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Terrified that I'm making myself sick


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Old 06-11-2017, 05:51 PM   #1
mtssh41
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Terrified that I'm making myself sick

I had a pap in Dec and the Dr said my uterus felt a little large but wasn't concerned. Just said when i go for mamo to have an ultrasound. So I did have that done a few weeks ago. I could tell they were looking at something and i was scared to death. So my dr phoned and told me i had a mass or cyst..was to scared to even hear him correctly. So he set me up with gyno specialist and this is is the findings of the ultra sound ? trans vaginal test. I have no idea what anything of this mumbo jumbo means, but im so stressed out, its got my bp up and i feel sick and cry all the time. I am getting full hysterectomy july 10. Please if anyone knows what all this means please help me.


Uterus: 8.2 x 3.4 x 5.2 cm. Small nabothian cyst. Mildly heterogeneous myometrium without discrete mass.
Endometrium: Homogeneous echotexture and normal thickness measuring up to 3 mm.
Right ovary: No normal discrete right ovary demonstrated. Large heterogeneous echotexture hypoechoic right
adnexal mass measuring 9.1 x 7.8 x 8.9 cm with slightly lobulated contour. No cystic areas or follicles in
the lesion. Mild internal vascularity on limited Doppler study.
Left ovary: 1.3 x 0.9 x 1.2 cm and unremarkable.
Cul-de-sac: Moderate amount of free fluid.

Nonspecific large right adnexal mass with appearance suggesting solid neoplasm. Endometrioma or hemorrhagic
cyst are differential considerations. Enlarged infarcted ovary is less likely but not excluded. Moderate
free pelvic fluid. Recommend clinical correlation.


No known family history of ovarian cancer, but my cousin did have cevix cancer.


Forgot to add that my ca 125 test was 36.3 which is really freaking me out since 35 is normal.

Last edited by mtssh41; 06-11-2017 at 06:07 PM.

 
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Old 06-12-2017, 12:42 PM   #2
STLouisgal
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Re: Terrified that im making myself sick

I'm sorry you're dealing with this! I was in your shoes 11 years ago and wish I'd done things very differently. I know our minds tend to think the worst. But that only makes matters worse because we can't think clearly and make good decisions when fear gets in the way.

Based on my experience and that of many other women with whom I've connected along with everything I've learned, scheduling you for a "full hysterectomy" seems premature and extreme. And most hysterectomies as well as oophorectomies (ovary removals) are unnecessary.

Most ovarian cysts / masses are benign since ovarian cancer is rare in women without a family history of OC. Many cysts even resolve on their own, no intervention needed. However, the size alone may dictate surgery. A neoplasm is an abnormal growth but can be benign or malignant. Imaging is not exact which is why it says that this cyst could be an endometrioma or hemorrhagic cyst, both of which are benign.

An ethical surgeon with good cystectomy skills should be able to remove just the cyst leaving your ovary or enough of it for hormone production. The frozen section done while you are in the operating room should dictate if anything else needs to be removed. Unfortunately, many women (me included) lose organs unnecessarily because the consent forms are written to allow it.

Did you know that the ovaries produce hormones a woman's whole life and are essential to many aspects of health (heart, bones, brain, lungs, joints, thyroid, eyes, muscles, skin, hair)? Ovary removal or impaired ovarian function or failure (that can occur after hysterectomy) is associated with a number of health problems. I won't list them all here as you can find them in numerous studies of bilateral oophorectomy. Although estrogen levels fall at menopause, testosterone levels gradually rise to reach reproductive levels in a woman's 70's. Some of that testosterone is converted into estrogen as the body needs. In my opinion and experience, surgical menopause is a misnomer since it leaves one with a crippled endocrine system (the ovaries are endocrine glands).

What reason was given for removing your left ovary since u/s says it is "unremarkable" (normal)? And nothing sinister jumps out about your uterus either. If there is a concern, an endometrial biopsy or D&C would be the normal next step versus its removal.

