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Ulcerative Coilitis success story

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Old 09-23-2007, 02:19 PM   #1
Join Date: Sep 2007
Location: Orange County, CA
Posts: 7
Darrin120 HB User
Ulcerative Coilitis success story

I was diagnosed with Ulcerative Coilitis in 1999. I actually had the symptoms for over a year before I saw a doctor. It was much too embarassing to tell my girlfriend, I figured I had been drinking too much and I just had to cut back. I worked full time, and had many accidents, I took days off, and became enemic. But I didn't know how devestating my disease had become. I was having bloody bowel movements 25-30 times per day and still trying to "be a man about it". Well I eventually could not hide my disease.
My gastroenterologist was set back by the severity of my condition. He gave me all the medication options over the next couple of years. I was doing 60 mg of prednisone, pentasa, and even remikade done through an IV. I got married but still had complications with my disease.
Now my only other option was a full colectomy with a j-pouch ileo-anal pull-through. Yea, bye bye to my large intestine and hello to a procedure that made part of my small intestine into my new colon, just a lot smaller. This was a six hour surgery and 3 months in cedar sanai recovery.
All of this also took a toll on my body my mind and my new marriage. I lost use of my left leg for 6 months as a complication of my surgery, I became a drug addict, and I lost my wife and home and my job.
Oops, now almost 4 years later I have my life back and a clean one . I have had bouts with pouchitis, and anal fistula from my pouch to my buttocks. I still have to watch my diet and keep an eye on possible flare-ups.
I have a home again and a job that I am proud to do. I have the freedom to live a life not worrying about where the nearest toilet is, although I am more comfortable knowing one is close.
The relationship thing is still hard, Intimacy can be difficult and most people will never understand the trials I have been through.
But that is okay, in 2007 my life is good and getting better. My health issues seem to be subsiding, and I can focus on other areas of self-improvement.

So if you are struggling with ulcerative coilitis, know there atre others who have walked the path before you. Let us be of assistance so you will not be alone in a trying journey you will have

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