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  • chiari malformation???

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    Old 11-13-2009, 07:28 AM   #1
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    dove062476 HB User
    chiari malformation???

    i have had migraines since i was 12. when i was 28, about 6 weeks after i had my daughter i had the worst one in 5 yrs. i ended up in the er.they took a ct, but it was a ct of my head. they gave me morphine for the pain. but the pressure was still there. the pressure always remains for a day or 2 after the migraine occurs. since having my daughter they have become more frequent and intense.
    new symptoms have come along the way. here are my symptoms...
    migraine starts at the base of my skull where it meets my spine
    the pain move to the front of my skull
    the pain interferes with my hearing (ringing, buzzing, balance,ear pops, i get quite a few earinfections)
    the left side of my body hurts.(the feeling of numbness but i can still feel everything, tingling, cold, warm, muscle aches, pain around shoulder blade,hip pops in and out of place and locks.tongue tingles. metallic taste in mouth. nostril clogs up. this happens on my whole face as well.remember this is all over the leftside of my body)
    i get a pain in the leftside of my chest. sometimes its in the breast, sometimes in the chest.
    i also see stars and stripes at times
    i get tingling and twitching in my pinky finger, ring finger, and thumb. and they are ice cold at times. normally right before a migraine.
    at times when i walk i lean FAR to my left. i have to hold myself up in the shower.
    the vains in my neck hurt at times
    i have a hard time staying warm, when i am cold i sweat massively, when i am warm my hands swell
    i can not put any weight on the left elbow because it triggers the "funny bone"
    the doc tried to diagnose me as having fibromyalgia, but i dont belive it effects just one side of the body.
    here is a family history.....
    my father was recently diagnosed with an extra vain in his brain. this caused a massive seizure/stroke. they cut off the supply to the extra vain, and he is doing awesome.he said that he would see lines , crossing lines and stars.
    his father died of a seizure
    his grandfather died of a seizure
    my aunt on my mothers side has epilepsey
    i have had an ekg (the chest pain), and a stress test. they came out great
    the wierdest of them all is if i eat ANYTHING with red dye #40, im down with a migraine , they seem to intensify the migraines, so i just stay away from it all together. i have sent for some info. if anyone has any info or feed back, that would be great
    oh yes, i am going to go get the ct scans today and have them looked at again. if you have any ideas as to what to ask IT WOULD BE GREATLY APPRECIATED

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    Old 11-13-2009, 08:42 PM   #2
    Join Date: Oct 2004
    Location: US
    Posts: 449
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    Re: chiari malformation???

    Any reason why you think this is chiari malformation? Has your doctor told you they suspect it?

    Only a few specific symptoms you listed there fit easily into the chiari 1 category; the rest could be symptomatic of any number of health problems. In any case, a CT scan usually is not sufficient to diagnose Chiari; you'll need an MRI of the brain, most likely.

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