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  • Only ONE YEAR later...

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    Old 10-25-2006, 10:50 AM   #1
    Meg82
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    Only ONE YEAR later...

    Hi there ladies,
    I need some support b/c I'm totally bummed about my damned cervix.
    I had CIN III a little over a year ago and was actually referred to a Gyn. Oncologist for my treatment. I had surgery on my cervix in August of '05 (laser) followed by a couple of follow-up exams and one clear pap smear in Feb of this year. I was elated to have it all over with! I know several women who have had similar experiences being that HPV and the resulting problems are very common, but none of them have had a recurrence since their leep or cryo, or whatever their procedure was. Well I just had an abnormal pap, so in one year since surgery and only 6-8 months from my last normal pap, I have A low grade squamous intraepithelial lesion again and they want to do the standard colposcopy and biopsy before the end of the year.
    I have called my oncologist and I am hoping for some help, but I am needless to say very worried, upset and stressed that in only one year I have problems again.
    Has anyone had a similar experience with recurrence of abnormal cells soon after having a procedure to rid of them?

    Thanks everyone for your help.
    Meg

     
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    Old 10-25-2006, 11:01 AM   #2
    *Spaz*
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    Re: Only ONE YEAR later...

    I have CIN I again.... not even a year later.... I'm seeing a specialist on the 9th of NOV. It sucks! I hate having this!
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    Old 10-25-2006, 11:22 AM   #3
    karen32
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    Re: Only ONE YEAR later...

    I had a LEEP in June 2004 that removed stage 1a1 squamous cell cancer. My first pap smear post Leep was negative. My second pap smear, nine months after leep came back with high grade cell changes. I had the colpo, ECC, there was no dysplasia. I opted to have a hysterectomy (it was the right choice for me) and the surgery pathology plus two post surgery vault smears have been negative. I am not scheduled for another vault smear until next summer (but I might go in sooner for peace of mind).

    So....it can look like things are back, but until you have the colpo/biopsy, you won't know for sure. I think it is good that you are being followed by a gyn-onc. I will keep my fingers crossed for a good result for you.

     
    Old 10-25-2006, 12:04 PM   #4
    niarules
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    Re: Only ONE YEAR later...

    CIN I is sometimes seen after LEEPs. It could be due to neoplasia/healing and other benign reasons. From what I understand, it doesn’t mean it’s certain to progress, even if you had high-grade dysplasia before and have a high-risk HPV.
    I’m certain you don’t smoke, correct (I used to *shame*). Smoking and lack of oxygen can also contribute to recurrence, since toxins accumulate in the mucus of cervix (as much as 30%).
    I’d probably google some info on this, maybe using “significance of CIN recurrence after LEEP”, etc, as key words.


    I’ve also had LEEP done for which turned out CIN II, glands fine (but was originally biopsied at colposcopy as CIN II and III with glandular involvement).
    So I’ll be waiting for my first PAP anxiously as well. I understand aside from smoking and HPV, sometimes it’s said that involvement of endo-cervical canal and margins status, age, location and size of lesion, etc, may contribute to recurrence, but supposedly only if 3 or more combined factors are present?

    Do you know the exact pathology after your LEEP and margin status?

    Yes, I think doing colpo and biopsy ASAP would be helpful. If the results are clear, you will just have to have another PAP in 4-6 mo I guess.

    Please don’t worry now, CIN I in this case may have no significance; it seems that PAP results aren’t always 100% accurate (that’s why we have colpos, right). Schedule one, I hope for the best/negative results for you as well, take good care.

    Last edited by niarules; 10-25-2006 at 12:06 PM.

     
    Old 10-25-2006, 12:31 PM   #5
    *Spaz*
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    Re: Only ONE YEAR later...

    Niarules:

    Well they said it was HPV, but thinking back to the PAP I was spotting so maybe that messed up the results.
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    Old 10-25-2006, 08:40 PM   #6
    Meg82
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    Re: Only ONE YEAR later...

    Quote:
    Originally Posted by niarules
    CIN I is sometimes seen after LEEPs. It could be due to neoplasia/healing and other benign reasons. From what I understand, it doesn’t mean it’s certain to progress, even if you had high-grade dysplasia before and have a high-risk HPV.
    I’m certain you don’t smoke, correct (I used to *shame*). Smoking and lack of oxygen can also contribute to recurrence, since toxins accumulate in the mucus of cervix (as much as 30%).
    I’d probably google some info on this, maybe using “significance of CIN recurrence after LEEP”, etc, as key words.


    I’ve also had LEEP done for which turned out CIN II, glands fine (but was originally biopsied at colposcopy as CIN II and III with glandular involvement).
    So I’ll be waiting for my first PAP anxiously as well. I understand aside from smoking and HPV, sometimes it’s said that involvement of endo-cervical canal and margins status, age, location and size of lesion, etc, may contribute to recurrence, but supposedly only if 3 or more combined factors are present?

    Do you know the exact pathology after your LEEP and margin status?

    Yes, I think doing colpo and biopsy ASAP would be helpful. If the results are clear, you will just have to have another PAP in 4-6 mo I guess.

    Please don’t worry now, CIN I in this case may have no significance; it seems that PAP results aren’t always 100% accurate (that’s why we have colpos, right). Schedule one, I hope for the best/negative results for you as well, take good care.