The essential / non-reproductive functions of my uterus and ovaries became apparent rather quickly after their removal and I was almost 50 at the time of my surgery. I wish I had fired my gyn of 20 years versus following his recommendation when I developed a 9cm complex ovarian cyst.

I hope this helps ease your mind and drives you to do your own research. Best of luck!

 
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Old 06-12-2017, 02:07 PM   #3
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Re: Terrified that im making myself sick

Thank you for replying. Not sure why he is doing the hysterectomy. On the paper the nurse gave me to get blood work, chest xray, etc it says for procedure exploratory laparotomy, tah / bso poss staging which scared the heck out of me. I have been praying like crazy everything comes out ok. I have never been this scared in my life before. Most worried about my children. But i go to see my reg family dr on monday so im going to ask him why the full hysto. I was thinking maybe be cause im 51 and already went threw menopause. I have not had a period since i was 40. I am worried about that ca test being slightly over the normal read as well.

 
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Old 06-12-2017, 03:09 PM   #4
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Re: Terrified that im making myself sick

This all sounds eerily familiar! My gyn even said he wanted me to see an oncologist but there wouldn't be time. But one would be "standing by" to assist if needed. My research and medical records obtained after surgery were very eye opening and confirmed without a doubt that I was grossly over-treated and was lied to about my condition and treatment options. Four months post-op when I called my gyn because I could no longer function due to severe hormone deficiency and horrifically rapid aging (despite having been put on hormones), my gyn's nurse hung up on me.

Your age and childbearing status are moot since the uterus and ovaries are needed our whole lives for good health. There have been women who were years post-menopause who suffered rather severe symptoms after their surgeries. However, not all do. But keep in mind that the uterus and its ligaments are essential for pelvic integrity, both from an organ standpoint and a skeletal structure standpoint.

You cannot put stock in the CA125 test. Benign conditions can cause an elevated result. I and a friend had the exact same type of benign ovarian cyst and my CA125 was within range and hers was over 1000! Frankly, I don't even know why they check it. ACOG guidelines say not to screen for ovarian cancer since it is rare yet gyns remove a lot of ovaries in woman without OC risk or cancer.

 
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Old 06-12-2017, 03:24 PM   #5
mtssh41
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Re: Terrified that im making myself sick

I will definitely talk to my pcp on monday. This gyno that i had an appointment with is a gyno/oncologist. When i first went to my pcp after the u/s he said i would need a gyno specialist i guess because of the size of the cyst/mass. Im not really sure. I was hoping for my pcp brother because he is a gyno to, just not a specialist. Its all so confusing. I have never in my.life had any kind of surgery before. And to top.it off, the same day i had my u/s i also had a mamo and they called now and want to redo the mamo and also an u/s . Something about denesity. Im sorry i ever went for any of this.

 
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Old 06-13-2017, 04:42 AM   #6
STLouisgal
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Re: Terrified that im making myself sick

I'm sorry to hear about having to re-do the mammo and do a u/s. It's my understanding that dense breasts don't give a very clear mammo. I don't have dense breasts but had to have 3 mammos one year because of spots of calcification. Before the third one, I asked if I should stop taking my calcium supplement a certain number of days prior and they said "yes". My third mammo was clear. I was not happy that they hadn't told me that before the first one. This all happened not too long after my surgery and made me feel even more traumatized and leery of all things medical.

 
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Old 06-13-2017, 10:28 AM   #7
Titchou
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Re: Terrified that im making myself sick

The state where I live has a law that you have to be told if you have dense breasts because it's harder to read the mammo. I've been called back several times as a result and I get the state required dense breast letter every year after my mammo. I've always used the same facility so they have every mammo/u/s done on mine so they have plenty to compare to. I think that consistency is helpful. Bottom line -it's good info to have but most likely nothing to be concerned about - more thankful is what you should be. Keep us posted.

 
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Old 07-13-2017, 10:06 AM   #8
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Re: Terrified that I'm making myself sick

How did you make out? Going through something similar right now, and yes , very afraid.

 
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