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  • Stroke??? Help me..? Im confused!!

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    Old 03-30-2009, 10:06 AM   #1
    aiysha1
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    Exclamation Stroke??? Help me..? Im confused!!

    I woke up about 2weeks ago nd noticed that one pupil was smaller than the other and not contracting as usual.. nd the other was extremely large! i went 2 c an optician nd he referred me 2 a hospital. that evening i didnt feel so well nd the next morning i was rushed 2 A&E. i couldnt focus and my balance was off nd i needed someone to steady me wen i walked. the light gave me rele bad headaches and i wasnt completely aware of what was going on around me. the right side of my face was sort of numb and my right eye was dropping a little (the one that wudnt contract). wen in the hospital they gave me a CT Scan nd the first time they couldnt even find my brain!! the second one, after being given dye 2 help it show up they told me that everything was fine and told me 2 c an eye specialist.

    i went back to hospital a few days later and saw the eye specialist. he inspected my eyes and told me that i do need glasses (as before) but my prescription had changed a little nd that he cudnt find any explaination for the pupil difference?? he told me 2 get the new glasses and come bak to see a neurologist.

    i got the glasses and wen i came once again to the hospital and saw a neurologist this time, he cudnt understand y it was just the side of my face and not my hand and leg too.. he has asked for me to have an MRI scan done and get back to him after that, but why am i having an MRI when the CT showed up nothing?? Is it just me or am i goin around in circles here?

    The head aches are getting worse and worse and ive noticed that im getting tooth ache too. today when i woke up the headache was in both sides of my head not just the right side!! im wondering if it could be comin from my teeth as i have been sleeping with a brace to straighten them and it moves my teeth back. could this have affected the nerve if my wisdom teeth are also trying to come through?? the ache is now from the back of my jaw and i have pressure in my head.

    ive also been getting shooting pains down my right arm and sometimes my right breast.

    why?? does anyone have any ideas? i dont understand wats goin on.. my CT Scan showed that nothin was wrong?!


     
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    Old 03-30-2009, 12:31 PM   #2
    bethsheba
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    Re: Stroke??? Help me..? Im confused!!

    Welcome to the boards!

    Some of the symptoms you're experiencing are similar to those of people who have been diagnosed with Bell's Palsey, which is a neurological condition. I've seen a number of posts from the UK describing similar symptoms. One cause of Bell's Palsey is Lyme disease which can be found in England, Wales, and other parts of the isles, as well as the US and other parts of the world.

    I might add that people with Lyme disease often experience teeth and jaw problems...as the jaw is the fouth most common joint affected by Lyme.

    Last edited by bethsheba; 03-30-2009 at 12:33 PM.

     
    Old 03-30-2009, 06:27 PM   #3
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    Smile Re: Stroke??? Help me..? Im confused!!

    I have PSP (progressive Supranuclear palsy) It' a A-Typical Parkinsonism I go thru all different types of odd sensitations, I just try to find a way to over come them ONE AT A TIME ! Most times it works. The biggest hope for this disorder is stem cell research, hopefully I'll see this before dementia!
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    Old 03-31-2009, 04:52 AM   #4
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    Re: Stroke??? Help me..? Im confused!!

    bethsheba

    i found ur post rele interesting. id never heard of lyme disease but i looked at it nd i dont think thats wat i have. a friend had mentioned bells palsy to me before nd mayb that cud b wats happened here. my eye still droops but not as much as the first week, nd the headaches arent quite so consistant tho wen they do happen they r stronger and in both sides now.

    it rele is confusing i never knew there were so many options as to wat could be wrong with me! x


     
    Old 03-31-2009, 05:23 AM   #5
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    Re: Stroke??? Help me..? Im confused!!

    Quote:
    Originally Posted by aiysha1 View Post
    ....it rele is confusing i never knew there were so many options as to wat could be wrong with me! x

    Yes, it can be very complicated and unfortunately we just don't have the science yet for so many things.

    Aiysha, I would urge you to keep an open mind and to not rule anything out just yet...there is a lot of good information out there and there is a lot of not so good info out there. It takes time to be able to separate "fact" from "myth" from "we don't know". And remember, too, that symptoms can come and go but that doesn't necessarily mean the condition is cured, just that the symptoms come and go.

    Take care.

    Bethsheba

     
    Old 03-31-2009, 05:26 AM   #6
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    Re: Stroke??? Help me..? Im confused!!

    Quote:
    Originally Posted by Doutfull View Post
    I have PSP (progressive Supranuclear palsy) It' a A-Typical Parkinsonism I go thru all different types of odd sensitations, ...
    Dave, welcome to the boards and thanks for sharing. Haven't come across this condition in my research so will investigate further.

    And yes, hopefully stem cell research will provide the answers that so many of us seek.

    Bethsheba

     
    Old 03-31-2009, 04:35 PM   #7
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    Lightbulb Re: Stroke??? Help me..? Im confused!!

    I had some 30 second blindness bouts last summer My dr.at the time said it was probably a migraine even though I never had them before. amy new dr. sent me to getct and every thing was ok. Then she sent me to ny eye dr. for thourough exam and he had his partner check me too. He sent me to anneuro opthamologist and I got Mri. I was thinking like you why should I have both/ Well I ennded up with an anyurism behind my eye on optic and awhite spot on brain which could be from stroke. you need the mri. Now I need angiogram I guess. I just found this out today. If I never got mri I would never know anything. I have had cts before and nothing ever shows up on them for me. I'll resort to mris from now on.

