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  • laser vaporization few months before and now dysplasia is back !

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    Old 03-16-2009, 07:05 AM   #1
    gina17042
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    laser vaporization few months before and now dysplasia is back !

    First of all i want to say hello to all of u !
    I am new here and sacred ..., really scared !I will really apreciate if somebody have a ideea about what happend with my body !
    In August 2008 i had a laser vaporization for cin 1-cin 2 and a dilatation and curettage (this they make to be sure i dont have dysplasia deeper in my uterus or something like that).After the surgery i had a apoinment with my oncologyst in septemer and she make me a coloscopy and a pap smear, the coloscopy was normal and the pap smear comeback normal and also the hpv test was negativ, now 6 months later my pap smear is abnormal 3D (cin 1-cin 2)

    On 25 march i have the apoinmnet with my oncologyst until then i dont have any answer and honestly from the day i received the later i can not sleep anymore ...!
    How is possible 6 months before to have a normal pap and to be hpv negativ and now to have again cin1-cin 2 ?
    And now what will happend with me, what kind of surgery they will make me again ?I want to have children in the future and i am scared i will not be capable enymore !
    I must say i dont change my partner in this time, i have the some partner from 3 years !

    Thank you in advance for all of u they can help me and hope u can understand something from my bad english !

     
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    Old 03-16-2009, 07:45 AM   #2
    zoe96
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    Re: laser vaporization few months before and now dysplasia is back !

    Hi sweetie --

    Sorry for the circumstances that brought you here, but welcome! We will all try to help if we can.

    Firstly, CIN1-2 is a LONG way from cancer, so no need to panic just yet! I don't know much about laser vaporization, except that it is usually done with the dysplasia is mild. The next "more serious" step is to have a LEEP or a cone, but for CIN1-2 I would think it would probably be a LEEP, which is where they use a hot wire to take a piece of the cervix so they can examine exactly what is going on. This way they get a bigger piece of tissue, and can hopefully verify that they got all the bad cells. Also, the LEEP cauterizes (burns) the tissue at the edge to help seal it off, keep it from bleeding, but also destroys any lingering bad cells that may be on the edge. It sounds very serious, but it's a quite manageable procedure. There are lots of ladies here who have had a LEEP, so they can give you better advice on that.

    Unfortunately, no one really has an answer for why some people's CIN keeps coming back and other's don't. Very frustrating, I know!

    The only other thing I'd like to add is that care in Germany may be a little different than the care in the US or UK. For most of us in the US, an oncologist won't see us unless you are more advanced than the stage that you are now. So, with CIN1-2, you are lucky to have access to an oncologist! That's a good thing, and you will surely get excellent care from a specialist.

    And don't worry about your English; it is just fine!!

    Hope some of this helps you.

    ((hugs))

     
    Old 03-16-2009, 08:20 AM   #3
    gina17042
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    Re: laser vaporization few months before and now dysplasia is back !

    Quote:
    Originally Posted by zoe96 View Post
    Hi sweetie --

    Sorry for the circumstances that brought you here, but welcome! We will all try to help if we can.

    Firstly, CIN1-2 is a LONG way from cancer, so no need to panic just yet! I don't know much about laser vaporization, except that it is usually done with the dysplasia is mild. The next "more serious" step is to have a LEEP or a cone, but for CIN1-2 I would think it would probably be a LEEP, which is where they use a hot wire to take a piece of the cervix so they can examine exactly what is going on. This way they get a bigger piece of tissue, and can hopefully verify that they got all the bad cells. Also, the LEEP cauterizes (burns) the tissue at the edge to help seal it off, keep it from bleeding, but also destroys any lingering bad cells that may be on the edge. It sounds very serious, but it's a quite manageable procedure. There are lots of ladies here who have had a LEEP, so they can give you better advice on that.

    Unfortunately, no one really has an answer for why some people's CIN keeps coming back and other's don't. Very frustrating, I know!

    The only other thing I'd like to add is that care in Germany may be a little different than the care in the US or UK. For most of us in the US, an oncologist won't see us unless you are more advanced than the stage that you are now. So, with CIN1-2, you are lucky to have access to an oncologist! That's a good thing, and you will surely get excellent care from a specialist.

    And don't worry about your English; it is just fine!!

    Hope some of this helps you.

