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    Old 06-16-2009, 10:06 PM   #1
    skiingclimber
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    Osteochondroma Removal or Not?

    Hey everybody,
    I am nearly fifteen years old and have an osteochondroma on my right fibula. It's pretty painless doing just normal activities, but after playing softball or running a lot my leg tightens up and this pretty severe pain sets in for hours at a time. When I was diagnosed I was told it couldn't be removed until I was finished growing. I need help deciding if I should have surgery to remove it. It's at the very top of my fibula and is hook-shaped.
    If you anyone could tell me what the surgery is, how long it takes, and what the recovery time is for removal from the fibula that would be great.
    Thanks so much

     
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    Old 01-04-2010, 03:21 PM   #2
    Rhonda_m_37
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    Re: Osteochondroma Removal or Not?

    Hi, I have a 16 yr. old son, Tyler, and he has an Osteochondroma that is as big as a grapefruit. He's had it since he was 10 and we watched it until now. It hurts and since we had a CTA scan it shows a main artery wrapped in it. So, in the morning he is having surgery. We are going to Children's Vanderbilt in Nashville, Tn and they say he will only be in the hospital for the one night. He is scared of course....first surgery for him. I think it will be routine....
    As long as the tumor isn't hurting you..and it doesn't interfere in any way you ahouldn't worry about it. My son's was bothering him anytime it was touched and then it started hurting him all the time...

    Good luck with yours..

    Rhonda

     
    Old 05-11-2010, 05:53 AM   #3
    clovisjr
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    Re: Osteochondroma Removal or Not?

    Quote:
    Originally Posted by skiingclimber View Post
    Hey everybody,
    I am nearly fifteen years old and have an osteochondroma on my right fibula. It's pretty painless doing just normal activities, but after playing softball or running a lot my leg tightens up and this pretty severe pain sets in for hours at a time. When I was diagnosed I was told it couldn't be removed until I was finished growing. I need help deciding if I should have surgery to remove it. It's at the very top of my fibula and is hook-shaped.
    If you anyone could tell me what the surgery is, how long it takes, and what the recovery time is for removal from the fibula that would be great.
    Thanks so much
    I'm having mine removed next week, and I'm pretty sure it's routine surgery. Fear nothing, just pick a good doctor and go for it. I feel relieved I'm finally get rid of it.
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    Clovis

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    Old 05-13-2010, 07:02 PM   #4
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    Re: Osteochondroma Removal or Not?

    Quote:
    Originally Posted by clovisjr View Post
    I'm having mine removed next week, and I'm pretty sure it's routine surgery. Fear nothing, just pick a good doctor and go for it. I feel relieved I'm finally get rid of it.



    Hi, my son is 11 years old and have Osteochondroma on his left femur for the past two years and I am so scared because it is a big Knot. He have an appointment with a specialist next Thursday, and I am so scared to know what the doctor is going to tell me. So just keep me and my son in your prayers and I will also keep you in mines.

     
    Old 05-14-2010, 02:52 AM   #5
    clovisjr
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    Re: Osteochondroma Removal or Not?

    Quote:
    Originally Posted by jatavion10 View Post
    Hi, my son is 11 years old and have Osteochondroma on his left femur for the past two years and I am so scared because it is a big Knot. He have an appointment with a specialist next Thursday, and I am so scared to know what the doctor is going to tell me. So just keep me and my son in your prayers and I will also keep you in mines.
    Hey stay calm. Osteochondromas are benign and usually harmless. It`s likely that the doctor will not remove it now, as your son is still growing up, unless it`s damaging nearby tissue (unlikely), impairing movement or becoming malignant (almost never). Relax, watch your boy grow, and only then remove it, if he really wants to. Everything will be all right.
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    Old 05-20-2010, 07:34 PM   #6
    millardfilmore
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    Re: Osteochondroma Removal or Not?

    Quote:
    Originally Posted by jatavion10 View Post
    Hi, my son is 11 years old and have Osteochondroma on his left femur for the past two years and I am so scared because it is a big Knot. He have an appointment with a specialist next Thursday, and I am so scared to know what the doctor is going to tell me. So just keep me and my son in your prayers and I will also keep you in mines.
    I'm 18 years old and have had osteochondroma on the inside of my right femur since fourth grade (age 9). it bothered me then after hitting me knee which is what led to us discovering it, and one other time playing basketball it got hit and was painful for a few weeks. Other than that, it did not limit my running, mobility, or activities throughout middle and high school.

    I always planned on getting it removed as it was huge and not something i want to keep forever and something that could potentially cause problems down the road, and I had surgery this morning.

