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-   -   Desperate for some reassurance beyond the one coming from my doctors! (https://www.healthboards.com/boards/brain-nervous-system-disorders/23600-desperate-some-reassurance-beyond-one-coming-my-doctors.html)

syracusa 02-06-2003 03:10 PM

Desperate for some reassurance beyond the one coming from my doctors!
 
Hellow everyone,

I posted about my problem in the Allergy section but i will ask permission to mention it again here.

Briefly, tomrrow I will get an MRI scan, which according to my neurologist, is mainly for my peace of mind.

A few weeks ago I came down with what appeared to be a head cold/ viral infection. It included most of the "common cold" symptoms, minus fever, but for the first time, it also came with extreme dizziness, light headedness, loss of balance and intracranial pressure.

After going to my family doctor (who put me on antibiotics), I also went to the neurologist because the dizziness and pressure are literally NOT going away.

After doing various coordination tests with me, looking itno my eyes with that light etc - the neuro also said that my symptoms are probably due to the viral infection.
However, for my peace of mind he ordered an MRI, which he says he expects to be 100% normal.

The dizziness, imbalanace and intracranial pressure drive me crazy - and they seem to be here to stay.

I know that at this point it is all psychological, and that I should stay away from sites talking about brain tumor symptoms - because I look for them in my own symptoms, and DO find many that sound just like that.
(You can only imaging what happens in my mind as a result of that).

I almost had a nervous breakdown yesterday because I imagined all kinds of horrific scenarios as a result of a positive MRI. It will be very hard to go through these days, until I get the results.

What put my fears to rest just a little bit today is this info I found on "vestibular neuritis".
My generalist and neuro didn't use this particular diagnostic (they just said "due to viral infection"), but it looks like there is an actual medical name for this.

Vestibular neuritis = dizziness caused by a viral infection of the vestibular nerve (in the ear). May take 1-3 months to go away.

At this point, ANY disease sounds absolutely wonderful and very much welcome, compared to even the tiny-bitzy possibility of a brain tumor.
I know I shouldn't be doing this to myself but, please, please, tell me - is there any reason not to expect an 100% normal MRI on Tuesday? (I will take it tomorrow and get the results on Tuesday).

1. I DO have dizziness, loss of balance, weakness, intracranial pressure especially in the back of my head, and foggy eyes (though I CAN read even very small letters).
And yes, these are all mentioned on all the "brain tumor symptoms" sites I have looked at.

I also have/had:

fluid in my middle ear
blood from my nose (when i blow it)
did not lose my hearing

--> symptoms which are mentioned in the "vestibular neuritis" symptoms.

2. What I DO NOT have (and which is usually included in the symptoms of brain tumors):

Seizures - NO.
Vomiting, nausea - NO.
Cross-eyed vision, double-vision - NO.
Asymetrical eyes / one drooping lower than the other - NO.
Complete loss of balance - NO. (I do feel imbalance, but when the neurologist made me walk, etc - I passed the test succesfully).
Sensitivity to light - NO.
Sensitivity to sound - NO.

3. This DID come about with a viral infection - which is basically the straw I am hanging on and my number one HOPE.

Please, please, please - I beg you - if you are a doctor, tell me that there is NO reason under the sun to fear a brain tumor. I am not seeking professional advice on this forum, because I already visited my doctors and I am scheduled for the MRI tomorrow - I just want a little more reassurance before I take the MRI (for my mental health).
I am extremely bad psychologically, when it comes to even the tiniest possibility of a life-threatening situation.

I also have a terrible fear of flying - and I know I've got "death denial" issues, generally speaking - which need to be solved with a psychologist.

But for this particular situation - please, I need some further reassurance!

Thank you so, so much!


dchc OI 02-20-2003 11:34 PM

Surely the test should confirm you are OK. Hope you feel better.

atlas 02-22-2003 05:47 PM

Hello! I just read your message about your symptoms (dizziness, numbness in the back of your head, etc.) and I was wondering if you could tell me if (I hope, for your sake as well as mine) if the MRI was negative for a tumor. I'm experiencing the exact same symptoms, all of which also followed a bout with the flu or severe cold. And I know I should also stay away from the Internet, as every site about brain tumors scares me more than the last.
Anyway, if you could pass along what happened with your test, I'd appreciate it. Thanks!