    ((hugs))
    Thank you very muck for u reply !I feel better now to know the next step is a leep or a conisation and not a hysterectomy (this was in my mind).About the care here i am a private patient and because of this i can choose where to go !I choose the oncologyst because my regular gynecolog(which i dont trust enymore)was tell me last year i need a conization which was to agressive for that time.
    I still hope the pap smear from my gynecologist is wrong and maybe next week my oncologyst will tell me i dont have nothing !
    Now i stay and i think maybe my oncologyst failed and dont burn all the abnormal cells with the laser.., and because of this my dysplasia is back !
    I start to get crazy because i think maybe was better i dont make the surgery last year because anyway now i am in the some point with the same grad of dysplasia !
    Next week i also have a apoinment with a homeopatic doctor, i want to try another alternative maybe i have luck !

    THanks again for u reply and wish u the best !#

    Kisses and hugs Gina

     
    Old 03-16-2009, 10:56 AM   #4
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    Re: laser vaporization few months before and now dysplasia is back !

    Hi Gina! I am sad to hear about your test results. I am really glad that you are going to a gynecologist, though. That is good!

    Zoe gave you some good information. The doctor might do another pinch (or punch) biopsy of the cervix, or he (or she) might do more laser treatment. The next step, after all of that might be a LEEP (sometimes called a LLETZ). Whatever the next step is, be sure your doctor knows that you want to have children.

    I suggest you write a list of questions and take it to the doctor's office next time you go. This way you will remember all of your questions. Also, leave space to write your answers.

    I do not know how old you are, but I suspect you are fairly young (younger than 30 years). If that is true, then it is possible that your body can fight off the virus (HPV) so it doesn't cause more damage.

    Write back and let us know how you are doing! (((hugs)))

     
    Old 03-16-2009, 11:47 AM   #5
    gina17042
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    Re: laser vaporization few months before and now dysplasia is back !

    Hi Pickel Eyes and Thanks for u reply i really apreciatted !
    I have 28 years old, actually this scared me..if now when i am young my dysplasia recurr or ocurr(i am not sure how is corect)what will happend in the future ...
    I take prenatal vitamins because of the high doses of B9, i dring 4 cups of green tea per day , i take echinaceea, i eat a lot of fruits , i dont eat fat ...and seems dont was enouth to keep dysplasia away !
    If somebody know more about how i can fight with dysplasia i will really apreciated any advice , because i really dont trust only in surgery anymore, and i am scared i will ones again make the surgery but dysplasia will be back!
    I read somewhere about DIM, a substance from brocolli which can help to reverse dysplasia , somebody try this..!?

     
    Old 03-16-2009, 04:36 PM   #6
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    Re: laser vaporization few months before and now dysplasia is back !

    Gina, I am so sorry. I have some questions the answers to which might shed light on this:

    (1) Did you have dysplasia on the ectocervix, endocervix, or both?

    (2) Did your doctor vaporize the ENTIRE transformation zone? Simply vaporizing the dysplasia is not sufficient, since hpv remains in normal tissue. The entire TZ must be vaporized to a depth of 7-8mm.

    (3) How many weeks elapsed between your August laser and your September colpo/bx/hpv test?

    (4) Which hpv test did you have? The Digene HC II is not particularly sensitive. When the hpv viral load falls below a certain threshold, the hpv test will show negative, even though hpv really is present.

    (5) Finally, although very unlikely, perhaps there is some remaining dysplasia but your hpv truly is "cleared." I'm not familiar with the grading system you mention, what does "3D" mean? Have you had colposcopy to confirm CIN 1-2?

    (6) You might ask for another laser vaporization. Assuming the dysplasia is CIN 1-2, I would, if I were you, instead of LEEP or conization. You are so lucky that a doctor close by offers it.

    I am getting really nervous about my situation as I had a similar procedure, I had extensive CIN 1 on the ectocervix and CIN 1 in the canal, but my doctor would only laser up to 3mm (which is not nearly enough). I recently went to my four-month followup and I am too scared to call in for results.

     
    Old 03-16-2009, 04:58 PM   #7
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    Re: laser vaporization few months before and now dysplasia is back !

    Gina, just thought of one more factor. If you've had unprotected sex with the same partner since your laser, assuming he is the one who gave you the hpv, you might be reinfecting yourself. I'm not a doctor, and I know most doctors will say reinfection is impossible, but I disagree, and there is at least one study showing that condoms increase the rate of viral clearance. I would think that in cases where cervical surgery has just taken place and the body is trying to clear the hpv, either abstinence or sex with latex condoms is very helpful. That is just a layperson's guess, though. I have not had sex due to lack of interest and concern for my genital health, and don't plan to again until I am married, if that ever happens. This hpv/dysplasia business has really opened my eyes. As someone else on an hpv/dysplasia board said, this situation kind of makes you want to wear a chastity belt for the rest of your life! >

     
    Old 03-16-2009, 07:58 PM   #8
    gina17042
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    Re: laser vaporization few months before and now dysplasia is back !

