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crossing23 08-22-2011 08:29 AM

tumor in orbit
Hi everyone,
I sure hope someone can give me information, the anxiety is killing me.
In 1998 I had a heart attack. Since that time I noticed that my left eye always looked larger than the right eye. I told my cardio this he just shrugged his shoulders.

Fast forward to 2008, I had loss of vision for about 1 min then it came back.

Went to see specialist in this field. He told me that this was a good type of tumor to have, and it is benign. He told me to come back once a year.

I went this past week, and I knew and he noticed that the eye looked worse. He sent me for an MRI to compare from 3 yrs ago.

I went to pick up my report today, (because I couldn't wait a mth until I see him to find out) the results.

This is what I found out:
There is a well circumscribed mass inoving the feft inferior orbit with deformity of the glovbe. The mass appears to be measuring approximately 2.0 cm A-P x 1.8 cm TRV x 1.5 cm S-I. There is mild deformitty of the inferior surface of the globe and mild proptosis.
The lesion appears to have increased by approximately 5 mm in its AP axis and approximately 3-4 mm in the SI axis. There is no additional evidence of orbital lesion. There is no optic nerve abnormality, No abnormal enhancement is otherwise seen. There is moderate white matter change.

Sorry this is so long, but I am trying to be prepared with questions before I go back to the dr in Sept.

IMPRESSION: Well circumscribed inferior orbital mass measuring 2.0 cm A-P x x 1.8 cm TRV x 1.5 cm S-I

Will I lose my eyesight, or will I lose my eye, or both! Any help would be greatly appreciated.


palmyrafan 09-12-2011 06:46 PM

Re: tumor in orbit
I also have proptosis of my left eye due to multiple meningiomas which have wrapped themselves around the optic nerve and optic nerve chiasm.

Run, don't walk to a neurologist and a neuro-opthalmalogist, preferably ones who specialize in brain tumors. Depending on the type of tumor you have, you may be able to preserve your vision. But no one will know that until you see a specialist.

My team of doctors (8) at Thomas Jefferson University Hospital in Philadelphia, PA deal with this kind of thing all the time. My neuro-opthalmalogist is the Director of his department. The reason we see him is because he is one of the very few in our area who specialize in optic nerve and optic nerve chiasm tumors. He is more than qualified to properly diagnose me and offer courses of treatment.

If you can, find someone who specializes in this field. Most doctors won't know what they are looking at and may tell you that it is nothing to worry about. You want to hear that, we all do. But make sure it is coming from someone who is qualified to give you that diagnosis.

Good luck!

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