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Possible Arnold Chiari Malformation1/Syringomyelia

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Old 04-15-2008, 10:53 AM   #1
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Possible Arnold Chiari Malformation1/Syringomyelia

There are minimal nonspecific scattered hyperintense foci within the white matter of the bilateral corona radiata. Findings are nonspecific and could represent small areas of gliosis. Other considerations include hyperintensities which can be associated with chronic migraine headaches. A demyelinating process is less likely but not excluded. Evidence of abnormal enhancement. Cerebellar tonsillar ectopia is demonstrated with minimal cerebral spinal fluid posterior to the tonsils. No evidence of altered tonsillar configuration. Flow-void is present involving the internal carotid, vertebral, and basilar arteries.

Impression: Minimal scattered nonspecific hyperintense foci on Flair images involving the white matter with above discussed differential diagnosis.

cerebellar tonsillar ectopia

My sister is a pharmacist on a military base and talked to some of the doctors about my MRI report and they said cerebeller tonsillar ectopia is another meaning for Arnold Chiari Malformation 1.

My symptoms are as follows: stiff neck and shoulders worse in the morning, sometimes my neck feels so weak I can't hold up my head, swollen lymph nodes neck and right arm pit..sore infected throat with pus and difficulty swallowing (diagnosed with strep/tonsillitis/pharyningitis within the same month) Sore red dry right eye only, blurred vision right eye only, light sensitive right eye only, pupil dilating for days or weeks right eye only, ringing in right ear only, extreme pressure headache right side only, seeing flashing lights when sleeping, dizzy, vertigo, shortness of breath, center of chest and back pain , right side shoulder and arm and elbow pain numbness and weakness and tingling in hand and fingers..muscle twitching and cramping in my face, neck, head, right arm just started getting muscle spasms last week in right thigh above knee. I can't think or concentrate or remember from one minute to the next. A light vibration or tremor through my arms, legs, chest, ankles, wrist. I have difficulty driving because I get dizzy, and same thing when watching TV, I have been told I am slurring my words which I don't even realize. I keep feeling this pulsing in and around my right eye and I can see it in bright light. I have an appointment with a neurologist on April 30th and I have been waiting since March 20th. I have been to my regular doctor numerous times since the 20th for my stiff neck, difficulty swallowing and sore throats and he still hasn't told me anything about my MRI results..he gives me far I have been on zpack no help, amoxicillan, no help, now because I went to emergency on Friday because I had severe head and neck pain and stiffness and extreme difficulty in swallowing , chest and back pain and really bad chills..I showed the attending phyiscian my MRI results which I had done there at that hospital..and he said how long has this been going on and I said months he said what are you taking for pain I said extra strength tylenol so he gave me Darvocet 100, 2 to 4 times a day and Augmentin 875mg twice a day for tonsillitis/pharngitis..well that was Friday and today is Tues. and my throat is a little better but still hurts and so does my back and chest and I can't take the Darvocet because it made me feel like I had an elephant on my chest. I have been progressively getting worse since November 2007.

Last edited by kmesoo1; 04-16-2008 at 11:21 AM.

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Old 04-15-2008, 07:54 PM   #2
Join Date: Sep 2007
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STEPH3142 HB User
Re: Possible Arnold Chiari Malformation1/Syringomyelia

Hello. My Mom Was Diagnosed With Chiari 1 About 1 Year Ago. She Had Sever Headaches, Nauesa, Vomitng Every Morning When She Woke Up, Not Able To Sleep (not Even With Sleep Meds Prescribed By The Dr) No Use Of Her Arm, Ringing In Her Left Ear, And Hardly Any Use Of Her Arms Or Legs. She Can Barely Walk With Out Limping. She Underwent Surgery About A Year Ago And Has Not Had Any Relief From The Surgery. She Saw A Neurosergeoun That Did Back Surgery On Ther About 5 Years Ago. I Am Really Concerned About Her. Ther Should Be More Neurologist That Know About Chiar 1. I Reccommend Athat You See Someone That Specialized In That Field. I Am Still Trying To Find Out What Is Wrong With Her And Possibly Going To New York To See A Specialist.

Let Me Know If I Can Help


Old 04-16-2008, 11:31 AM   #3
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kmesoo1 HB User
Re: Possible Arnold Chiari Malformation1/Syringomyelia

I am so sorry to hear about your mom..It's so hard to get doctors to listen. Hopefully my neurologist sends me to a neurosurgeon..I found one in my area that specializes in Chiari. I hope you find help for your mom.. I'm sure someone on this site will give you some ideas.

Old 04-18-2008, 07:10 PM   #4
Join Date: Apr 2008
Location: Winder, GA, USA
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jengreen30 HB User
Re: Possible Arnold Chiari Malformation1/Syringomyelia

Originally Posted by kmesoo1 View Post
I am so sorry to hear about your mom..It's so hard to get doctors to listen. Hopefully my neurologist sends me to a neurosurgeon..I found one in my area that specializes in Chiari. I hope you find help for your mom.. I'm sure someone on this site will give you some ideas.
Hey, have you heard of Syringomyelia? Do you have Chiari Malformation? If so, you may want to get checked for Syringomyelia. A lot of Dr. have not heard of it and it will cause problems with your hands, legs, pain when coughing.

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