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  • Undiagnosed Abdominal Pain/Pressure - HELP!

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    Old 11-20-2016, 05:48 PM   #1
    awood31
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    Undiagnosed Abdominal Pain/Pressure - HELP!

    Here's an overview of my journey with abdominal pain. I thought I had my pain mostly in control (still had episodes of nausea and vomiting occasionally), but now I have had 3 episodes of severe pain.

    I am woken up with the pain. Twice at night. Once in the morning. Pain and pressure are in upper/middle abdomen. Having bowel movement does not relieve pain. Vomiting does not relieve pain. I can't keep food or water down during episodes. I am literally laying on the bathroom floor hoping to die. The pain is getting worse with each episode. Pain subsides within 2 hours of being woken up. The pressure continues for 24-48 hours after initial pain, and it gets worse when standing/moving.

    I have had A LOT of tests done, but no real answers! I've developed 2 (possibly 3) food allergies since this started. I avoid these foods at all costs!

    I feel like I need Dr. House..


    Timeline

    Fall 2013

    Symptoms: Upper/middle left abdominal pain and pressure
    Diagnosis: Mono

    Spring 2015

    Symptoms: Upper/middle left abdominal pain and pressure, feeling full after eating very little
    Abdominal Ultrasound (1 of 2): Found liver hemangiomas

    Summer 2015

    Symptoms: Upper/middle abdominal pain and pressure, nausea, vomiting (especially after eating rich, creamy, and greasy foods)
    Upper GI X-Ray with Barium: No abnormalities
    HIDA Scan: No abnormalities

    Fall 2015

    Symptoms: Upper/middle abdominal pain, nausea, vomiting, fatigue
    Urinalysis: Found microscopic amounts of blood in urine
    Blood Work: Found dairy allergy
    • Gave up dairy immediately
    • Pain got worse
    Kidneys/Urinary Tract/Bladder Ultrasound: No abnormalities
    Abdominal X-Ray: Lots of stool
    • Did colon cleanse
    • Got follow up x-ray week later
    • Showed less stool
    Vaginal Ultrasound: No abnormalities
    Abdominal Ultrasound (2 of 2): Showed no growth in liver hemangiomas
    Other: Developed allergy to cashews

    Winter 2015

    Symptoms: Upper/middle abdominal pain, nausea, vomiting, fatigue, weight loss (10 lbs in 2 weeks)
    CT Scan: Showed lots of stool
    • Did do test morning after Thanksgiving
    • Prescribed Linzess
    • Reaction to barium (severe diarrhea, vomiting, pain)
    Linzess: Had severe reaction, nonstop diarrhea, stopped medicine

    Spring/Summer 2016

    Symptoms: Nausea, vomiting (usually once a month), upper abdominal pain
    Other: Noticed other foods were hurting, sodium benzoate was common factor in some
    Dietary Changes: NO beef, pork, processed meats, dairy (since Oct. '15), cashews (since Nov. '15), corn, turkey, carbonated drinks, sodium benzoate
    Doctors: Took 2 months for doctor to call back about medicine reaction, switched doctors and new one didn't run any tests, give a diagnosis, or treatment plan

    Fall 2016

    Symptoms: Increased gas, upper abdominal pain, nausea, vomiting (usually once a month), episodes of severe (absolute worst pain ever felt) abdominal pain with pressure, vomiting, and dizziness that wakes me up at night

     
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