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CRMO without PAIN??

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Old 03-29-2009, 10:58 PM   #1
Join Date: Mar 2009
Posts: 1
hlpforangl HB User
CRMO without PAIN??


My daughter has a few bone tumors which the doctors thought were malignant. Thank goodness they were not.

The ortho who did the biopsy said she has fibrous dysplasia; however, we went for a second opinion and the other ortho said it is CRMO. We don't know which one is right.

My daughter is not in pain although she limps. Is it possible to have CRMO without pain?

It is hard to find info on these disorders but everything I read about CRMO indicates that the patient would be in pain.

Are there any support groups or resources you would recommend?

Thank you!!

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