    I was under for about an hour, and so far have not been in much pain (i realize i'm on painkillers, however i'm going longer than the recommended 4 hours between them) I am still able to bear weight on it, although the doctor recommended against it, so i'm using crutches. I will try to keep you posted on my recovery, although i expect to be walking fine within about 2 weeks or so and hope to be jogging lightly in about 4

     
    Old 05-21-2010, 06:19 AM   #7
    clovisjr
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    Re: Osteochondroma Removal or Not?

    Quote:
    Originally Posted by millardfilmore View Post
    I'm 18 years old and have had osteochondroma on the inside of my right femur since fourth grade (age 9). it bothered me then after hitting me knee which is what led to us discovering it, and one other time playing basketball it got hit and was painful for a few weeks. Other than that, it did not limit my running, mobility, or activities throughout middle and high school.

    I always planned on getting it removed as it was huge and not something i want to keep forever and something that could potentially cause problems down the road, and I had surgery this morning.

    I was under for about an hour, and so far have not been in much pain (i realize i'm on painkillers, however i'm going longer than the recommended 4 hours between them) I am still able to bear weight on it, although the doctor recommended against it, so i'm using crutches. I will try to keep you posted on my recovery, although i expect to be walking fine within about 2 weeks or so and hope to be jogging lightly in about 4
    Hi, millardfilmore,

    thanks for sharing your experience. My surgery has been transferred to June 1st due to bureaucratic issues regarding health insurance, but now it's really gonna happen. I, too, will keep you guys posted.

    Let's keep this forum "alive", it helps relieving some anxious patients !

    Live long and prosper.
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    Old 05-27-2010, 08:10 AM   #8
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    Re: Osteochondroma Removal or Not?

    Quote:
    Originally Posted by clovisjr View Post
    Hey stay calm. Osteochondromas are benign and usually harmless. It`s likely that the doctor will not remove it now, as your son is still growing up, unless it`s damaging nearby tissue (unlikely), impairing movement or becoming malignant (almost never). Relax, watch your boy grow, and only then remove it, if he really wants to. Everything will be all right.
    My son is turning 9, and we discovered his Osteochondroma (left humerus) a year ago. We recently went to the doctor to check the growth and the doctor said it is growing slowly, but my son is complaining it hurts when he moves the arm and exercises. The doctor says it is really our choice if we want to remove it since he can treat the pain.
    I first said we want to remove it this summer, but I am afraid of the surgery. At the same time I don't want my son to limit his sports because of this. My son says he wants that out of his arm (but then again, I don't think he can fully understand what a surgery involves).

     
    Old 05-28-2010, 04:39 AM   #9
    clovisjr
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    Re: Osteochondroma Removal or Not?

    Quote:
    Originally Posted by ohouse View Post
    My son is turning 9, and we discovered his Osteochondroma (left humerus) a year ago. We recently went to the doctor to check the growth and the doctor said it is growing slowly, but my son is complaining it hurts when he moves the arm and exercises. The doctor says it is really our choice if we want to remove it since he can treat the pain.
    I first said we want to remove it this summer, but I am afraid of the surgery. At the same time I don't want my son to limit his sports because of this. My son says he wants that out of his arm (but then again, I don't think he can fully understand what a surgery involves).
    The surgery itself is not the main issue here. Osteochondromas usualy do not grow (in adults), what grows is its cartilage cap. Actually, Osteochondromas are usualy results of the ordinary growth process - which might explain why the bony part of it is growing - and your boy is really young. If the cartilage cap is not, there's no reason for concern, I would treat the pain until your boy's growth ceased, about age 20/21. That's because your boy's osteochondroma is most likely at a part of the bone that is responsible for growth, and by removing the chondroma you may have to remove part of the healthy growth bone tissue, which might impair the growth of that limb.

    Please have in mind I'm not a doctor, just another patient who studied the matter and who has a good doctor. But your boy may want that out for aesthetical reasons - common by that age. Maybe a good argument is saying that a shortly-grown arm may look even worse in a couple of years.

    Hope everything goes well. FYI, I'm taking mine off in a couple of days, and I'm looking forward to it - but I'm 34...
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    Old 06-01-2010, 07:15 AM   #10
    ohouse
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    Re: Osteochondroma Removal or Not?

    Quote:
    Originally Posted by clovisjr View Post
    The surgery itself is not the main issue here. Osteochondromas usualy do not grow (in adults), what grows is its cartilage cap. Actually, Osteochondromas are usualy results of the ordinary growth process - which might explain why the bony part of it is growing - and your boy is really young. If the cartilage cap is not, there's no reason for concern, I would treat the pain until your boy's growth ceased, about age 20/21. That's because your boy's osteochondroma is most likely at a part of the bone that is responsible for growth, and by removing the chondroma you may have to remove part of the healthy growth bone tissue, which might impair the growth of that limb.

