It appears you have not yet Signed Up with our community. To Sign Up for free, please click here....

Bone Disorders Message Board

CRMO Parents

Post New Thread   Closed Thread
LinkBack Thread Tools Search this Thread
Old 08-29-2009, 11:00 PM   #1
Join Date: Aug 2009
Posts: 1
crmonomo HB User
CRMO Parents


My 8 year old daughter was recently diagnosed with CRMO.

Last edited by Administrator; 11-09-2010 at 07:07 PM. Reason: Please don't request off-board contact. Thanks!

The following user gives a hug of support to crmonomo:
mydaughterscrmo (04-22-2011)
Sponsors Lightbulb
Old 10-07-2009, 10:45 AM   #2
Join Date: Oct 2009
Location: Roanoke, Virginia
Posts: 3
Bellarocks HB User
Re: CRMO Parents

My son was diagnosed as having CRMO in the summer of 2008. His symptoms began after he fell on a diving board on his right knee in June 2007; he was 10-years-old. Up until that point, he was a healthy, active boy. It is a l-o-n-g story as to how we came to learn of his diagnosis, and I still think my husband and I are still in disbelief.

I, too, am wondering about a CRMO support group here in the states for parents.

My son hasn't had a horrible "flare-up" until recently, resulting in pretty severe pain and absences from school, which is stressful for him and for me. All I can say to his teachers and guidance counselor is that it's like waiting for the other shoe to drop; one day he's fine and the next, he's limping because of pain in his right hip/pelvic/thigh area (his right collarbone is also affected---it's huge). There's no rhyme or reason, it seems. What do other parents of CRMO children do regarding school, absences, etc.?

A couple more questions:

- Is there anyone out there whose child has had stomach problems that were not present before his/her CRMO diagnosis?

- My son has been prescribed Meloxicam. Has anyone had good results with it?

Thanks in advance for responding!

Old 12-07-2009, 04:50 AM   #3
Join Date: Dec 2009
Location: mi
Posts: 5
luckytigger5 HB User
Re: CRMO Parents

My daughter was diagnosis when she turned 10. She was very active playing hockey and soccer. When she fell playing hockey fractured her L2 (were the hot spot weakened the bone) that when the symptoms started to become active. She has went thru multi tests and found out she has 3 hot spots. R/H leg below knee, R/H rib & on the spin. This was found from a MRI and complete body/bone scan from U of M (shadows). Had to do the biopsy to tell us it was crmo. Before the biopsy the doctors told us it was cancer and to brace for the worst. What a relief!! They prescribed Azithromycin then steroid pack (the same for asthma) 1 week dose and she improved like she was back to the same person before this. Before steroid treatment she was on strong narcotic (oxycodone) because of the sever pain (couldn't move off the sofa) really upsetting I couldn't do anything. She has been pain free for 3 months but developed a little limp in the leg that has the hot spot. Per the doc @ U of M the symptoms will respark when there is an injury don't know why that triggers the immune system to attack the bones. As for missing time in school I got a letter from my doctors stating she has a rare condition and the school must provide a home tutor or home schooling. I hope this helps. Please stay in contact there is no support groups i found yet. Looking to start a web site about this condition.

Last edited by luckytigger5; 12-07-2009 at 10:59 PM. Reason: posted contact info - please read the posting rules

Closed Thread

Similar Threads
Thread Thread Starter Board Replies Last Post
Re: Crmo John and Karen Cancer: Bone 12 01-03-2010 12:49 AM
CRMO without PAIN?? hlpforangl Bone Disorders 0 03-29-2009 10:58 PM
Crmo jpower50 Bone Disorders 1 10-04-2008 03:26 PM
Another Child with CRMO karen98 Bone Disorders 10 05-17-2008 09:45 AM
My son has CRMO - He is in constant pain now. 3lilladybugs Bone Disorders 7 03-18-2008 07:38 PM
Possible CRMO diagnosis DSchmidt Bone Disorders 28 12-20-2007 11:59 AM
My son has delt with CRMO for two years now. toritutu Bone Disorders 0 10-04-2007 07:43 AM

Thread Tools Search this Thread
Search this Thread:

Advanced Search

Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is Off
HTML code is Off
Trackbacks are Off
Pingbacks are Off
Refbacks are Off

Sign Up Today!

Ask our community of thousands of members your health questions, and learn from others experiences. Join the conversation!

I want my free account

All times are GMT -7. The time now is 04:00 PM.

Site owned and operated by HealthBoards.comô
© 1998-2018 HealthBoards.comô All rights reserved.
Do not copy or redistribute in any form!