It appears you have not yet Signed Up with our community. To Sign Up for free, please click here....

Brain & Nervous System Disorders Message Board

  • newly diagnosed prolactinoma in need of help

  • Post New Thread   Closed Thread
    Thread Tools Search this Thread
    Old 05-02-2010, 08:16 PM   #1
    Fendie's Avatar
    Join Date: Mar 2009
    Posts: 2
    Fendie HB User
    newly diagnosed prolactinoma in need of help

    Hi everyone about 8 months ago i was told i had a prolactinoma after years of not feeling right and being told there was nothing wrong with me. since then i have been taking Cabergoline 2x weekly and it has shrunk and levels have lowered according to my Endo.

    He believes ive had this since my early teens as im now since beginnine treamtent hitting puberty at the age of 25 ( first facial hairs,body hair....)

    He has also started me on Hydrocortisone 15mg for results i got back from a cortisol test.

    I really dont know what is going on with me as i dont really talk much to my endo only just about the prolactinoma specifically, i think from what i have learned i have secondary hypogonadism,low cortisol, low igf-1 and some other things but i cant be really sure.

    The reason ive came here is that im still seeing the same physical symptoms
    that i have been having before the diagnosis, nothing has changed except i lost a lot of weight.


    Hair doesnt grow back if pulled out at all - i had dermatitis and lost a lot of hair trying to get it under control, it has got a lot better in the last year, maybe due to the prolactinoma being treated, but the hair hasnt grown back.

    Wounds take forver to heal - ive got marks still left from tiny scratches.


    Weak erections - its seems like there isnt enough blood getting to my penis.

    Poor circulation - white spots all over my skin ( bier Spots) caused by poor circulation.

    Will any of this ever improve and can it be linked to the prolactinoma/Low IGF-1/Low Cortisol ?

    Also can the treatments im currently taking be making me deficient in other things ?

    Im sorry about the long read but i needed to get it all out as i feel like im just taking all these drugs and not actually knowing what they do and what to expect.

    thanks for reading and any help anyone can offer


    Sponsors Lightbulb
    Old 05-06-2010, 10:31 AM   #2
    geno232009's Avatar
    Join Date: Apr 2010
    Posts: 1
    geno232009 HB User
    Re: newly diagnosed prolactinoma in need of help

    This is the 1st time ive ever responded to a post.Ive been trying to moniter sites about prolactin producing pit tumors as i had a 4 inch one partially removed last nov. I probably cannot answer many of your questions although ive been jerked around by every Dr and pcp ive had.Its like these "professionals im dealing with dont have access to the same info that I do including books and the web.I'm noticing that many health care professionals are just winging it like they're in the stone age with knowing what hormones do what.I never wanted to know why I ticked the way I did,but I assumed for some time that there was something different with me than other people.this is something that any male in his right mind would be terrified of.breast enlargement,low testosterone,cronic fatigue.dandruff from out of this world,weight gain and loss.im6'3"and really dont want to feel emotions like my pituitary,and bromocriptine is making me feel.When I left the hospital in Nov I did'nt think my life was going to be altered in the way it was.I was led to believe that my surgury was a total success.Well not quite the tumor was wrapped all the way around my pit,and appaently 2x the size the doc thought.I guess they cut that sucker in 1/2 and hope that the to part falls well it didnt.Ive got an mri in a week to see if the bromocriptine is working.I can feel its my eyes,headaches and just plain being flat to everything.I am worse off now than before I had the surgury,now I my doc has a stroke and the nurse practicioner they stuck me with puts me on andro gel and takes me off of the only meds that seemed to be helping me function.I cant hold my 1 year old or hug my wife without worrying i'll poison them with the meds Ill have to rub on my shoulders for the rest of my life.If youve got any specific ?s I'll do everything I can to answer correctly for you.If your area is anything like mine you better arm yourself with a lot of info cause these people dont know sh*t.

    Old 07-10-2010, 10:16 PM   #3
    Jen1984's Avatar
    Join Date: Apr 2010
    Posts: 55
    Jen1984 HB User
    Re: newly diagnosed prolactinoma in need of help

    Maybe you have a thyroid disorder? Have they ran a thyroid panel on you?

    Closed Thread

    Related Topics
    Thread Thread Starter Board Replies Last Post
    What can I expect from neurontin?? Newly diagnosed - struggling to stay positive tigerlily11 Reflex Sympathetic Dystrophy (RSD) (CRPS) 12 09-30-2008 10:03 PM
    Newly diagnosed and lost HeatherJC1 Multiple Sclerosis 7 08-10-2008 11:49 AM
    Newly diagnosed~HELP! sadies mom Multiple Sclerosis 14 04-02-2008 10:02 PM
    Newly diagnosed - need help lin14534 Diabetes 5 09-24-2007 01:34 PM
    Newly diagnosed Need help( warning may get long) acornfl Fibromyalgia 13 09-06-2005 07:28 AM
    Newly diagnosed with CFS or Fybro, or just curious italys_finest18 Chronic Fatigue 0 09-13-2004 08:19 AM
    For those newly diagnosed with Fybro or CFS or those that are curious. italys_finest18 Fibromyalgia 3 09-08-2004 03:11 PM
    Help I'm gonna die! (prolactinoma) Peralph Open to All Other Health Topics 10 07-17-2004 12:15 AM

    Thread Tools Search this Thread
    Search this Thread:

    Advanced Search

    Posting Rules
    You may not post new threads
    You may not post replies
    You may not post attachments
    You may not edit your posts

    BB code is On
    Smilies are On
    [IMG] code is Off
    HTML code is Off
    Trackbacks are Off
    Pingbacks are Off
    Refbacks are Off

    Sign Up Today!

    Ask our community of thousands of members your health questions, and learn from others experiences. Join the conversation!

    I want my free account

    All times are GMT -7. The time now is 12:03 AM.

    © 2021 MH Sub I, LLC dba Internet Brands. All rights reserved.
    Do not copy or redistribute in any form!