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Old 09-28-2011, 06:30 AM   #1
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Hi there

I am new to the board, and could really do with some virtual hugs. I have been experiencing some strange symptoms since the start of the year, which resulted in a Neuro referral and a MRI to the head and neck. A bit of background...

In Jan, I noticed that both of my big toes were numb - not pins and needles numb, just no feeling numb. As the weeks passed, I lost sensation in my middle finger of my left hand, and more of my toes, predominantly on my left side. At the time, I was being investigated for diabetes, but all my blood tests came back normal.
In March, I was referred to the Physiotherapist as I was experiencing pain in my knee joint, and was told I had muscle wastage in my right thigh and was given exercises to help strenthen them. The pain eased after a couple of weeks.
By April, I was noticing that I was losing sensation in my legs and arms, although this wasn't accompanied by any muscle malfunctions, or pain of any kind. I had also lost feeling in my lips and my tongue constantly felt like I had burnt it on hot food. I then lost feeling to the whole left hand side of my face, which completely freaked me out, and I ended up going to my GP for an emergency appointment. Again, no muscle function loss, just feeling like I had been to the dentist and the anaesthetic hadn't worn off... That's when I was referred to the Neurologist, who I saw about a month ago. She told me my reflexes were "brisk", although she noted my loss of sensation was more marked on the left hand side of my body, and that also my left foot/ankle was considerable weaker than my right. She actually asked if I had a problem driving, as it was so marked. I have been having pain in that ankle now for the past week, as I keep going over on it when I am walking. I noticed today that my right ankle is painful too, although I haven't gone over on it.
Since seeing the neuro, my hands seem to be weaker - I am having problems opening jars. At the age of 39, I don't expect to need a jar opener!! My energy levels fluctuate from day to day - sometimes I need an afternoon nap just to make it to the kids bedtime, other days I am still up and about at 10pm. I recently had an UTI, which also seemed to knock me for six.
I had an MRI scan on my head and neck this past weekend, and the radiologist said the results would be with my consultant within a week to 10 days. I am slowly going round the bend. Every test I have had so far has come back "normal" although I feel far from it. I have been described this year as a "medical mystery" by one GP, and the other one I saw said he thought I had a "problem with my wiring" which he said could be caused by a virus.
My husband seems oblivious to what is going on, seeing as I am still able to work (I work part time in a supermarket, doing 4 hour shifts 4 times a week) and keep the house and kids in check. He just complains that I am tired all the time, and moans I am not doing my "wifely duties" as often as he would like. To be honest, I haven't really sat down and talked to him about what is going on, and what fears I have. But until I have a clearer idea as to what is going on, I don't really know what to say. He says Google is your friend, but I am trying my hardest to stay away from it, as it would just terrify me. I have an Aunt who has MS, so that has been in the back of my mind, but I realise that there are a whole number of things that could cause my symptoms.

If you have made it this far, I thank you for "listening". I just needed to get it off my chest. I have tried to make diet changes, although my appetite seems to come and go as much as the tiredness. I have cut out caffeine and alcohol completely. I am trying to carry on as normal, for the family's sake as much as my own.

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Old 09-28-2011, 07:04 AM   #2
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Re: New to the board

Have you told the doctors your aunt has MS? Maybe go to another specialist and get a second opinion. I had doctors call me a mystery in recent times. They thought I had lymphoma, they thought I had stills disease, they thought I had a virus, . I have just recently been diagnosed with sjrogrens. After a lot of painfull tests and a life changing experience thinking I had cancer, I get a diagnosis, my son has boarder line lupus. I tryed telling doctors about his tests and symptoms were like mine and they didnt listen, I thought all along it was autoimmune as it runs in the family. Eventually it was that. I some times feel in your heart you know whats wrong and have a feeling about what it is. If you have a feeling about your aunts MS, follow it up straight away. I am sure there are special tests for MS. Good Luck..

Old 09-28-2011, 07:14 AM   #3
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Thanks Estelle,

Yes I told the Neurologist about my Aunt's MS, and also about my Grandmother's dementia, when she asked about family history. There is also a history of diabetes and RA in the family too. So auto immune is pretty common in my history. I'm going to wait to see what comes from the MRI, it's just hard to wait for results (or non-results) sometimes

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