     
    Old 04-16-2009, 03:23 AM   #8
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    Re: Stroke??? Help me..? Im confused!!

    hello everyone a quick update..

    have u ever heard or adies syndrome?? its wen one pupil is a different size to the other nd the light affects it causin dizzyness and lightheaded feelings and strong headaches!

    im still waiting for the mri.. it has a very long waiting list here in cyprus but if i find the money i may go and pay for it as i think this is necessary..

    if that fails and they dismiss the idea i may go and visit and a neuro-opthalmist?? i think thats the word to see if adies pupil could be a possiblity.

    i also get the sensation of a pulse in my ear wen i lie down and the light of the computer screen does hurt my eyes after a while. my eyes also start 2 sting wen im tired or i cry.

    xx

     
    Old 04-16-2009, 09:24 AM   #9
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    Re: Stroke??? Help me..? Im confused!!

    sorry for what you have been going thru hon. one other possible good solid reason for the pupil thing to even be occuring is from some level of actual sympathetic nervous system involvement. i had the very same thing happen to me while i was rehabbing at a hosp post op following a cord surgery? one night while i hobbled up to the sink, with a mirror atop it ,i noticed,out of the blue that my L pupil was very small and my R was much larger. of course i freaked out too. but found out i had what is called a "horners syndrome" going on? look up horners syndrome just to see what it is. it also affects the lids too, it can cause a lower lid droop in that constricted eye or an upper lid droop,or both.

    the fact that you are having the headaches and other symptoms going on right now, i REALLY do feel you need a c spine MRI and also a thorasic as well. that SNS(symp nervous system) simply runs thru the thorasic in a wierd way but it runs eventually thru that c spine area as wqell. you could be suffering from some level of actual c or t spine problem that would and could actually produce the symptoms you are having right now,trust me on that one.

    if you have not yet actually had that C and T spine cleared with at least MRI, you REALLY need to, just to really see what could possibly be going on in there. i too have trigeminal nerve involvement from my c spine too,this could explain your tooth type of pain as well. the thing is,my SNS was actually damaged at the c 8 nerve level, but when that happens and you also get the horners, it does mean that the SNS damage has reached up into your face in some insane configuration. that area i have that is affected is really crazy in how tooth issues present themselves and the fact that regular novicaine will not actually even work on that praticular area of my mouth when dental work needs to be done. found THAT one out the very hard way after nine seperate shots of it, given over a half hour, did not actually numb an area where i needed a tooth pulled that cracked. ooo that was nasty. now they have a much newer type of stronger novicaine type numbing med that actually works there or i would be dyin if i should need something else done.

    i just REALLY do think you may have 'something' that IS affecting your sympathetic that needs to at least be looked into so it can be ruled in or out as the base of your symptoms. do a search, images, of that sympathetic nervous system just to see how it actually runs thru the upper torso thru that c spine area. ANYTHING that could possibly affect it needs to be looked into for you right now. also look up horners syndrome as well jjst to see if this looks or sounds at all familiar with what you have going on. trust me when i say that when you have any particular problems within that spinal area, anything is indeed possible to actually feel, espescially if this issue also is impacting your SNS as well. even cervicogenic headaches or headpain. just given all your symptoms, this area really does need some in depth looking into for a possible cause.

    just wanted you to be aware of this hon. hopefully they will look into the c and t spine for you with MRI. or at the very least,that very heavily innervated c spine. you just do not have a clue what is actually going on inside your own body til you get a good look inside. good luck with this and please kep us posted. marcia
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    Old 04-17-2009, 04:03 AM   #10
    aiysha1
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    Re: Stroke??? Help me..? Im confused!!

    thank you very much for sharing that with me... atleast someone see's why im concerned.. the hospital jus keeps fobbin me off nd not rele gettin anythin done.. ive seen that many doctors they all say they dunno nd send me 2 the next.. its ridiculous..

    am gettin married soon... wen my fiance gets back straight away were goin 2 get married.. thats cud b within a week.. so hopefully he will demand somethin 2 b done becos they dont listen 2 me nd so far ive been thru this alone with very little help!!!!

    i will keep u posted

    xxxx

     
    Old 04-18-2009, 08:30 AM   #11
    feelbad
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    Re: Stroke??? Help me..? Im confused!!

    i did get your PM request thingy hon, did you get the reply? the one big thing you should be doing anytime you have to actually see any doc for any of your level of symptoms is bring someone with you to that appt. anyone who actually knows just what you have been suffering with would really be the best choice,but actually just having that 'other' person in that room with you will make things a bit less intimidating for you, and in most cases, the doc tends to listen better to your concerns and also will treat you with a bit more respct. it is just the fact that you have someone with you? like a 'witness" type thing that keeps that ego and that doc a bit more in check,or most of them anyways. it does help. i do this with taking my mom and my hubby when i have had my 'consults' on the surgeries i have had to have. they are also an extra pair of ears too. when we get told things, espescially if it is not great news, we, the patients will tend to stick on the words there too long and not really be able to fully take in everything that gets told to you. that extra pair of ears will really help with that too. just one suggestion that may help with how you seem to not be taken seriously. if the other person is a good speaker or really feels for you, they will help to advocate for you too, ya know what i mean? you just deserve to not be blown off over and over again with what your symptoms actually are.

    i do wish you luck with this hon. hang in there and hopefully some doc will open their eyes and ears and really listen. just push it if you have to. sometimes we do just have to push in order to even begin to get our needs met with alot of docs. Marcia
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