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    Old 12-02-2003, 04:20 PM   #1
    californiasunflower
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    Plz share vision problems

    Hi! I notice many have been dealing with vision disorders.

    Would you please share your story with regards to any vision problems, symptoms, diagnosis, treatment, etc., and if you are still struggling with it or if it is resolved, and how resolved. If cause determined or not.

    Thanks!

     
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    Old 12-03-2003, 01:50 PM   #2
    CrazyCatLady
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    Re: Plz share vision problems

    Well, I've been having spots (colored and sparkly) in my vision for just over a month now. I've recently noticed that I've been losing some peripheral vision, too.

    I had an MRI on Monday and just saw the eye doctor and a retinal specialist today and so far, NOTHING. From what the MRI report said, what the radiologist could see of the MRI looked ok. The ultrasound on my eye was normal.

    I'm stumped and frustrated. I'm going to go back to my regular dr. and make some noise.

     
    Old 12-04-2003, 04:49 PM   #3
    californiasunflower
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    Re: Plz share vision problems

    Hi! Thanks for responding.

    When your eye was examined, were you told what was observed? Do you have any inflammation that would produce the colored/sparkly spots?

     
    Old 12-04-2003, 07:03 PM   #4
    CrazyCatLady
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    Re: Plz share vision problems

    Well, from what the eye dr. said, the MRI report said that there was no swelling or inflammation of the front of my optic nerves, but they couldn't see the back, but if the front wasn't inflamed, he would assume the back wouldn't be, either.

    It worries me still because he only looked at the report for maybe two seconds. And, like my friend who is a neuro nurse, said, "He's not a neurologist." and that I should follow up with this further.

    The ultrasound was totally clear. Even I can attest to that (I got to see some of the pictures, which looked ok to me).

    Anyway, I have an appt for Monday morning with my primary dr., so hopefully we'll get SOMEWHERE then.

     
    Old 12-08-2003, 10:59 AM   #5
    CrazyCatLady
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    Re: Plz share vision problems

    Ok, just a quick update on what's going on with me & my visual disturbances.

    They're still going strong, unfortunately. I've been trying my best to distract myself, but it's hard when the problem is right IN your face, literally.

    I went to my regular dr this morning. I actually saw the nurse practitioner. I'm kinda ****** off because I don't feel like much progress has been made. She also seemed a bit annoyed to see me back.

    The receptionist at the counter actually asked me how all of my appointments went last week (initial eye dr, MRI, neuro-ophthalmologist, retinal specialist & ultrasound) and she had said that if I didn't come in soon, she was going to call me.

    I assumed either she knew something, or she was just being polite. She was just being polite, which is kinda nice.

    Well, as soon as I told the nurse practitioner that I was STILL having these spots and now blind areas on the outer and inner part of my eye, she acted annoyed and said, "Well, you need to see the eye doctor." I told her I did and that I really got nowhere with it. I told her about the MRI, that the neuro-ophthalmologist only looked at the report for like 2 seconds, and she didn't seem concerned. She then said, "Well, if they didn't find anything wrong with your eye, then there's nothing I can see that would be wrong."

    She ordered a CBC and checked my thyroid. I'll know about the thyroid IF there's anything up on Wednesday. The only thing she saw in my blood right off the bat was in infection. I've also been having pain in my upper left abdomen, stronger at night (I have to take a Darvocet to get to sleep). The last time they took blood (two weeks before Thanksgiving) it showed an infection, too and my numbers were "all wrong". No referrals this time. I thought maybe she'd refer me to a neurologist. I see the retinal dr on the 23rd, but I can come in sooner if I want/need to.

    I called the place where I had the MRI and I'm picking up the films tomorrow afternoon. It's pretty easy to obtain them. You just have to bring photo ID and sign a release form. So, I'll be able to see those with my own eyes tomorrow, and at least I'll have copies of the films in my posession if I do go to any other doctors.

    Three vials of blood later and that's where I stand. At least I know I'll get to actually see the MRI tomorrow, even though I won't have anyone to go over it with me. I do know a thing or two about radiology, so I'll know if there's anything obvious.

    I'll let you know what happens.

    -I

     
    Old 12-08-2003, 11:03 AM   #6
    CrazyCatLady
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    Re: Plz share vision problems

    Alright, maybe not QUICK...

    Sorry!

     
    Old 12-09-2003, 04:25 PM   #7
    californiasunflower
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    Re: Plz share vision problems

    HI Crazycatlady!

    What a disappointment the visit with the NP was. Lousy bedside manner! I think that kind of professional gets burned out and is thinking of themselves only, and not thinking of the long term affects their behavior has toward the patient. Sorry you had to deal with that. That's a good receptionist to treat patients well! It is too bad when patients present with symptoms that they are discounted if diagnosis is unknown or tests lead to negative findings.

