll.. If you don't have a problem with stability when you walk and do sports I wouldn't get it fixed just because the doctors say too.. I would just fall out of nowhere when I walked.. Do you know what surgery they are planning.. Will they use a tendon to reinforce the stability or is it using what you already have. Good luck. I still have much pain from all my ligament recons (4 total), the last one was in feb and thats when my leg got infected. My doc is an idiot so can't help you there. My talar tilt before surgery #4 was 35 degrees, a normal is around 12... so you're not too bad.. and lots of people have loose ankles.. Research it is all I'm saying.. you have already had so many surgeries....

     
    Old 06-13-2004, 01:42 AM   #5
    penybobeny
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    Unhappy Re: Calcaneal Ostyotomy Nightmare

    Quote:
    Originally Posted by StephanieVD
    I have had four surgeries for ankle instabilty, that is why I started having all these surgeries in the first place.. I had a high arch before my calcaneal osteotomy which was increasing the chance for my ankle to roll.. If you don't have a problem with stability when you walk and do sports I wouldn't get it fixed just because the doctors say too.. I would just fall out of nowhere when I walked.. Do you know what surgery they are planning.. Will they use a tendon to reinforce the stability or is it using what you already have. Good luck. I still have much pain from all my ligament recons (4 total), the last one was in feb and thats when my leg got infected. My doc is an idiot so can't help you there. My talar tilt before surgery #4 was 35 degrees, a normal is around 12... so you're not too bad.. and lots of people have loose ankles.. Research it is all I'm saying.. you have already had so many surgeries....
    I had a posterior tib tendon rupture that caused my normally high arch to collapse, which is when my odysey started... I am unable to walk without the use of a forarm crutch and my ankle rolls outwards dangerously with every step, without the crutch I fall, with it I can at least catch myself, that and take weight off my very painful foot.
    What really burns my biscuits is that about 4 surgeries ago, my doc gave me a choice, the second calcaneal ostyotomy with lateral lenghtening, or fusion... I chose fusion... but the day before surgery my doc changed his mind and did the lenghtening with a bone graft from my pelvis... that didn't take... he tried external bone stimulation... didn't work... then replaced the bone graft with bone harvested from my shin and put in an internal bone stimulator... then he cut and removed my sural nerve redirecting it into the bone to help with the pain... helped alot, my skin is nice and numb... too bad it was never the skin that hurt in the first place!!!
    If he had just done the fusion my nightmare would have been over... heck, if he would just cut this useless foot off I could get back to a normal life! I used to train and ride horses, I used to bowl, play pool, play golf, hike, swim... I was extremely active. I can't do any of that anymore, even swimming is too painful and because I can't do these things I have gained alot of weight... metabolism of a sloth... which doesn't help anything.
    I am researching what can be done for me now... my foot is permanently deformed, shaped like a crescent and 1/2 inch longer than my right foot, constantly swollen and painful... other doctors that I have talked to say that they would be afraid to even touch it.

    Just remember, it takes an injury to hurt an ankle, but it takes a surgeon to really screw it up!

    peny

     
    Old 06-14-2004, 05:29 AM   #6
    StephanieVD
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    Thumbs up Re: Calcaneal Ostyotomy Nightmare

    I had a surgeon a year and a half ago that was supposed to do the tendon transfer to tighten up my ankle and then wussed out at the last minute. I didn't let him operate at all. But if he had done it I wouldn't have needed the calcaneal osteotomy that got infected a year later because of delay. So I know what you mean on that aspect. I would defnitely get the ankle fixed then. Are you wearing some sort of ankle brace? I am 4 months post-op the osteotomy and 6 weeks post-op the screw removal and still have severe pain in my heel, lateral gutter, and inside my ankle is now hurting. My ortho discharged me asking me to come back when I was ready for a fusion. No way. When I got hurt I was running 5 miles a day and playing soccer and volleyball. It's hard, I don't know what to do. I am running out of doctor choices and I live in a large city with 4 ankle specialists... I have seen 3, and multiple sports ortho's. I am at the end of the road.. Have been told my infection, osteomyelitis, is chronic and will reoccur periodically throughout my life.. I could lose my heel bone and possibly my lower limb, but for now I am ok. It's all very stressful. I agree, that surgeons can definitely screw you up.. Good luck!

     
    Old 04-26-2005, 05:35 AM   #7
    PatriotsfanLinda
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    Unhappy Re: Calcaneal Ostyotomy Nightmare

    I had a Type 3 Posterior Tibialis Tendon Tear in which my ankle bone was literally hitting the ground,and Had surgery on June 17th,2004. The surgery i had was Calcaneal Osteotomy,Achilles Tendon Lengthening,Tendon Transfer. I was in a cast for 8 weeks,non weight bearing.
    I have never had a day without foot pain. I had to have the screw taken out because it was causing me severe pain where it was. I had the screw removed in December,and ended up with an infection which i had to be sent home with a picc line after 3 months of the infections not getting better.
    I got a second opinion before this surgery,and was told this was my option.
    I have so much pain now,and my last mri showed that my Tibial tendon is torn again,and I have Achilles Tendonitis. I am so mad that i even got this surgery.
    I got a second opinion,and i'm going this week for a 3rd opinion, but this time i'm going to an orthopedic surgeon who specializes in ankles and feet.
    I have severe swelling. My foot swells and turns purple if i'm on it for longer than 5 minutes.
    I am just hoping i have a pain free day,and won't be on crutches forever.
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    Old 04-26-2005, 11:28 AM   #8
    StephanieVD
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    Re: Calcaneal Ostyotomy Nightmare

    All my big ankle surgeries have been done by ankle specialists so that part never helped me. I had a gastroc lengthening in December along w/a sural nervectomy to help the pain. I now am dealing w/stress fractures from my foot still being cavus. I am seeing a podiatrist on Friday, because my ankle surgeon is in NYC and he's great, but its a long trip when I already know I don't want surgery, they gave me the option of an AFO cuz they are worried I will do more damage. Its so confusing. Hope you two are doing well.

     
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