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baffled by bladder problem

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Old 06-01-2009, 12:21 PM   #1
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thejester01 HB User
baffled by bladder problem

My 16 year old daughter has a bladder infection causing permanent discomfort and is unable to sit down. She is unable to empty/control it. She has also suffered lower back pain, pelvic pain, abdominal pain and severe period pain. This has been a period of over 2 years now and we still do not know what is causing it. She has been to see a urologist/gynaecologist and a neurologist. She's had x'rays/test both blood and urine, all of which are coming back clear. She is due for an mri scan next week but we've been told that they probably won't find anything.
Any advice would be much appreciated.

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Old 06-01-2009, 03:14 PM   #2
Just Tell Me
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Re: baffled by bladder problem

That is worrisome that she's suffered for over two years and there is still no definitive DX. Does she still have a bladder infection or is the chronic bladder pain as "side effect"?What you discribe sounds allot like interstitial cystitis which is a chronic condition that has a variety of therapies but no cure and it affects females more than males, is notorius for causing pelvic/abdominal/back pain. Chronic interstitual cystitis can cause dysmenorrhea, especially when acutely flared. I know it may seem extreme ( but so is being in pain for 2 yrs!) but whay hasn't a cystourethroscopy been performed? That should have been done when her infection/pain didn't resolve within a few months.
I would discuss pain management with the Dr on the next visit. 2 years of living with pain is hard, especially for a teen. Just because they don't know the cause or disease process causing her problems, they shouldn't allow her to suffer in pain. I do wish you both the best and hope she gets resolution soon so she can be young and carefree as she should be at 16.

Old 06-02-2009, 03:41 PM   #3
Join Date: Jun 2009
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thejester01 HB User
Re: baffled by bladder problem

thanks for your reply!
we are at a stage now where we are banging our heads against a brick wall. i've written a letter of complaint to our gp with regards to the lack of process on this, but i've been told we've just got to wait. it takes on average 4-6 weeks for each referal and the same again for any results. it's a joke as. we are concerned for her health not just physically but mentally too. again this has been expressed to our gp. interstitial cystitis is a possibilty that we have not yet looked at. my only concern is that her symptoms to not match. she only gets pain after she has emptied her bladder and 9 times out of 10 it does not empty fully. there is no urgency either, she's able to control it pretty well. there is a chance she could have over stretched her bladder muscles but they just wont look into it. i will mention interstitial cystitis on our next visit to the gp. another thing that has cropped up many a time is endometriosis but as nothing shows on the scans she has had, they won't look into it further. it is a known fact that the only way to diagnose endometriosis is by a laparoscopy, i have asked for this but they will not carry one out. like interstitial cystitis, the symptoms of endometriosis are very similar.

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