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Sclerotic Lesion of Left Distal Femur Diaphysis

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Old 10-19-2013, 05:58 PM   #1
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devtay25 HB User
Sclerotic Lesion of Left Distal Femur Diaphysis

Any help/advice on this is appreciated!
In July of this year, I was diagnosed with a bone tumor on the posterial aspect of my left distal femur (diaphysis). Now, the first test was a bone scan, which showed intense uptake in the area of the lesion, which prompted them to do an x-ray immediately following the bone scan. The x-ray reported what they were calling a "non-ossifying fibroma" in its "healing" stage. However, July turned into August and an MRI was done in mid-August, just to be on the safe side. The August MRI report was consistent with the July bonescan and x-ray, which stated the diagnosis as "fibroma." Over these past few months, a gradual pain developed in the area of concern and still perists to this day. I have seen an orthopedist, a rheumatologist, 2 and my family doctor. I also had 2 additional x-rays after the MRI , one month apart and they said there was no change in the tumor's appearence, which should mean good news right? Well, here I am, still concerned with the possibility that this is a bone cancer, only because of the pain involved with the lesion. So I guess I am kind of wondering if there are bone cancer patients here that have had this similar experience or if I'm just worrying for nothing. Any comments, ideas or advice is appreciated. Thanks. Devon. Age-25

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Old 10-20-2013, 02:10 AM   #2
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Re: Sclerotic Lesion of Left Distal Femur Diaphysis

The description and location sounds most like an endochondroma, a fibrous/sclerotic lesion often found in the distal femur. They are benign, but over time about 10% can become malignant. If that is what it is, xrays are usually done yearly for a few years, then maybe every 2 years to detect any changes. I would stongly suggest you see a bone tumor specialist, an ortho who specializes in bone tumors, to confirm if that is what it is. Then you will be reassured and followed appropriately for it. Nothing needs to be done unless pain is intolerable or the lesion starts growing or looking suspicious. I have one in my distal femur myself that has remained unchanged for about 20 years. But do get the xrays, bone scan and MRI's looked at by a bone tumor specialist. Never count on internet opinions entirely for something of this nature, as we are not doctors and you need an expert in this field above and beyond the Drs you have seen.

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