    When you mentioned infection, I recalled one of the reasons my neuro did a lumbar puncture was to rule out if I had an infection. That can cause visual disturbances. Glad blood tests and MRI done. Will be interesting to get your results.

    Do you have pressure headaches? memory problems? Wondering if you have intercranial hypertension. That can cause small specks, vision distortion, dimming of vision, and even a short period of loss of vision. Can cause fatigue, balance problems, ringing in ears, and muscle weakness. Check out the websites with regards to it and see if that fits your situation. It can go unnoticed too!

    Looking forward to your next post!

     
    Old 12-09-2003, 08:43 PM   #8
    CrazyCatLady
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    Re: Plz share vision problems

    Hi!

    Well, I got my MRI films today. I looked at them and the report and everything looks ok. The report said that it was normal. I didn't see any obvious sports equipment in my brain (baseballs, tennis balls, any other kinds of playing balls, etc.).

    Do I have memory loss? I can't remember.

    Fatigue? What? I dozed off.

    I have asked a few people, both medical professionals and not, exactly what things could cause glittery, colored spots (mainly on exertion) and what seems to be sudden dark areas in the corners of my vision. I didn't get many answers.

    I mentioned the thyroid blood tests. Don't know about those yet. I should tomorrow IF anything comes up and IF the NP remembers to call me. *sigh*

    My previous blood tests from both October (was tested for...something. OH! To see if I had arthritis.) and November as well as this past one showed evidence of "infection". I don't know exact numbers. I can't imagine having an infection for that long. Hmm. Who knows.

    I have heard of intracranial hypertension. I just searched quickly about it. I read a few pages, just some of the first that come up on Google, and I would not be surprised if I have that. I did see three eye drs, but no papilledema. BUT one site said that you don't have to have that and that it's not necessarily a telltale sign. It sounds like IH can be potentially serious, too.

    I read on one of the sites that it can be caused by leukemia. I wonder if that's why your neuro checked for infection? Maybe, maybe not. My mom is getting worried by my, what she thinks is, prolonged "infection" according to CBC. She asked me pretty directly if I could have leukemia. I told her I didn't know, but that if there was concern, someone would have told me something. I wouldn't trust the NP now, though!

    Do you have IH and, if so, was it diagnosed with a lumbar puncture? I haven't had one of those yet. I can't imagine I'd look forward to it, but if it can diagnose IH then I may not have a choice!

    Basically, I have vision disturbances, headaches, joint aches (severe, been to a rheumatologist but he couldn't find much wrong except hypermobility of joints and ligamentous laxity), and seemingly "off" CBC results. It seems that noboby can figure me out. I feel even worse going to the dr repeatedly for this because I'm young, just 19. I feel like I shouldn't be complaining about stuff. My mom saw the area on my arm where they took blood on Monday, and joked that they either did such a bad job, or used such a big needle, because they didn't want me to come back! My arm is STILL sore.

    Anyway, thanks for the info on IH. Sounds like something I should check out. For now, I'm just trying to ignore the spots as much as possible, but still getting it figured out. I'll let you know if they see anything up with my thyroid. I do have the feeling I'll have to make some real noise soon, though. That NP is stubborn!

     
    Old 12-15-2003, 10:52 PM   #9
    californiasunflower
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    Re: Plz share vision problems

    Hi there! That's great no sports equipment in the brain, etc., and MRI shows brain is normal! Your sense of humor has not waned! And I enjoyed your comments! Gave me lots of laughs!

    The fact that they found an infection is interesting. I wish they would give you some indication of what they are thinking! I too hope it isn't IH or leukemia.

    My neuro wanted to test my spinal fluid for many reasons. First is to rule out any infection that could be the cause. She looked at my red blood cells and white blood cells, etc. If there was an infection, she indicated it would be treated aggressively so the eye problem would get better too. My fluid was good--no infection or any signs of disease, i.e., Lyme, MS, or malignancy.

    I don't know if the spinal fluid pressure test was done. But if Intracranial Hypertension aka PTC is suspected, LP is done to test spinal fluid pressure.
    Treatment is LP to reduce pressure and medication. I wasn't diagnosed with it and cause for my eye problem is still unknown.

    The actual LP procedure was not as bad as I had anticipated. I don't like needles but I did really well. The neuro was gentle. It is afterwards that is important not to sit up or get up for any reason to avoid the awfully, painful and debilitating headache.

    When I had an IV treatment, the RN bruised up one of my arms severely. The next day there was a huge black and blue bruise that lasted for weeks. I informed her before she started that she'd have an easier time using the other arm, but she pursued it anyway, finding out I was right! Gosh! I hope next time I'll withdraw my arm and not be so compliant. I was so docile from other treatment and feeling really awful. I've noticed when I give blood for tests that some technicians are better than others. I know what you mean about the sore, sore arm from blood withdraw.

