Facing colectomy and scared witless ! Any tips?

katerina1

Hey there. I'm hoping someone in this amazingly responsive e-world may just be able to draw alongside and help me. My world got turned on its head this week and I don't know where to turn.
I'm 43, fit and healthy, and other than chronic diarrhoea as a consequence of Nissen fundoplication surgery three years ago I can't say anything is wrong. Well, that was till I got a colonoscopy done .... On Tuesday I was told that I ought to get my colon removed in the next few months as they found multiple polyps in there , too many to risk removal through repeated colonoscopies.
Nothing's turned bad yet but they say it will given time.

So here I am. Waiting to see the surgeon in a few weeks. Waiting to find out what my surgical options for pouches are. And scared witless. My brain doesn't stop running. I know I can count myself lucky these were found before anything turned. There is evidence of low grade dysplasia. But I don't feel lucky right now.

Is there anyone out there who knows how lonely and scary this feels ? Has someone got any advice for me ? I'm in the uk and looking for support groups or someone who will just listen to me. Never felt so alone in my life. Or stressed. It freaked out.

Please help