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  • B12 Deiciency?

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    Old 03-30-2011, 06:14 AM   #1
    tigerpawtoo
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    Unhappy B12 Deiciency?

    Please help - I have no idea where to go next. I'll keep this short. Major symptoms started about 9 months ago, but looking back I have been experiencing some of these symptoms over a year ago.
    Head foggy - can't focus
    sparatic tingling/numbness in legs, fingers
    twitching/muscle spasms under left rin and left leg, can last weeks.
    head pressure, was daily and severe but now comes and goes
    extreme anxiousness/nervousness - comes & goes
    pain left side neck comes & goes
    pain left upper jaw behind left eye, comes & goes
    loss of balance always towards the left side only, comes and goes
    have to eat every few hours or I feel sick/dizzy
    get dizzy rather easy
    mild vertigo comes and goes
    join pain
    spells of complete exhaustion to the point I walk into walls I'm so tired, comes and goes
    some days I feel like I'm going crazy out of my mind
    This seems to cover most of what i've been dealing with over last 9 months. Negative for thyroid though my perioxidase was a bit high. Started me on vitamin D. Neck scan, MRI neck not my artery. Did show herniated disks c7 and c5 though they said that was no big deal.

    Some symptoms I have mild daily, others only once and a while, but they always come back.
    Was diagnosed with panic/anxiety 10 yrs ago, though for the most part few issues over last 10 years. They are blaming all of this on my anxiety keep trying to put me on Paxil etc. I don't like taking meds. I have to question to why if I haven't had these issues in the last 10 years, how now it is all anxiety related???? Symptoms almost daily for last 9 months????? PA recently diagnosed me with Fibro, though I was only in her office for 10 minutes and she refused to listen to all my symptoms. Sent me home with amatriptyline, found out this morning it's an antidepressant, don't want to take it. She out right refuses to have my B levels tested and infact laughed at me. I do drink a lot of coffee and recently read that can reduce I think it was B1 levels. Basically the Dr's won't do anymore for me. I'm so frustrated - I hate being like this. Some days it is so bad, like today I can hardly spell correctly and my thoughts are confused. I'm the director of a non-profit and I simply can't afford to feel this way, I'm responsible for bringing the $$ in.

    I need suggestions to what might be causing these symptoms, after research for 9 months I'm down to Fibro, MS, or lack of vitamin B. Secondly I would like to have my B levels tested on my owner considering my Dr's refuse but i'm out of work right now and can't afford it. Suggestions on what could be wrong? Suggestions of how I can find out? Any cheap testing out there etc? My nonprofit is suffering, I'm suffering and I think I'm making my husband crazy (poor guy, I try to stay tough but some days I break down and just cry that i'm so sick of being like this!) I'm 42 and I apologize for any misspellings, I can't spell when this happens.

     
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    Old 04-03-2011, 05:50 PM   #2
    scout316
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    Re: B12 Deiciency?

    hello

    welcome to the world of unexplained neuro symptoms....like you I had all of the symptoms you are having.Honestly for me it all started at the start of perimenopause.

    sorry you don't have adequate health insurance(my health plan is terrible...the drs. in the network are really so uneducated...might as well be going to get advice from a store clerk....)

    anyways through my own personal experience I would suggest you have a B12 level,magnesium level and autoimmune tests done.....an immunologist dr. would be the best for finding out what might be going on...many people I've talked to said they got some answers finally from that type of specialist.

    I had a "low normal" B12 level and it took a very long time to get a dr. to give me the B12 shots....mostly because the nomal range is 200-1100...I was down to 190 at one point...go figure...now the neuro says once you've been that low you need to always be at 500...nice to find that out after all this time.No two drs. seem to have the same advice...makes me feel so untrusting of all the drs.

    You could try B12 pills and see if you feel any better...they won't hurt you.B12 is water soluble so you lose 60% of it right off the bat.Try eatting food with lots of magnesium in it(I think baked potatoes is good source and also peanut butter and nuts...if you're not allergic.I had severe muscle faciculations and I was low on magnesium the dr. found out.When my ferritin improved also my muscle twitching stopped.Also try to stay away from dairy...daiy seemed to make the twitching act up.

