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    Old 07-29-2008, 08:50 PM   #1
    shadazel5980
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    are meningiomas hereditary

    my father had abenign meningioma tumor ... my grandmother had a benign tumor as well. i hear its not hereditary is this true

     
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    Old 07-30-2008, 06:54 AM   #2
    feelbad
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    Re: are meningiomas hereditary

    i just need to ask this only becasue some forms of cerebral malformations are heriditary with certain ethnic groups, would you happen to be of hispanic descent? there is a certain connection they have come to with regards to people who were born from a certain line of what was one hispanic gentleman that goes wayyy back in the line and is still creating problems for the people who are being born now. but this was all supposedly started from one man way long ago.
    if you are not of spanish decent,well there can be certain predisposing factors that could make the formations of certain types of vascualar malformations much more "likely" in certain families who share these predisposed factors. in my particular case,i have a kidney disease that also made me just born with naturally weaker vessel walls so me and my family who also have PKD are also at much higher risk just based upon that one thing being there,you know what i am trying to say? i was also born(unknown to me at all til in 2001 at age 40)with a cavernous hemangioma within my actual spinal cord,had it all my life but did not know it til it just happened to show up on an MRI of my c spine i was having to try and pinpoint which disc i had herniated. it showed that disc,and that very suprising 'incidental finding" as well. i also developed a brain aneurysm in 05 that was also a bit of a shock. the predisposistion is just there. this could be the case within your family as well depending upon what that 'predisposistion' is or is stemming from.

    this would be a very good question to ask a neurosurgeon. have you been screened at all with at least an MRI? just given the fact that two of your family members have found to have this in there brains would be a possible indication of some level of real predisposistion being there in some shape or form. if i were you,i would at least speak to your primary doc at this point about just having that MRI done just to see if this is there in you too. at least it would show that everything was clear in 2008 should something actually pop up later on,you know what i mean?

    there are certain types of vascular malformations that you just can be born with and others that can form later on becasue of other factors. you just kind of need to know at this point what IS or is not actually there now. i really am not too certain just what the difference actually is(if any) between a hemangioma and a meningioma? it could be the very same thing but the meningioma is just given that label becasue of the actual location of it within the outter brain area,in the meninges?

    has either relative shown any real symptoms of this or how were they found? is there any kind of real medical issues(besides the obvious) that both of those family members have in common at all,even something seemingly insignificant? marcia
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    Old 08-04-2008, 03:23 PM   #3
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    Re: are meningiomas hereditary

    My 32 yo daughter was diagnosed with a meningioma in March of this year. As far as I know, there is nobody on either side of our families that has had a benign brain tumor.

    Good luck!!!

    Last edited by Administrator; 02-17-2012 at 01:22 AM.

     
    Old 08-21-2008, 01:41 PM   #4
    shadazel5980
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    Re: are meningiomas hereditary

    i havent had a mri of the brain and no i am not from a spanish descent.

     
    Old 08-22-2008, 06:22 AM   #5
    feelbad
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    Re: are meningiomas hereditary

    at the very least,given the circumstances,you really should have one. this would simply show whether or not this is there and for the future,you would know for sure that(in case this does happen to you at some point)this DID somehow form AFTER the MRI done in 08? the thing is,without your family members who actually have this now ever having their brains scanned at some point up to when this was finally found,there really is no way to actually know for sure whether they were born with this but just didn;t show symptoms til a certain point,or it somehow developed later on in life,you know what i mean? at least you would be able to know should it occur. this info would just be very helpful to have in certain circumstances. good luck,and please keep me posted. marcia
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    Old 04-10-2009, 05:22 PM   #6
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    Re: are meningiomas hereditary

    I have a begnin meningioma and my mom had one out a year ago, however I have been two 3 nuerosurgeons and nuerologists and they all say that we are a rare case like 1 in a couple million. In my heart I believe that people with certian bodily make up or genetics may just be prone to these tumors. Maybe a calcium imbalance who knows???

    Anyway, through all my research no they are not. Hope it helps.

     
    Old 04-11-2009, 06:44 AM   #7
    bethsheba
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    Re: are meningiomas hereditary

    Quote:
    Originally Posted by tinabean34 View Post
    I have a begnin meningioma and my mom had one out a year ago, however I have been two 3 nuerosurgeons and nuerologists and they all say that we are a rare case like 1 in a couple million.....
    This info contradicts the info I have read which suggests that meningiomas are a common type of tumor, more common in women than in men, affect 1 per 38,000 people, and usually occur between the ages of 40-60.

    so apparently the 1 in a couple of million statement may be debatable.

    Bethsheba

    PS Although neuroscientists don't know what causes these kinds of tumors, they are investigating the possibility a chromosone abnormality.

    Last edited by bethsheba; 04-11-2009 at 06:49 AM.

     
    Old 04-11-2009, 08:16 AM   #8
    feelbad
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    Re: are meningiomas hereditary

    good info beth,as usual.lol. the one huge thing that i hve found just having some very insane things occur with me and also my son, it that anything IS indeed possible when it comes to the human body and when espescially a genetic crappy thing becomes involved in the mess. there are mutations of things that can occur that an create a "condition' that normally would be passed on, but that mutated gene creates a whole different type of nightmare. this was the case with my son and PKD. he recieved that mutated gene which created a horrid liver disease,but it all goes right back to the PKD(polycystic kidney disease). the 'specialists' out there, well in my opinion, there is alot more that they simply truely DON'T know then the things that they DO actually know. our bodies are capable of completely changing any "norm' for any condition really. you can never actually say 'never' or "always" with any real condition just becasue of sooo many different factors. its just the way we are. just my humble opinion. marcia
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    11-20-01,placement of hardware for failed fusion
    9-22-03,removal of cavernous hemangioma that was inside spinal cord. Neuro damage to L hand L leg and R leg.

     
    Old 04-12-2009, 02:20 PM   #9
    bethsheba
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    Re: are meningiomas hereditary

    Quote:
    Originally Posted by feelbad View Post
    ... the 'specialists' out there, well in my opinion, there is alot more that they simply truely DON'T know then the things that they DO actually know. our bodies are capable of completely changing any "norm' for any condition really. you can never actually say 'never' or "always" with any real condition just becasue of sooo many different factors. its just the way we are. just my humble opinion. marcia
    Yes, I would wholeheartedly agree! I am sorry that you have had to wrestle with so many medical conditions in your life...I hope your road ahead will be better than the one behind you.

    I do hope your son is ok...not being familiar with PKD and the science, I'm afraid I have little to offer aside from my sincerest best wishes for his good health.

    Bethsheba

    Last edited by bethsheba; 04-12-2009 at 02:28 PM.

     
    Old 04-13-2009, 08:09 AM   #10
    feelbad
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    Re: are meningiomas hereditary

    thanks beth,we are still pluggin along here. we found out the hardest way possible that you just really do not have any real clue as to what is going on inside your own body til you actually get that 'look" inside somehow. been crazy here. i have learned SOO much about what lyme really is from you, wow you do know your stuff there girl. hope that wasn't from your own personal experience? take care hon, marcia
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    3-22-01,herniated C-6-7
    11-20-01,placement of hardware for failed fusion
    9-22-03,removal of cavernous hemangioma that was inside spinal cord. Neuro damage to L hand L leg and R leg.

     
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