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Waiting is hard!


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Old 02-24-2009, 07:37 AM   #1
HoosierMommy
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Question Waiting is hard!

I am so glad to have found this forum. I searched Google and the first few forums seemed nearly abandoned, so I thought they may be a thing of the past until I found this one which looks to be very active!

I will try to be somewhat brief with my story...

Mom had breast cancer at about age 50, then uterine cancer at 62 (just last year). She is a very strong woman and once again cancer free.

I had a large intramural fibroid that was removed by myomectomy about 6 years ago. Benign as they almost always are thank goodness. Also had bladder prolapse, but could not have that fixed with the myomectomy. Had dealt with it okay, so was just waiting. I had two children prior to the myomectomy and one after via c-section. Again, she did not want to fix my bladder at the same time with too much risk for infection.

Mom's uterine cancer found last year, believe it or not, started in a fibroid.

Lost my insurance about a year and a half ago, when I lost my job. I had not been good with keeping up my my annual GYN exams because I was constantly stressed at work and did not feel that I could afford to take the time off. Always more work than I could keep up with. Kind of glad I did lose it now, but the lack of insurance made it necessary for me to wait longer for the GYN.

Started having symptoms that I felt were probably another fibroid. Abnormal beeding and very painful periods. Uncomfortable intercourse with bleeding after quite and now almost always.

Last summer I found a lump in my breast and with my mom's cancer history decided to try to see what options were available to women without insurance and found BCCP, which is Indiana's breast and cervical cancer program. I was able to get a free exam and then with that being "abnormal" got a free diagnostic mammo and ultrasound. Thankfully negative, but I am still having pain in this area under my armpit, which I am told is the tail of the breast.

Finally got insurance again and went to the GYN last week. Scheduled an ultrasound due to the symptoms. Did that first, then a visit with my DR. Ultrasound showed no fibroid, but that my endometrium was thick. She said this should not be too alarming. She did a breast exam and did concur that it felt like a non-cancerous lump. She then went on to do a pelvic exam and pap smear, but I got a troubling "oh" when she took a look. She said that I have pretty severe prolapse (which explains the feeling that I have something pulling at my insides from vagina). She said that she wanted to get a sample of my endometrium. She had to use a pessary to do the exam. She said that my cervix bled just from inserting the speculum. She said she needed to do a biopsy of cervix. She did not say what kind and I had not educated myself to this kind of thing before the visit, so I didn't even know to ask. I was expecting a fibroid! Anyway, she actually took two samples from my cervix. She was very kind and did complement me on handling the pain so well. After the exam she said that I really might want to consider a hysterectomy due to the extent of my prolapse (bladder, uterus and rectum). She said that we needed to schedule another visit in two weeks to discuss the results of the biopsy, which she expected to be okay and at that time we would schedule the surgery if I decided to do that.

I did not hesitate to agree to the surgery. I don't want more children after 3 and at my age. I will be happy to not have any worries anymore. But now I am a little worried about her seeing the need for the biopsy and that she would not schedule the surgery until the biopsy results came back.

It just seems like from the posts I have read that most biopsies are scheduled after a positive pap smear. I am just alarmed at the fact that she jumped right into doing a biopsy then and there and that we have to come back for a visit to get the results. If she really is expecting it to be okay, why can't they just call me?

After the breast lump scare, I really wasn't prepared for this. Why couldn't it just be another fibroid?!

I read somewhere that uterine prolapse can cause the cervix to stick to tissue in the vagina and cause sores. Can these sores turn cancerous? Does anyone here with cervical cancer also have a history of grade 2 or 3 prolapse? My prolapse is grade 2. Grade 3 means you have organs coming out of the opening of your vagina! Now that is scary in itself!

I hope to hear from someone with a similar story. I don't go back for another 9 days!!! Waiting is so hard!!!

 
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Old 02-24-2009, 07:51 AM   #2
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Re: Waiting is hard!

I can't answer a lot of your questions but *hugs*.

I do know that Drs will do a biopsy if they are prepared for it when they do the initial pelvic exam. This is really nothing out of the ordinary if the Dr. considers it necessary. The waiting is probably the worst. I know with my initial biopsy results I was told 7-10 days. I had a follow up scheduled two weeks after the colpo/bio anyway and as the date got closer I was an absolute mess.

I would recommend finding out as much as you can about the surgery. What to expect during and after. I know I've read quite a bit regarding a full hyst (there are actually several ways to perform the surgery) and what the recovery times/outcomes are of each. Try to learn EVERYTHING you can about what the long term recovery is though - getting an organ removed (even though it is "retired") will change things.

Also note that a pelvic exam is recommended for women who have had a hyst. Abnormalities can still show up.

Also if you HAVE questions about what the Dr did - you shouldn't hesitate to call the office and find out all the details. Knowledge is half the battle (scaring ourselves out of our mind is about 40% - the other 10% is reserved for being wild women).

Sorry I couldn't be more help but *HUGS* - best I can offer is a hug and some words of encouragement.

Last edited by luvbug412; 02-24-2009 at 08:20 AM.

 
Old 02-24-2009, 08:09 AM   #3
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Re: Waiting is hard!

Wow, I am so sorry for all you are going through! I completely agree; waiting is awful!

I'm sorry that my story isn't similar to yours at all. I know nothing about fibroids or prolapse.

