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Baclofen Pump Issues


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Old 02-17-2016, 06:12 AM   #1
carlamg
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Location: Peabody, MA
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Baclofen Pump Issues

Hi - I'm not sure where to post this. I am trying to get information regarding people or caregivers that have severe traumatic brain injuries where there loved ones use an IBS Baclofen pump. I am very concerned regarding my son's pump as he has had (2) recent severe withdrawal episodes (been admitted to hospitals twice). The staff and pump surgeon state the pump is working but I feel as though it does not. When the pump is filled, it works very well for 1 week, then he begins with increased tone. The surgeon argues the pump is working. (Complete IR test was done). If anyone has insight into this please let me know. I am desperate to get as much info as possible.

Carla

 
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