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  • Permanent upper peripheral vision loss, severe headaches, etc? HELP!!

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    Old 10-18-2007, 04:03 PM   #1
    ltking68
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    Permanent upper peripheral vision loss, severe headaches, etc? HELP!!

    I want to know if anyone out there has had any of these symptoms or have heard of them. I had a severe sudden on-set headache, total loss of vision that sent me to the ER. After a CT (clear) and spinal tap (clear) and morphine, they sent me home saying that I had had an a-typical migraine and to see my internist the next day. My internist put me on topomax, imitrex and zebutal. I went through the imitrex (9 tablets) in 2 1/2 wks! and I am on day 22 of the headache!! I went to a neurologist who spent 5 minutes looking at me and said I needed an MRI. I might mention that when the pain meds kick in and take the edge off the headache I still have the worse pressure ever. Whenever I bend over, have sex or strain to go to the bathroom, it is super pressure. I have not had a period since July and not until April before that. I am slightly lactating from my left breast, but not enough to even call 'leaking.' My vision loss has not fully restored. My optomitrist said that I have upper right peripheral vision loss in both eyes which my neurologist said was PERMANENT?!?!?! Has anyone ever heard of permanent vision loss from a migraine?

    Thanks in advance!!

     
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    Old 10-18-2007, 07:47 PM   #2
    dh4512
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    Re: Permanent upper peripheral vision loss, severe headaches, etc? HELP!!

    I think your neurologist is right, get an MRI. Some of your symptoms seem to be those of a pituitary tumor and sometimes they don't show up on a CT scan. You might also see an endocrinologist and get ALL of your hormones tested if you haven't already. The hormone problems board has some information about pituitary tumors so you might post over there. Please don't panic, they are mostly benign. I had one removed in June and I am doing fine. Good Luck.
    DH

     
    Old 10-19-2007, 11:41 AM   #3
    ltking68
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    Re: Permanent upper peripheral vision loss, severe headaches, etc? HELP!!

    Thank you DH for you response!! I had an MRI in 2004 which checked the pituitary for a tumor but it was clear. Do you know if it makes a difference if they do a MRI with or without contrast? I don't remember them giving me an injection of dye for the contrast. Can a pituitary tumor grow that quickly to cause these types of problems in just 3 years? And have you ever heard of permanent vision loss due to migraines?!

    I have read post after post of those who were having trouble getting their doctors to listen to them....I now know exactly how that feels and my heart goes out to them!!!

    Any response from anyone is welcome!!

    Thanks in advance!

     
    Old 10-19-2007, 01:40 PM   #4
    Bengie
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    Re: Permanent upper peripheral vision loss, severe headaches, etc? HELP!!

    yes it can. within two years I had lost 50% of my eyesight to a pituatry tumor. Most of it came back but not all.

     
    Old 10-19-2007, 03:03 PM   #5
    ltking68
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    Re: Permanent upper peripheral vision loss, severe headaches, etc? HELP!!

    Bengie,

    Can you share with me you story, signs, symptoms etc.? I had a clear MRI in 2004 and the doctors are telling me that it is probably just a migraine with a-typical symptoms. Have you ever heard of a migraine causing permanent vision loss?

    Thanks!!

     
    Old 10-22-2007, 05:30 AM   #6
    Bearygood
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    Re: Permanent upper peripheral vision loss, severe headaches, etc? HELP!!

    You should absolutely try to have the MRI with and w/o contrast!

    Re: your eyes, it would probably be a good idea to get a referral to see a neuro-ophthalmologist to see what's going on with the nerve. A regular neuro or ophthalmologist can't take the place of this type of specialist!

     
    Old 11-04-2007, 05:28 PM   #7
    ltking68
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    Re: Permanent upper peripheral vision loss, severe headaches, etc? HELP!!

    Bearygood - and update for all who have been so good to reply to me during this ordeal......

    I had my MRI (with/without contrast) and the radioligist report said everything was clear. This was an open-type MRI and not a closed. I hand delivered a copy of the images to my neorologist and opthomologist myself to have both of them to have a look. I figure 3 sets of eyes looking at these films would be better then 1 set that looks at them day in and day out. Opthomolgist did a thorough exam and says that it is definately not an eye problem, but a brain problem. My vision field test shows a compression of my upper peripheral field in both eyes. Still don't know if this is permanent or not.

    I have blood test to be done this week on the 7th and reviewed on the 12th. I am going to double check to see if they are going to check hormone levels. I am having a feeling that the pituitary is doing something to cause this problem.

    Hope to have some more answer soon.

     
    Old 11-04-2007, 06:38 PM   #8
    Bearygood
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    Re: Permanent upper peripheral vision loss, severe headaches, etc? HELP!!

    ltking68, as I posted in the other thread, please try to go see a neuro-ophthalmologist. They deal with vision AND the brain.

    Good luck and please keep us posted!

     
    Old 11-07-2007, 02:03 PM   #9
    ltking68
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    UPDATE Permanent upper peripheral vision loss, severe headaches, etc? HELP!!

    Update 11/7

    Had blood drawn today and review test results on 11/12

    Opthamologist does not think that a neuro-opthamologist will be of any assistance unless my vision is getting any worse. So I go back to have another field of vision test on 11/28 to see if there have been anymore changes.

    Neorologist called yesterday and said that the MRI was clear and that the vision problems were not neurological in occurrence....hmmmm....not sure if that is good news or bad news as I still do not have an aswer for my loss of sight and daily headaches (going on my 6th week of daily headache!). Scheduled to go back to see him on 11/12th to find out the next step.

    My 11 year old son and 6 year old daughter were so sweet last night to pamper me to a foot massage to 'help mommy feel better!' Great Kids!!!!
    God bless them!!!

     
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    Old 12-11-2007, 08:16 PM   #10
    JJGreer
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    Cool Re: Permanent upper peripheral vision loss, severe headaches, etc? HELP!!

    Find you a good neurologist and ask for a CT scan. Sounds like you may have a tumor on the brain. If so make sure you find a surgeon with good qualifications you'll feel safe with to do the surgery. It's going to be a long ride to recovery if it's so. Good luck

     
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