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    Old 12-09-2003, 02:53 PM   #1
    munchkin&giant's Avatar
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    Question intracranial hypertension

    erm ok i just been told i have intracranial hypertension. i have to have a lumbar puncture, and then medication. all the docs told me was that it means the spinal fluid was causing pressure in my brain.

    can anyone give me anymore details? iam absolutely terrified.

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    Old 12-09-2003, 04:09 PM   #2
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    Re: intracranial hypertension

    Originally Posted by munchkin&giant
    erm ok i just been told i have intracranial hypertension. i have to have a lumbar puncture, and then medication. all the docs told me was that it means the spinal fluid was causing pressure in my brain.

    can anyone give me anymore details? iam absolutely terrified.

    Hi there! Welcome to the Board! Sorry you are experiencing this condition.

    Are you being prescribed acetazolamide or Diamox?

    The medication is prescribed to help reduce the swelling. It is a diuretic so is helpful if weight loss is recommended by your physician. Be sure to inform them of any side affects. There may be a metal taste and food will taste different. That's normal with that drug. It causes dry mouth. Biotene products (toothpaste, mouthwash, and gum) at Wal-mart or your local pharmacy help with dry mouth. Dry mouth can cause cavities and other problems.

    The lumbar punctures are to help reduce the CSF fluid. What is happening is your spinal fluid pressure surrounding your brain is too high and causing headaches and other symptoms. Have you been experiencing visual disturbances, any dizziness, nausea, ringing in ears? Have you had any trauma, any adrenal gland problems, been on some medication? Some meds. can cause it to occur. There is a host of causes and if you can discern the cause and treat it aggressively, that will help to alleviate the PTC. If cause unknown, then it is referred to as Idiopathic.

    The prognosis is likely good for recovery. Some go into remission and some have relapses. Individuals with PTC may appear okay but this can be a disabling condition for some. A series of lumbar punctures, the drug is the treatment. There is an optic sheath fenestration procedure if that is necessary. Blindness can occur so it is very serious to get proper treatment right away. Sounds like you are getting that and that you physicians are on the ball getting you diagnosed. Neuro-ophthalmologist is usually the specialist to treat this.

    Will be thinking about you! Keep in touch. Hope you get more responses! There are others on the board that are experiencing this too. See BLYNN's posts.

    Last edited by californiasunflower; 12-09-2003 at 04:12 PM.

    Old 12-17-2003, 10:21 AM   #3
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    Re: intracranial hypertension

    Hello friend, I was diagnosed with ptc about a year and half ago. I was put on diamox(the med of choice) and it helped at first control vision problems and the headaches, but after a year on it, my pressure was up, and all the symptoms of ptc, so the neurosurgeon put in a lumbar shunt last Dec. It really helped and for 5, great months, had no symptoms , but here I am now, once again, experiancing daily, severe headaches. Had a shunt series done and my shunt looks ok, so have been exploring other options. There is [removed] Good luck to you and will be praying for good health in the new year. God Bless,Susan

    Last edited by moderator2; 12-18-2003 at 08:06 PM. Reason: Not allowed to post other groups. Please carefully read and follow the board guidelines and posting policy as you agreed to do at registration for free Healthboards membership. Thank you.

    Old 12-17-2003, 03:55 PM   #4
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    Re: intracranial hypertension

    hi munchinkin,i have bih too and have a thread under pseudotumor cerebri (another of the many names for it)on brain section,u may find this helpfull.i took a year for diagnosis and am still suffering,but as mentioned above,it can disapear on its own,unfortunatly mine is primary and seems to be stayin put.The lp is therapeautic as well,just try to relax is all that i can say.At least your neurp opthalmologists seems on the ball,there are many forums on the net that sufferers all rely on for support,try one they help as u will feel so alone with this illness.good luck.

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