They usually do biopsies after an abnormal pap, but it doesn't seem that odd to me that your gyno would have done them then. When your cervix bleeds it can me a sign of abnormalities, so it makes sense me that she would just take biopsies then. Otherwise, you would have to wait for the pap results, then you might have to come back again to have a biopsy, and then wait again.

Like I said, I know nothing about prolapse, but from what I've heard, cervix can get sensitive and bleed for a bunch of reasons. It wouldn't surprise me if the prolapse was irritating your cervix and that caused the bleeding.

I think your doctor saw something of concern and wants to make sure treatment is given if needed. Sounds like you have a good doc!

 
Old 02-24-2009, 08:14 AM   #4
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Re: Waiting is hard!

Okay, I've never heard of any link between cervical cancer and prolapse, so I did some googling and came accross this abstract:

It says:
[deleted]

Basically what that says to me is that your doctor should do a biopsy to rule out cervical cancer, but that chance of that is rare (1.36%). That chance that a person with a prolapse has cervicitis (basically an inflammation of the cervix that can be caused by many things) is really good (88.28%).

So, I'm sure your gyno wants to rule out cervical cancer, but it would be much more likely that your bleeding was just cause by your cervix being irritated.

Hope that helps.

And luvbug is right! Nothing is stopping you from calling up your gyno's office and asking her to tell you why she did a biopsy! She's really the one to ask.

Last edited by Mod-S4; 03-07-2009 at 12:02 AM. Reason: This board is for your own writing only, please do not paste text from other sources.

 
Old 02-24-2009, 08:22 AM   #5
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Re: Waiting is hard!

Thanks so much for the reply. Encouragement and hugs are always good! I hate to show anyone around me that I am scared. It seems I am always expected to be the tough one and I don't want them to be as scared as I am anyway. My husband suffers from anxiety, so turning to him is completely out of the question. Obviously my mom has been through enough and I don't want her worrying either.

I will do as you suggest and read a lot about hysterectomy. Focusing on dealing with the prolapse may make it easier to not think about the cervical biopsy.

I may also call the office and speak to a nurse. I just really expect them to want put my mind at ease and not really tell me if my DR really suspects cancer. So I don't think their encouragement will really help.

I am still hoping to hear from anyone with prolapse that also had cervical bleeding. I am not finding much info on this.

Thanks again so much for taking time for me!

 
Old 02-24-2009, 09:11 AM   #6
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Re: Waiting is hard!

This is encouraging! I am so glad you found that. It seemed every time I googled cervical bleeding, it came up with cancer info. That really scared me! I do feel much better. I had not ever heard of cervicitis. The family history of cancer still makes me feel like chances are higher for me than that, but again, I am much more encouraged now. Thanks so much!!!!

Last edited by Mod-S4; 03-07-2009 at 12:03 AM. Reason: Quote removed.

 
Old 02-24-2009, 09:41 AM   #7
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Re: Waiting is hard!

Cervicitis isn't really a disease in itself . . . it basically means your cervix is irritated. Cervicitis can be a result of cervical cancer for sure, but it could be from an infection of anything else that could irritate your cervix.

I think what that study is showing is that the chances of your bleeding being caused from irritation from the prolapse are very high and the chances of it being from cervical cancer are very low.

So, yes, very encouraging!

 
Old 02-24-2009, 07:25 PM   #8
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Re: Waiting is hard!

HoosierMommy, these ladies have give you great advice. There can be many reasons for your cervix to bleed, and it looks like Lily has found some good information out prolapse and cervicitis being connected. Regardless of the cause, it was very wise of your doctor to biopsy some of your cervix to determine WHY it is so red, inflammed, and bleeding.

The waiting IS difficult. Like has been mentioned, you can call before the follow up appointment to get the results. I usually call after 4 or 5 working days. They usually have the results back by then. If they aren't in, I say, "Well, then I want to let you know that I plan to call once a day until they are back in. Thank you." Then I *do* call once a day. I've never had an office complain about me calling (as long as it is once a day and I am polite) (ok, I've never had an office complain - because I've been polite and only called once/day).

I don't have (and didn't have) prolapse, so I can't give you any direct information about that. I would like to say that before you schedule a hyst with repair work (front and back - what is that called? AP and something?) that you look into seeing a specialist for bladder repair and bowel prolapse.

Good luck and let us know how you are doing!

 
Old 02-24-2009, 08:02 PM   #9
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Re: Waiting is hard!

I had the same results when I googled post coital bleeding! Scary huh!. I was in the same boat last December with constant bleeding after sex and it was from an infection (BV) kinda like a yeast infection but from bacteria rather than a fungus like yeast. There is a very high likelihood that your cervix being prolapsed and being easier to be poked by your husbands bits during fun time or just by moving could cause the bleeding too!.

I just thought I'd share that with you.

Welcome to the board BTW

Jess~

PS! I am also having a hysterectomy because of cervical issues

Quote:
Originally Posted by HoosierMommy View Post
This is encouraging! I am so glad you found that. It seemed every time I googled cervical bleeding, it came up with cancer info. That really scared me! I do feel much better. I had not ever heard of cervicitis. The family history of cancer still makes me feel like chances are higher for me than that, but again, I am much more encouraged now. Thanks so much!!!!

Last edited by JessicainCanada; 02-24-2009 at 08:04 PM. Reason: Content

 
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