    Hope this helps you in some way....I feel so badly for you,but don't give up hope of getting better.please take care.

    scout316

     
    Old 04-04-2011, 05:47 AM   #3
    tigerpawtoo
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    Re: B12 Deiciency?

    Quote:
    Originally Posted by scout316 View Post
    hello

    welcome to the world of unexplained neuro symptoms....like you I had all of the symptoms you are having.Honestly for me it all started at the start of perimenopause.

    sorry you don't have adequate health insurance(my health plan is terrible...the drs. in the network are really so uneducated...might as well be going to get advice from a store clerk....)

    anyways through my own personal experience I would suggest you have a B12 level,magnesium level and autoimmune tests done.....an immunologist dr. would be the best for finding out what might be going on...many people I've talked to said they got some answers finally from that type of specialist.

    I had a "low normal" B12 level and it took a very long time to get a dr. to give me the B12 shots....mostly because the nomal range is 200-1100...I was down to 190 at one point...go figure...now the neuro says once you've been that low you need to always be at 500...nice to find that out after all this time.No two drs. seem to have the same advice...makes me feel so untrusting of all the drs.

    You could try B12 pills and see if you feel any better...they won't hurt you.B12 is water soluble so you lose 60% of it right off the bat.Try eatting food with lots of magnesium in it(I think baked potatoes is good source and also peanut butter and nuts...if you're not allergic.I had severe muscle faciculations and I was low on magnesium the dr. found out.When my ferritin improved also my muscle twitching stopped.Also try to stay away from dairy...daiy seemed to make the twitching act up.

    Hope this helps you in some way....I feel so badly for you,but don't give up hope of getting better.please take care.

    scout316
    Thank you so much for your reply - I'm thrilled to be getting free care through my local hospital while I'm out of work, but honestly they have sent me to several specialists as far as the neck pain and shoulder numbness, done a cat scan and MRI - yet try to convince them to take some simple blood work to test my b levels - they would rather keep sticking me on drugs to cove rthe symptoms. As soon as i'm back to work regularly the first thing I'm doing is having my blood tested for B levels - thank you for your suggestions on the immunologist - I'll keep that in mind. I was taking B complex (not faithfully, I'm shamed to say) my mother suggested liquid under the tongue might be better and i'm just starting that. Problem is I read that if you've already started taking B, the blood test won't show accurate results. Any ideas on this? How much prior would I need to stop taking it or is it too late. Not only do I want to feel normal again, but also I would like a 'real' diagnosis. I'm not trusting the Fibro diagnosis because as i said, she never listened to all my symptoms, plus they never ruled out other causes - just said I had it , here take some more pills.

     
    Old 05-13-2011, 09:57 AM   #4
    FastUno
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    Re: B12 Deiciency?

    Do you happen to live in a heavily wooded area or have you visited any such areas? Any possibilities that you were bitten by a tick? Sounds like you have the many symptoms that my sister had (muscle twitching/spasms, joint pain, tiredness...).

    She saw so many doctors and they told her it was anxiety too, which is complete and utter bullsh**. A poor excuse for some of these idiots working in the medical industry who do not have a clue, nor care to follow through on the ACTUAL patient exepriences. You are better off self diagnosing.

    She was able to beg one doctor to provide her with Amoxicillin for 21 days & MAGICALLY all her problems went away.

    BTW, I have a feeling your headaches & neck pain is due to increased cerebral spinal fluid pressure, normal should be around 9-10. Maybe on a bad day have them due a Lumbar Puncture & they can both get a pressure reading & draw some fluid for a culture. Be warned just because it may come out negative, that it does not necessarily mean that you do not have Lyme Disease. There are more false negatives than false positives and this then tends to go untreated.

    If you need more help on this you can let me know & we can talk.

     
    Old 05-13-2011, 09:18 PM   #5
    Benit
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    Re: B12 Deiciency?

    my mistake, i thought this was a first time post, then i checked to see it had posted a while back and has a couple good replies...

    Last edited by Benit; 05-13-2011 at 09:20 PM.

     
    Old 05-16-2011, 05:45 AM   #6
    tigerpawtoo
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    Re: B12 Deiciency?