    I regret that you are so young and experiencing these difficulties. I can just feel how worried sick your mom is about you, and then to see you are brusied up from the testing!

    It is such an uncomfortable process to relay the complaints, receive the testing, and still not have any answers. Your complaints are legitimate and hopefully soon you'll see a physician who is going to recognize what is causing these ailments. It may be autoimmune which can take some time to appear. Keep track of all your symptoms. Also, I hope when you see the doctor that you let them know you have been made to feel unwanted. There's a story of a woman who has arachnoiditis who had much treatment and seen many physicians before she was diagnosed with that ailment. The neuro that diagnosed her told her on the first visit that he could see she had been through a lot and that he was going to help her and be her doctor. This does happen so don't give up. You have such a neat personality--and I wish your NP could see that and past her own issues!

    Keep in touch! I'll be watching for your posts! Hope you get news soon to get well and relieve you and mom's worries!

     
    Old 12-17-2003, 03:44 PM   #10
    californiasunflower
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    Re: Plz share vision problems

    Hey Crazycatlady! Just writing to share something funny that was read to me on the way home from the doc's office. Driver saw a bumper sticker that stated, "Support Search and Rescue. Get Lost!" It was on the back of a very, fine, high rised pick-up truck that definitely looked like it was for off road!

     
    Old 12-17-2003, 04:14 PM   #11
    head1
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    Re: Plz share vision problems

    i have benign intracranial hypertension (aka pseudotumor cerebri) and that is wat causes my papilledema,most of the pressure is being kept off my optic nerves now but as it was on them for so long,my sight is permanently damaged now.

     
    Old 12-17-2003, 04:27 PM   #12
    californiasunflower
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    Re: Plz share vision problems

    Quote:
    Originally Posted by head1
    i have benign intracranial hypertension (aka pseudotumor cerebri) and that is wat causes my papilledema,most of the pressure is being kept off my optic nerves now but as it was on them for so long,my sight is permanently damaged now.
    Hi! So sorry that your sight has been permanently affected. How long have you been dealing with BIH? How is the pressure being kept off the optic nerves? Tell us your story.

     
    Old 12-18-2003, 12:08 AM   #13
    CrazyCatLady
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    Re: Plz share vision problems

    That's a funny bumper sticker, californiasunflower! I've been seeing a lot of funny bumper stickers and vanity plates lately. Unfortunately, I can't remember anything so...

    So sorry, head1, about your eyesight. It must have taken long to diagnose you if you have permanent visual loss now.

    This stuff with the dr is a bunch of flarking snit. I am so fed up! My mom called in Thursday morning because I was just going to let it be. She told me that the lady said they'd pull my chart and call me back. So now we're looking at Monday afternoon and no call. So I call. I was told that the dr was out on Friday and that they were slammed with the flu. They never told my mom that the dr would be out on Friday, and the flu? Give me a break. Every living organism has the flu right now. I don't intend to sound mean, but there's no other way to say it. The lady told me that they'd call me either later today (we're still on Monday, here) or tomorrow at the latest (Tuesday).

    If I'm not mistaken, and I'm pretty sure I haven't lost THAT much mental capacity yet, when I awaken this coming morn, it will be the glorious day of Thursday, a week from when we originally called my fabulous dr.

    As far as I know, I expect to hear the sounds of my mother making the "Hell Call" and verbal grenades being fired in the general direction of my dr's office.

    Does the fact that the lady at the desk at the dr's seems to get a new hemorrhoid every time either one of us calls mean anything? I didn't think so, either. Probably just coincidence!

    You're right, though. I really do have to persist. I liked what you said about the lady finally finding that GOOD neuro. I hope that someone wakes up and says, "I know what might be going on!" and take the steps to find out, instead of just putting me off like they're doing now.

    *sigh* Well, I have to go because I have to peel my happy butt out of under the covers and away from the warm cat to finish some work at some point within the next 12 hours.

    I'll talk to you all later!

     
    Old 12-18-2003, 01:58 PM   #14
    CrazyCatLady
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    Re: Plz share vision problems

    FINALLY! I have an appointment with a neurologist for January 2nd! If I want to go sooner, I can call in the morning and see if they have any cancellations and, if so, I could go in sooner.

    Progress is sweet.

     
    Old 12-18-2003, 05:22 PM   #15
    californiasunflower
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    Re: Plz share vision problems

    YAHOO! -- For the neuro appt! And it is about time! Glad you and your mom don't have to drop the Napom! I think I'm going to get better just from reading your posts! Humor is such a good immune booster! and yours are pretty funny!

    That's good you've got THE appt. for very shortly with the possibility of sooner from another's cancellation! Keep us posted! I'm looking forward to your news!

    We too love cats! They can sure put on a show for us! Wouldn't live without them!

    Talk to you later!

     
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