    What a great and helpful post, thank you. Actually, I DO smoke. I was not aware of the impact that it may have, and perhaps surprisingly my oncologist didn't ever mention that to me. Hmmm...the gears are really turning in my brain now.
    Anyway, I do not know of the pathology and also margin status...actually I am not entirely sure of the surgical procedure that I had...It was not a LEEP. I was put completely to sleep for it with a sort of mild "twilight sleep" sort of anesthesia, in an outpatient hospital, even though my surgery only lasted 20 min. From what I understand it was a laser procedure, but due to my lack of knowledge adnd recent concern over how much I do not know about what happened to me, I have a call in to the oncologist to get more details. I faxed him my pap results from last week today and we will be talking early next week.

    In terms of my original lesion, from what I understand CIN III over a year ago for which I was sent to the Oncologist and underwent my surgery for, I believe that I had "bad cells" on my vaginal walls as well as covering my cervix. Due to this, perhaps what you mentioned about "size of lesion" may have something to do with the recurrence I am experiencing.

    I appreciate all of your input. I wish you well on your pap results, I truly understand how nervewrecking this waiting period can be.

    I must admit that a little humor helps sometimes...find a friend that can stomach and appreciate the vulgar stuff and tell him/her about how you fear your cervix looks like a slab of used ground meat. OK sick, I know, but I make jokes about mine b/c it helps me.

    -Meg

     
    Old 10-26-2006, 07:17 AM   #7
    niarules
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    Re: Only ONE YEAR later...

    You’re welcome, Meg.
    I can’t believe your doctor didn’t grill you about smoking.
    It’s a major contributing factor for many cancers, and cervical in particular. But I bet if you asked your MD, they’d tell you (though you shouldn’t have to ask of course, they’ve got to know better).
    Presence of high-risk HPV strains (16 or 18 especially, DNA HPV test tells you if you have one of the high risk ones, though won’t confirm which) is also kind of important, probably the most important IMO. I think something like 97% of cancerous AND precancerous cervix conditions are due to HPV?

    Also, if you do not know the status of your margins (it sounds like you had a cold knife cone, which is similar to LEEP), then perhaps not all of the original abnormality was excised and there is some residual “bad cells”, as opposed to recurring ones.

    Colpo with biopsy would probably be best. And please quit smoking or cut down. I still smoke one a day sometimes, or a half. Actually, knowing it may contribute to my dysplasia really took some enjoyment out of it (which is good I suppose

    Also, I did some research and found that a large daily dose of vitamin B-12 complex (buy the one that comes with folic acid), on top of your regular multi-vitamin, may help. It’s said to boost red cell production and cell renewal. I also take colostrum, which supposed to be great for immune system. I am not sure if it will help, but it certainly won’t hurt.

    You're right about humor. Going nuts certainly doesn't help. Speaking of a slab meat off cervix - I actually looked up some picks of what it looks like after LEEP and almost past out... However - they had the same cervix photo a year AFTER - it looks perfectly healthy, wow! so there is lots of hope for all of us.

    Good luck Meg, post after the follow up.

     
    Old 10-26-2006, 09:48 AM   #8
    Meg82
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    Re: Only ONE YEAR later...

    Thanks so much Nia, I will definitely post after the colpo/biopsy. I know that I had a laser treatment and not a cold knife cone, but will update after I talk to the Oncologist and get things sorted out. I am really upset with how little information I feel I was given from my gyn and even my onc. who is rated in the top 5 in the state I live in. Perhaps I didn't ask enough questions. I think of new questions every day and it is hard to steal a moment of their time to get answers. Thank goodness for the internet resources like this one.
    Thanks so much,
    Meg

     
    Old 10-26-2006, 12:13 PM   #9
    niarules
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    Re: Only ONE YEAR later...

    “I am really upset with how little information I feel I was given from my gyn and even my onc. who is rated in the top 5 in the state I live in”

    As far as the margins go; if you had laser ABLATION, naturally there’d be no tissue for pathology left after, so only if you had a cone excision via laser you’d have tissue sent in for biopsy.

    I also read that if vaginal dysplasia is a concern along with cervical, laser ablation is often used, so your doc probably did best for the situation. I guess some doctors don’t give out much information on diagnosis/treatments, because they don’t want to “confuse” or overwhelm the patient. So they only tell you enough to know for the moment, which IMO sucks. Just because I didn’t go to med school, it doesn’t mean I can’t learn about my condition. Duh.

    My doctors pretty much tells all; I ask her to use exact terms also, instead of the laymen language. I can always look something up if terminology puzzles me, later on.

    I already mentioned before that I actually went through a “beginning colposcopist guide” before my LEEP, so I can visualize each step, and learn of all possible outcomes No joke. I told my MD and the nurses I read so much I feel like I could actually perform it; just to crack them up. So they were confident to describe each step without having me to freak out.

    So I encourage you to read as much as you can; there is some controversial stuff you will find, but it’s best to have all the opinions. It’s great my doctor knows what’s going on with me, but I’d like to know that also As far as smoking, if you just put in “smoking and cervical dysplasia” in Google, there’s quiet a bit.

    Best of luck again,

    N

     
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