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  • Repeated Colposcopies

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    Old 11-15-2008, 04:35 PM   #1
    perk30
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    Repeated Colposcopies

    Hi,

    About 3 years ago, I had an atypical pap. The results came back as CIN and mild dysplasia. I had a colposcopy that came back as moderate dysplasia and I then had a LEEP done. I had 1 or 2 normal pap's after that, but my last 2 have come back atypical. I had another colposcopy done and have had 2 other atypical pap's since. My ob/gyn is now recommending a 3rd colposcopy! It's driving me crazy as I don't know why my pap's keep coming back atypical. I have had the HPV test done 3 times and it has been negative. Has anyone else had this experience? Any feedback is great!

    Thanks,

    Lisa

     
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    Old 11-15-2008, 05:45 PM   #2
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    Re: Repeated Colposcopies

    Has your doctor done an ECC when she/he has done the colposcopy? It is the only nonsurgical way to sample the tissue in the upper 2/3 of the cervix. You might ask your doctor if that is an appropriate test for you.

     
    Old 11-15-2008, 09:20 PM   #3
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    Re: Repeated Colposcopies

    I will check with my doctor. I do remember them doing some sort of test where they took a biopsy of some tissue further up in the cervix and it came back okay. Could that be the ECC test you are speaking of? Thanks for responding to my post!

    Lisa

     
    Old 11-16-2008, 07:45 AM   #4
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    Re: Repeated Colposcopies

    Lisa, it is possible that the scraping was the ECC. Mine hurt. I shot up off the table, but the pain was gone within a minute (she scraped for maybe 5-10 seconds.

     
    Old 11-17-2008, 08:18 AM   #5
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    Re: Repeated Colposcopies

    Thanks for the information. I will check with my doctor.

    Lisa

     
    Old 11-17-2008, 10:17 AM   #6
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    Re: Repeated Colposcopies

    Severe dysplasia and carcinoma-in-situ are both being placed in the category of CIN III. Mild dysplasia is called CIN I and moderate dysplasia is called CIN II.

    Cervical dysplasia should be considered to be pre-cancerous, but not cancer. Statistically, mild dysplasia is more likely to go away without any treatment than severe dysplasia, which has a higher probability of becoming invasive cancer over time if not treated. I was diagnosed with mild dysplasia in 1985 which was then called "a 2" and , as often happens, it reverted to a "1" by itself. No one ever told me it would probably revert to a one; I found out about that later following the doctor's suggestion of a hysterectomy which I ignored. So "check with" your dr. and find out if these have been
    CIN I, CIN II OR CIN III'S.

     
    Old 11-18-2008, 03:21 AM   #7
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    Re: Repeated Colposcopies

    Hi. I've just had a colposcopy done last week as my smear came back with a CINIII. I'd never heard of this before? All my smears have come back normal before this one and my last smear was 3 years go, as that is the normal time to have them, every 3 years here. But I worry how longit's been at stage 3?? Am waiting for my results from the biopsy the doc took last week, have another week to wait. He said before he even did the biopsy that I would need a cone biopsy. Have read up on that and I am fine with it, but just concerned why I have gone from a normal clear reading to CINIII in 3 years??! Hate the waiting till next week and really worried. Is there a worse result than that from a smear?

     
    Old 11-18-2008, 06:26 AM   #8
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    Re: Repeated Colposcopies

    Dysplasia can be low grade or high grade. CIN I - CIN III. The risk of low-grade dysplasia transforming into cancer is low.

    Carcinoma in situ is synonymous with high-grade dysplasia in most organs. (CIN III). The risk of transforming into cancer is high.

    Invasive carcinoma, commonly called cancer, is the final step in this sequence. It is a disease that, when left untreated, will invade the host (hence its name) and may be lethal.

     
    Old 11-18-2008, 06:30 AM   #9
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    Re: Repeated Colposcopies

    A doctor can only guess at how long it's been at this stage. The more experience they've had the closer the guess can be correct. Three years is a long time. Also,
    your last pap could have been a false negative. That happens more than they want us to know. We're dealing with human error here and a lot of smears must be read daily.

     
    Old 11-19-2008, 03:16 AM   #10
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    Re: Repeated Colposcopies

    thanks for the info! Have an appointment tonight for results as they came back today so that's good.. I haven't had any symptoms at all like bleeding etc. that people say you would have? so who knows how long it's been at stage 3 I just want the cone done straight away, hopefully will be next week or even this week. In UK womens smears are done 3 - 5 years! My friend had hers 5 years ago.. quite worrying. I had a smear 2-3 years ago seem to remember as an extra one, when I saw a gyno re. thrush infections and it came back normal too.

     
    Old 11-20-2008, 04:43 PM   #11
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    Re: Repeated Colposcopies

    Yes, I have and I even had the stage 0 cancer cells. I have major issues and still continue to have them and my last procedure was back in June! I am not even sure what to do. I am about to go see yet another doctor for another opinion. Good Luck

     
    Old 11-20-2008, 06:36 PM   #12
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    Re: Repeated Colposcopies

    Beverly, I could have sworn I replied to this last night. It must not have posted. I was having computer/internet problems.

    Anyway, how did your appointment go? I'm curious.

     
    Old 11-21-2008, 04:27 AM   #13
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    Re: Repeated Colposcopies

    Hi. Doc/Onc specialist was not concerned at all, he said results were good and they came back as pre-cancerous only. He said my cervix is quite big, wider than the normal size, and that the abnormal cells are covering all of it and I require all the top surface removed via cone biopsy (up to half my cervix removed) and he has to check further up too (presume that is normal procedure), and he said he will be looking in the womb too with camera (hysteroscopy) as I have had heavier periods than normal recently for first few days, (but had an internal scan and that came back normal just small fibroids). He is doing the cone on 5th Dec and said that is normally all that is needed, but that sometimes it comes back and so procedure repeated. Feel bit better as he said it has not become invasive. But obviously will feel better after the op and have the smear which is 4 weeks after etc. etc.

     
    Old 11-21-2008, 07:22 PM   #14
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    Re: Repeated Colposcopies

    Beverly, I'm glad you got a lot of answers and options from the gyn/onc. While I didn't like the reason I had to go to a gyn/onc, I was really pleased with mine's knowledge and experience.

    So your cone is schedule for Dec 5th? Let us know how you are doing, ok? (((hugs)))

     
    Old 11-26-2008, 04:17 AM   #15
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    Unhappy Re: Repeated Colposcopies

    thanks for the ((hugs))! Will keep you all posted. Very nervous, as have the feeling (they may not admit it to me) that sometimes they do the cone and it comes back with a more serious result than the original biopsy? but maybe I'm wrong? He was really confident that all will be ok. Just feel sick about it, am worried I may get my period just before the scheduled op (which is now sat 6th Dec), it's due week after but cos of the stress It may come before, am getting a pill to delay it from the doctors just in case.

     
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