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venous angioma

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Old 03-15-2005, 12:40 PM   #1
Join Date: Oct 2003
Location: Erie, PA, USA
Posts: 65
jmsimon HB User
venous angioma

I had an MRI and MRA done a few months ago and they found a developmental venous angioma. My dr. will not tell me what that means and says probably isn't causing my symptoms. I get severe headaches and dizziness and black outs frequently. I read that it is an abnormal vein in the brain that doesn't drain the blood properly back to the heart so it pools up in the brain for awhile, possibly causing an aneuryism. That doesn't sound too safe to me....please tell me if anyone has heard of this or has any advice!! Thank you!!

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Old 04-26-2008, 02:10 PM   #2
Join Date: Apr 2008
Location: Port Saint Lucie, Fl, USA
Posts: 2
Patrice2937 HB User
Re: venous angioma

I had the same symtoms was told it was a Venous Angioma

Old 04-28-2008, 08:02 AM   #3
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Re: venous angioma

the higher risk for bleed is actually the arterial form of this called an AVM. what you have is actually venous fed so aneurysm is highly unlikely. i had a cavernous hemangioma inside of my actual spinal cord. the bigger risk to me being in there was little ooze bleeds. these do not bleed like arterial malformations. have you ever seen mostly on a child,whats called a "strawberry' birthmark? this is exactly what you have in your brain(but most likely much much smaller). but like i said,these are veinous fed and at much lower risk for anything major occuring. the brain actually has alot more 'give' and space for the tiny amount of blood these will actually expel, and that is only if they actually bleed at some point. some never do and should be best left alone actually.

mine had actually bled twice and was closing off the remaining cordspace or believe me,i wouldn;t have ever had it touched,not inside of my cord. the brain can absorb the smaller type bleeds from angiomas. most neurosurgeons would actually recommend doing nothing unless this somehow was also a fistula which is kind of both arterial and veinous fed. aneurysm actually occurs only within the arteries, i had one of those too(yea,i kind of hit the 'motherload there) which luckily for me was coilable so i didn;t require deep brain surgery.

my best advice to you would be to research the heck out of these(look up angiomas, cavernous hemangiomas,cerebral angioma) so you know what you are actually dealing with and find a good neurosurgeon who actually HAS EXPERIENCE with these. i saw three seperate NSs with three totally differing opinions about mine and whether it should come out. i ended up going to the U or MN just to really get the most experienced type of opinion. the university teaching hospitals are just the places people tend to go when they are not getting anywhere with other 'specialists" they just see these much more frequently and therefore have the most experience and knowledge of their charachteristics. this is where i would go if i were you two,really. this is where i really got the best right on info about what i was actually dealing with. experience is the key in your NS,trust me.

honestly,in most cases the treatment is simple monitoring. as long as this IS only a veinous fed lesion,the pressure does stay much much lower as well as risks of harmful bleeds,even in the brain. some just sit there and never 'do" anything or hurt anything. but like i said,any real 'bleeds" are little oozes that the brain does somewhat absorb. this is not like having something within an artery at all. just get the most experienced NS to just do monitoring once in a while. just so you know,an actual angioma will not actually show up on an MRA since it is not arterially fed. mine did not either,thats how they determined that what i actually had inside my cord was not the dreaded AVM,but only the venous fed angioma.

in most cases,these really just 'sound' more scarey than they really are,it all depends upon location. believe me,i would have much rather have had this glob inside my brain than my spinal cord. theres just no room in the cord for bleeds of any kind but there IS within the brain in most cases.i wish you both luck with these.please keep me posted as to how things are going. marcia
3-22-01,herniated C-6-7
11-20-01,placement of hardware for failed fusion
9-22-03,removal of cavernous hemangioma that was inside spinal cord. Neuro damage to L hand L leg and R leg.

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