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Complex cyst question

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Old 10-04-2005, 12:15 PM   #1
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Chelsel HB User
Complex cyst question

I was diagnosed with a 4 cm cyst about 2-1/2 months ago and put on birth control pills. At my follow-up today, the cyst has not reduced in size, and now there is a smaller cyst which is septated located adjacent to it. My gyn told me that this was not what he likes to see. He is following up with a CA125 test and if results are ok, continue on birth control for one month. He also said he would do surgery if I wanted but he would prefer to wait.

A few things - I have heard that the CA125 test for premenopausal women is inconclusive (I'm 44 now). Also, a few weeks ago, I had swollen lymph nodes and mouth sores that I thought was related to a cold I had (although that's pretty unusual for me). Should I be concerned about the lymph nodes and also should I move ahead with surgery just to be safe? I don't want to regret not being aggressive about this down the road. Thanks for your input!

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Old 10-09-2005, 05:51 AM   #2
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Re: Complex cyst question

sorry I didn't see your post sooner chelsel, I just came on board a week ago now that I will be going for a hysterectomy on oct18th. that's in a week and a half.

I too have problems since 1998 ever since my tubal ligation with ovarian cysts.
they were always hemorphagic, or septated, or complex, now for the first time, they're saying functional.
the funny thing is that these two cysts have been there since nov.2004.
One even burst. but the others are still there and my dr didn't offer to go in and take a look. she jsut says to follow up after each months cycle.
I even have ascities in the upper fundus and the cul de sac from them leaking.
hemorphagic is considered a functional cyst but filled with blood and debris.

I just learned a week ago that there are certain cysts that dont produce protein into your blood so that the ca125 levels won't be increased. yet you can still have cancer.
usually the other type of tumors produce a certain type of protein that shows up in the blood. you can't rely on the ca125. it is only a screening test and usually is used best for woman who've already been diagnosed with cancer adn they do follow ups to see if it raises or lowers.
just because it's low doesn't mean your doctor should just wait.
that's another problem with doctors. so much time is wasted by them referring their patients to gasto doctors thinking they have ibs, and then more time is wasted by the gyno waiting to do follow up ultrasounds. months go by when in reality if they truely have cancer it would be best to get it in it's earlier stages.
they've done studies on multiple woman who were diagnosed with ovarian cancer and asked them to fill out sheets stating any type of symtoms.
guess what?
they all had vague symtoms, months before the diagnosis.
so it does give vague sytoms and if you're having any symtoms what so ever, I would either tell your doctor you want a laparoscopy or you should find another doctor who will.
it's so dangerous to wait. they're trying to make more woman aware of this. it's not such a silent disease as they thought. there are subtle symtoms.
and they feel like gastro related. nauseua, pain and vomitting,constipation, pain on urination, cramps, bleeding in between periods and abdominal bloating.
you can have your abdomen bloat yet the scale won't read that you've gained weight either. because you're actually losing weight. but I've also read that some woman have gained weight in a quick amount of time not related to over eatting.
don't feel funny about requesting things for your dr to perform. you hired him. he works for you. it's your body. listen to it's symtoms and go by your instinct or gut feeling.

swollen lymph nodes that are enlarged from a cold eventually go away. if weeks go by and they're still enlarged you should get it checked out.
are they enlarged on your neck under your jaw? is there one or two?
left side or right? supraclavicular is worrisome to the drs and anything over 2 cm large needs to be investigated. they'll give you an antibiotic first to see if it goes away.
they will also tell you to not touch the nodes because palpating it can actually keep it enlarged. try not to touch it.
I understand thats hard to do though.
are you having any night sweats, or any itching on your body that doesn't go away and it's intense? or if you drink alcohol, does the node hurt?
most likely they're enlarged from your cold because the chance of it being a lymphoma is low. enlarged glands are caused by infections and drainage. even a bad tooth can cause a lymph node to enlarge.
some are rubbery and moveable. some are harder and not easy to push around. those are the ones that they usually are concerned about.
anway, you have a few things going on that would raise anyones fears.
I'm sorry you're going thru this. maybe even by now that you wrote this a week ago, the lymph nodes have subsided. have they?
did you make any decision with your doctor?
I hope you get to read this and reply.
you have me curious about your diagnosis.
I wish you well.
let me know what happens.

Old 10-09-2005, 09:28 PM   #3
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Re: Complex cyst question


To Linda, please see my post, which is also old. Do you have any answers for me also? How old are you? And did you have a Laprascopy before deciding on a hysterectomy? A hysterectomy is such a serious operation. If they have to take out most of everything, that is! Please talk back on my thread, thanks.

To Chelsel, I was going to say about the same things as Linda on the CA125. I have had that test, and if it is high, you can have cancer and also can not have cancer. And if it is low, you can have cancer and also can not have cancer. Mine was normal. Sort of a inconclusive test, if you ask me. I also had a biopsy (hurt!) and several vaginal ultrasounds. I wish I had heard someone like Linda a year ago, but I am going to my gyno tomorrow for my yearly and will ask more questions and expect more answers and more tests.

Thanks for listening yall. Take care. Wannabe

Old 10-12-2005, 03:16 PM   #4
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Re: Complex cyst question

Thanks for your input, Linda. These situations are so confusing. My CA125 test came back in the normal range (12.6), but I now know that really doesn't mean much. I'm scheduled to return to the doctor for another ultrasound in three weeks. If there aren't any positive changes, I'll request a referral to a oncology gynecologist. Thanks for all the information! It's so helpful!

Old 10-13-2005, 06:13 AM   #5
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Re: Complex cyst question

Hello out there. I have been reading your threads and I am a bit confused. I found out 2 days ago that I may have ovarian cancer. A full body PET scan was done on me on Oct 1st for my lungs and they discovered the cyst on my left ovary. My lungs are fine, but I am now scheduled to see an oncology gynecologist next week. In the meantime, a CA125 was done and we are waiting for the results. When the pet scan was done the radiologist said there was very high activity going on in my left ovary. He strongly recommended a specialist to see me. That is what I am concern about. The doctor seems to think that if cancer is there (which I hear in his voice), it is at an early stage. I am afraid. I dont know what to do. I fear that if they open me up the cancer will spread very fast. I have had friends and family that have gone through it and not survive 2 years. What is this biopsy that was mentioned in your threads? The doctors in my case are suggesting surgery to remove the ovary.

Old 10-13-2005, 10:57 PM   #6
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Re: Complex cyst question

Hi Deb4042,

I am not as much an expert about this procedure. I do not know what a PET scan is. I always have a vaginal ultrasound, when anything to do with my uterus, cervix and ovaries is in question. It seems rather severe to operate and take out an ovary just because the think it may be cancerous. Are there any other symptoms that you have that point to that direction? My doctor did a 4 vaginal ultrasounds, a CA125 and a biopsy, before deciding to wait a year, because my bleeding stopped with hormone treatment and because my ovarian cysts when down in size instead of up!

I wonder what high activity means?! I would talk some more to the doctor and have the other tests and find out those results, before deciding on an operation to remove an ovary, especially if you want children. Just my thoughts. Others may have quite different ideas and comments.

Take care and check out everything in full. Wannnabe

Old 10-14-2005, 09:49 AM   #7
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Re: Complex cyst question

Pet scans can differentiate between benign and malignant masses. Read up on PET scans and you will see that is why drs use them .

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