    Hi Brieaukirsch and thx for u reply !
    I am really sorry to hear about u situation, i know how u feel waiting the result !I hope evrything will be good for u and the 3 mm was enough !Wish u the best !
    Now to answer to u questions:
    1.I had dysplasia on ectocervix,but they make me a dilatation and curettage in the some time they make the laser because my oncologyst was want to be sure my dysplasia is not in endocervix also.The result from the dilatation and curetage comeback normal, not dysplasia present in the endocervix,

    2.I dont know the answer to this questions, i dont know how much mm she burn .., but i hope she doit right !

    3.i had a apoinment with her 6 weeks later after my surgery, and that time she make the pap smear, a colposcopy and the hpv test.All the result was good, normal pap, normal colpo, hpv negativ.
    4.I dont have any ideea about what kind of hpv test they do, i have now both of the test in my face but nowhere right what kind of hpv test they are.
    5. 3 D pap smear here means easy to moderate dysplasia(usually is wait and watch but i dont know how will be in my case this time).I dont have a colposcopy to confirm the pap smear result(the pap smear i makeit to my regular gynecologist), i will do it next week with my oncologyst because my regular gynecologist he dont make colpo.
    6.And yes i had unprotected sex with my boy friend.I had only one type of hpv which was 58 and i was suppose if me i get rid of him , my boy friend for sure get rid also, my boy friend have a very good imunity but how knows ..., now i am scared to dont have more then one type of hpv which was sleeping before and now wakeup(sorry i dont know the words , hope u will understand).
    I can not wait until my meeting with my oncologyst to make me a colpo to see how the thinks are, me i really hope in one way the pap smear to be fals positive !

    Hugs Gina

     
    Old 03-17-2009, 06:56 PM   #9
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    Re: laser vaporization few months before and now dysplasia is back !

    Gina, sounds like you had the Roche Amplicor. Good news: 58 is not as aggressive as some of the other strains, I want to say it is an intermediate risk type, but don't quote me on that. 16 & 18 are the really bad ones, followed by 31, 33, and I think two of the 40-somethings. This doesn't mean you're out of the woods...it just means that left untreated, the potential for cancer is FAR lower. By the way...58 seems to be much more prevalent in Europe...

    It sounds like your gyn was VERY thorough. I can't imagine convincing a doctor to do a D&C on me even though I had confirmed canal disease on ECC. I am so impressed by the way some European countries handle dysplasia and the tests (both on market and in production) they have available.

    Often times, hpv issues are unrelated to general immunity. That is not to say a terrible immune system won't adversely impact an hpv/dysplasia situation (it probably will), but factors like HLA type (which is responsible for how your body sees foreign invaders to make antigens to) are more important. Your genetic code, more than your overall immunity, determine how you will handle hpv. There is no set formula. It's totally possible to be blessed with great health AND develop cancer...seriously...because in a way, all cancers are genetic (your genetic predisposition towards cancer). Oh, and some oncogenic hpvs, especially hpv 16, hides from the immune system.

    Before I get way off base, I think you should just have the pap retested for the specific strain of hpv...which will tell you if it's persistence or reactivation/reinfection...and which may help aid in your decision about treatment, if and when.

    I almost want to cancel my colpo because I really don't want any more bad news. I debated calling in for my results again this afternoon but I just couldn't. Thanks for your support!

     
    Old 03-17-2009, 07:53 PM   #10
    gina17042
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    Re: laser vaporization few months before and now dysplasia is back !

    Hi Brieaukirsch and thx for u answers i really apreciated !
    I am so sorry to hear u are in so much stress !I know how u feel, i feel the some , i feel i can not take more bad news or a new surgery but we must be strong and have courage !My personal opinion is u should call for u result, because if u stay in uncertainty is very stresfull !If the result is good u can be happy and celebrate !
    I really hope u result to be good and u to feel better !
    I have a apoinment with a homeopatic doctor tomorrow, i want to try evrythink is possible to win the fight with this hpv !
    Wish u best of luck and only good news !
    Hugs Gina

     
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