    Please have in mind I'm not a doctor, just another patient who studied the matter and who has a good doctor. But your boy may want that out for aesthetical reasons - common by that age. Maybe a good argument is saying that a shortly-grown arm may look even worse in a couple of years.

    Hope everything goes well. FYI, I'm taking mine off in a couple of days, and I'm looking forward to it - but I'm 34...

     
    Old 06-01-2010, 07:21 AM   #11
    ohouse
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    Re: Osteochondroma Removal or Not?

    Hi:
    Thanks so much for your reply. I made another appointment to see the doctor to have all my questions answered (at least try to). I think I have a better understanding now about what to ask the doctor before making a decision.
    I have read about shorter limbs, but I was not cleared about what could cause it.

    I will post my findings after the doctor's visit.
    I wish you the best with your surgery. Keep us posted on your recovery.

    Thanks again.

     
    Old 06-02-2010, 04:08 AM   #12
    clovisjr
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    Re: Osteochondroma Removal or Not?

    Hi guys,

    as promised, I bring you real-time news about my surgery. It happened about 14 hours ago. I was totally calm, everything went just fine, the surgery took about 2 hours, plus anesthesia time. I was back into the room about 3 hours after I left. Because of the anesthesia, I couldn't feel my legs before 6 hours after the surgery. Now the anesthesia effects are gone, it hurts a little, but no more than it used to hurt. The thigh is now wrapped, can't bend the leg, though. I feel good, and I'm expected to be discharged this evening (9 PM, GMT). I encourage anyone who feels any discomfort but are afraid of removing it, unless it is not recommended by your doctor.
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    Old 06-24-2010, 01:07 PM   #13
    ohouse
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    Re: Osteochondroma Removal or Not?

    Hi:

    I went to talk to my son's doctor about surgery. He was able to answer all our questions, and we decided to wait and not have surgery for now. The doctor said he always advises to wait if it is not creating problems, especially at a young age. We know he will eventuall have to remove it. One positive factor about waiting is that the surgery will be easier because the growth area of the arm will not be so closed to the osteochondroma. The negative side is that it requires 8 weeks without sports, lifting, and at an older age this might affect the patient more. We will go next year for a check up and go from there. Thank you for all your comments. I will continue in touch.

     
    Old 06-28-2010, 06:38 AM   #14
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    Re: Osteochondroma Removal or Not?

    Quote:
    Originally Posted by ohouse View Post
    Hi:

    I went to talk to my son's doctor about surgery. He was able to answer all our questions, and we decided to wait and not have surgery for now. The doctor said he always advises to wait if it is not creating problems, especially at a young age. We know he will eventuall have to remove it. One positive factor about waiting is that the surgery will be easier because the growth area of the arm will not be so closed to the osteochondroma. The negative side is that it requires 8 weeks without sports, lifting, and at an older age this might affect the patient more. We will go next year for a check up and go from there. Thank you for all your comments. I will continue in touch.
    Good to know.

    My recovery is just perfect. Surgery on June 1st, the thigh remained wrapped in bandages for a week. Removed on June 8th, the doctor said I no longer needed crutches, but I still couldn't stretch the leg completely, so I kept using them for another week. I was able to go to the mall , to the movies with them, but every time I went out there was an improvement on the leg's condition. On June 15th the doctor removed the stitches. It was still uncomfortable to go anywhere without crutches, but I was a lot better. Now, June 27th, I've been going everywhere without crutches for about ten days, climbing stairs - two steps at a time - short runs and so on. Nearly normal, absolutely painless, and considering soccer :-)
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    Old 06-30-2010, 10:18 AM   #15
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    Re: Osteochondroma Removal or Not?

    Quote:
    Originally Posted by skiingclimber View Post
    Hey everybody,
    I am nearly fifteen years old and have an osteochondroma on my right fibula. It's pretty painless doing just normal activities, but after playing softball or running a lot my leg tightens up and this pretty severe pain sets in for hours at a time. When I was diagnosed I was told it couldn't be removed until I was finished growing. I need help deciding if I should have surgery to remove it. It's at the very top of my fibula and is hook-shaped.
    If you anyone could tell me what the surgery is, how long it takes, and what the recovery time is for removal from the fibula that would be great.
    Thanks so much
    Mine was on my femur just above me knee. I realize this is a little different location, but I was also told not to have surgery before I finished growing. From the wa you decribe it, mine was similar shape, about the size of a golf ball.

    May 20, I had surgery to get rid of it. I was under for about an hour. Within just a couple days, I was able to bear weight on it and walk on it. The swelling took about 3 weeks to fully go down, however I was able to walk fine to go to the gym (for upper body workouts) within a week. As the swelling went away, I was able to bike and jog on an elliptical. 4 weeks after, I was 100% recovered and able to run fine on it.

    Good luck wtih this

     
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