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  • Amyloid Angiopathy

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    Old 04-04-2011, 11:11 PM   #1
    S Park
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    Question Amyloid Angiopathy

    My husband had a brain MRI recently for his MS. This afternoon we finally saw the report in which the radiologist indicated Amyloid Angiopathy with numerous cases of bleeding in the brain. I knew that my DH was mentally going down (dementia) but we had no idea there was anything other than MS. Apparently the higher tensilon imaging was able to show it where it had been just a shadow in the past with less advanced technology.

    From what I'm reading this is quite fatal and I'm frantic (just found out a few hours ago - no counseling or explanation from the doctor who apparently is also puzzled).

    Are there doctors who specialize in this condition? What are treatments? What does the latest research show, that is, if there is any research? We are in an HMO so I'm concerned about trtmnt. Are there support groups? We are hanging by the proverbial thread.

    Thanks for any suggestions.

     
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    Lisajj (09-14-2011)
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    Old 09-14-2011, 01:48 PM   #2
    Lisajj
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    Re: Amyloid Angiopathy

    Hi, my mum was diagnosed after having a headache...had a scan whuch showed a bleed and then a brain biopsy that confirmed Cerebral Amyloid Angiopathy. Another small bleed a few months later and within 2 years she went from being normal to having dementia and going walkabout, getting lost, mixed up etc. My mum was diagnosed at age 58 and sadly passed away just before her 62 bithday. As far as I know the protein doesnt filter through the brain and sticks to the vessels causing them to bleed, vascular dementia occurs.... Here in the Uk we were told this was a rare disease, 2 years later we were offered counselling and testing which both my brother and I refused.
    There doesnt seem to be alot about this disease, there were supposed to be some trials going on in OZ and London but didnt hear anything else..AVOID ASPRIN AND IBUPROFEN as these thin he blood.
    Im sorry for your situation, hugs go out to you as this is such a sad thing to happen to a loved one.

    Last edited by Lisajj; 09-14-2011 at 01:51 PM.

     
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    amyloid angiopathy, brain, dementia, hemorrhage



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