    Quote:
    Originally Posted by FastUno View Post
    Do you happen to live in a heavily wooded area or have you visited any such areas? Any possibilities that you were bitten by a tick? Sounds like you have the many symptoms that my sister had (muscle twitching/spasms, joint pain, tiredness...).

    She saw so many doctors and they told her it was anxiety too, which is complete and utter bullsh**. A poor excuse for some of these idiots working in the medical industry who do not have a clue, nor care to follow through on the ACTUAL patient exepriences. You are better off self diagnosing.

    She was able to beg one doctor to provide her with Amoxicillin for 21 days & MAGICALLY all her problems went away.

    BTW, I have a feeling your headaches & neck pain is due to increased cerebral spinal fluid pressure, normal should be around 9-10. Maybe on a bad day have them due a Lumbar Puncture & they can both get a pressure reading & draw some fluid for a culture. Be warned just because it may come out negative, that it does not necessarily mean that you do not have Lyme Disease. There are more false negatives than false positives and this then tends to go untreated.

    If you need more help on this you can let me know & we can talk.

     
    Old 05-16-2011, 06:08 AM   #7
    tigerpawtoo
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    Re: B12 Deiciency?

    Thank you so much for your reply. Yes, we live in a heavy tick area, but I haven't seen any deer ticks. I was tested for both lyme and I think spotty mountain tick fever? (not sure if I'm saying that correctly). Both negative. I also heard lyme tests can be wrong.

    Funny you mention cerebal fluid. Many mornings when I wake up I feel funny - like I'm 'numb' all over. It last about 5 minutes. Some mornings when I wake up I get this sound in my head like blood is rushing back into my brain. I figured out what it sounds like finally - sorry this is the best thing I can relate it to, but you know when you burp - your ears get blocked a bit and you get that funny white noise in your head? That's what it sounds like. Most often it lasts maybe only 30 seconds but one day it lasted much longer. I normally feel like crap when i wake up. The numbness in my upper arms, across my back shoulder blades is almost every day. I've tried different pillows etc. I've been worried all of this adds up to not enough circulation to the brain. They did do the MRI of my neck w/ contrast, and within 10 minutes both my arms fell asleep completely - yet the MRI came back fine according to them. So I thought this might have ruled out a lack of circulation.

    I wanted to start b12 and I did for about a month - didn't notice much change. I was hoping to get more hours at work to have my B levels tested, so I stopped taking it when I read that if you start the tests results won't be accurate.

    I crashed big time last week again, completely exhausted, twitching in legs, nervousness, couln't focus and three days of just all over achiness, so I got frustrated and went back to my very first PA. She took me a bit more seriously because it's been a year since i last saw her. She thinks the head pressure is silent migraines because I mentioned sometimes when I don't eat enough and i have an attack of hypoglocemia I see a star pattern in my left eye. She jumped on the migraine thing. Though seeing the stars only happens rarely. She said I was dehydrated. I do have two big coffees a day. She said nothing explains all my symptoms. She's sending me for a sleep study and if that doesn't pan out possibly a neurologist finally. I was thrilled she didn't blame all this on anxiety like she did last time - but i still don't see a lot of hope. I got my hours cut back at work again and to be honest most times I'm too exhausted any way or I can't think straight. I just pray what ever is wrong isn't something that is going to be permanent from lack of being treated. Any further insight would be wonderful.

     
    Old 05-16-2011, 06:24 AM   #8
    tigerpawtoo
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    Re: B12 Deiciency?

    I have so many symptoms at times I forget some. One thing i forgot to mention and this is embarrassing but, many nights when I lay down to fall asleep I drool. This started maybe a year ago when many other symptoms started. It's a pain, sometimes it actually prevents me from falling asleep.

    Not every night, it will happen maybe three days and go away.
    I would love to see an immunologist, just a matter of convincing my DR. I KNOW there is something wrong. I was only 2 yrs ago someone who worked 4 nights a week, volunteered over 40 hours a week for our animal shelter and still could take on more! Now some days I can't even spell correctly, YIKES! Chin up right? Thanks everyone. I figure it's a puzzle and it's just a matter of finding the piece that fell on the floor, lol.

     
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