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made lung's deformity bone disorder

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Old 10-15-2003, 08:53 AM   #1
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Join Date: Oct 2003
Location: cleveland,ohio
Posts: 13
kittyspaw7 HB User
Post made lung's deformity bone disorder

I have a rare bone disorder called Made Lung's deformity. I have had 3 operations to try to correct it.Does anyone know exactly how rare this disorder is? From what i hear its becoming more common. My forearms are shortened and my growth was stunted. I stopped growing at 10 and i will be 23. I know its genetic affecting mostly females.But thats all i really know. I have had 2 ulna redictions and a metal plate put in to stop the growth.Then 3 years later i had to have the metal plate taken out because of rejection. If you have any info please respond.
thanks ang

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