tanmar 03-06-2003 01:03 PM

I have been feeling the same exact symptoms for the past month...and like yourself...have been reading to much into Web Md. I have been feeling dizzy, have been having headaches along with occasional numbness and tingly sensations in my head and my eyes feel hot and heavy. I went to an ENT doctor and he ordered some blood tests which came back normal...i might have to see a neurologist and was wondering what they would do for these symptoms. Can anyone offer any insight. I am worried :O(

Cldwv 04-02-2003 12:56 PM

Wow! I had no idea there were so many of us out there. I, like syracusa, have serious anxiety/fear issues. Last night I was up until 4:30 in the morning on the Internet at sites with every sort of disease you can imagine. I was convinced that 4 or 5 of them were definate possibilities. I've also started to have panic attacks because of my fear of the unknown. It's comforting to be here with you all. Thanks!

head1 04-15-2003 08:22 AM

hi,i had a mri last year as my optic nerves were swollen and went thru the same brain tumor and multiple slerocis scenario,i had to wait 2 weeks for the results (and they were the longest 2 weeks ever)thankfully i was clear but left another un diagnosis,after many tests and a year later i have now been diagnosed with benign intracranail hypertension (also know as pseudotumor cerebri and idiopathic intracranal hypertension)hopefeull ya scan will come back negative but still keep pushing for tests as the docs will get a diagnosis in the end.good luck.

mark g 04-19-2003 09:15 AM

With an inflammatory process, such as a viral, bacterial infection, or allergic reaction - or an allergic reaction to an infection - it is not uncommon for the muscular trigger points on the scalp by the cranial sutures to get inflammed and the suboccipital muscles (base of skull), causing dizziness, etc. (This is different than 'intracranial pressure' - internal fluid pressure after trauma). If you feel it, it is likely external muscular. (See, TMJ website for analagous pain - temporalis muscles on scalp). Once, when I was a teenager, I was extremely dizzy after a flu - my allergist sent me to a neurologist as a precautionary measure, but told me it was likely that a very small capillary may have ruptured near my inner or middle ear. It healed - I was dizzy for about a month - and, although I still have an allergy sensitive immune system (and have chronic sinusitis and TMJ problems, which are painful and cause me to become dizzy and fatigued, I have not had this recurr after this episode. (I flew on a jet when I had a cold, and when I blew my nose to equalize pressure, that most likely caused the incident.) Worry is useful - it alerts one to danger, but try not to worry overmuch. I suspect that the 'intercranial' pressure is most likely 'extracranial' pressure (headache caused by muscular spasm caused by inflammation from allergy/infection/etc., which is painful and disorientating, but is not caused by any brain dysfunction. As a matter of fact, I am going to take a hot shower now. (I just had root canals and perio surgeries and the resultant inflammatory headache is fierce.) The odds are that the MRI will turn out negative (no brain abnormality), but you will still have a headache and be dizzy, which is a quality-of-life issue, until such abates. (See, also, migraines - there are anti-inflammatories that might work, but overuse of over-the-counter and (some?) prescription medications can aggravate the problem (as reported in NY Times Magazine around Jan. 2003.) Hope you feel better, sooner rather than later! (My chiropractor helps my headaches.) [No one can rule out anything over a website, but your doctor's inference that you don't have a tumor is likely correct.]

Coconutz 05-13-2003 04:53 AM

Hi-I am new here and came across Syracusa's post this morning. There is a condition called Idiopathic Intracranial Hypertension or Benign Intracranial Hypertension. Another name is Pseuodotumor Cerebri (meaning false tumor) It is basically all the signs of a tumor w/o one. Pressure, headaces, light headedness, etc. Do an internet search and you will find a lot of information about it. Usually strikes woman ages 19-45, who are either overweight or have gained weight,
and usually w/ mentrual problems. This does not appear on any MRI's, CT's, EEG, etc. The only way
to tell for sure is an eye doctors check of pressure
on your optic nerve or a lumbar puncture to check the
cereobrospinal fluid.
Might not be what you have but it more knowledge, which is a good thing.

scotland79 05-23-2003 02:36 PM

so glad to hear there is someone out there like me!!! i have been having probs for ages, extremely off balance, numbness on awakening, tiredness, feeling wierd, and just all sorts of symptoms. i have been reassured by over 3 doctors that my MRI will be clear as it does not seem to be coming off my brain as everything is working. i too had to walk and walked fine although i was still dizzy but the doc couldnt see it. Had my MRI today and so so scared of the results. i too look up brain tumours but i dont fit in as i dont get the body weaknesses they describe or any vision or hearing problems. just so sick of it. want to be normal again.had this for 5 months. good luck


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