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fishalot 12-12-2009 05:23 PM

cavernous hemangioma
 
I have a cavernous hemangioma of pons . I want to go to busch gardens with my kids .
Can I go on the rides with them?

feelbad 12-13-2009 10:00 AM

Re: cavernous hemangioma
 
sorry you got one of these too. mine actually grew right smack inside of my spinal cord. honestly? for that type of a question i would seriously consult with your treating neurosurgeon who is monitoring your cav? if you do not yet have a good NS to monitor things yet, you most defintiely need one who specializes in these types of vascular malformations. you just really do need that level of true experinece and expertise with having this where you actually have this? personally, i would NOT risk it? but thats just me? just how large is your cavernoma? any bleeds at all? that bleed factor also would up the need NOT to even begin to go onto certain rides? marcia


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