It appears you have not yet Signed Up with our community. To Sign Up for free, please click here....



Cancer: Cervical & Ovarian Message Board

  • Adenocarcinoma in situ: waiting on cone biopsy results

  • Post New Thread   Closed Thread
    Thread Tools Search this Thread
    Old 07-29-2012, 07:55 PM   #1
    sunbird1
    Junior Member
    (female)
     
    sunbird1's Avatar
     
    Join Date: Jul 2012
    Location: New Zealand
    Posts: 10
    sunbird1 HB User
    Adenocarcinoma in situ: waiting on cone biopsy results

    hi, I am new to this forum Bit mindblowing that I now belong to a "C" forum at all....

    I guess I am looking for someone to hold my hand while I wait for my cone biopsy result from 4 days ago, I am walking around with the black cloud of doom hanging over me while I wait. It is a very lonely feeling as I tend to downplay everything to the people I have to tell, I want them not to worry but yet I am sick with it myself and trying very hard not to be. I am a SAHM so I have all day to fill up with worry while the kids are at school.

    My story is that I am 39yrs, have 3 kids and have been diligent with all my smears. My last smear was 3yrs ago, the first time I had had this length gap as my smears were always clear. I had a smear in April which came back "atypical squamous cells", mild changes but I have an OTT doctor who is fantastic, who referred me for colposcopy instead of the more usual "re-test in 4-6mths" that this result would normally require.

    My gyn didn't think I needed a colposcopy but did it anyway (I was there, it was covered under private health insurance, why not?). There were no visible lesions, nothing visually abnormal but she must have done an ECC (?) as the smear from the colposcopy came back as being a high grade lesion of the glandular cells, suggestive of AIS. The gyn was confused as to why the original smear only showed mild changes of the squamous cells so she sent the first smear back for a 2nd opinion and it turns out the pathologist completely MISREAD it and it was also AIS!!

    So I am now waiting for my results, knowing that it could easily go either way. Am quietly freaking out. Originally my gut instinct was to push for hysterectomy (I don't need it anymore, right?), but since reading that some women don't enjoy sex afterwards and other side effect - I am not so keen anymore.

    The other problem I have is that the surgery will be massively high risk for me as I had blood clots in my lungs when I was 25 (very lucky to survive!) and surgery is a big risk factor for this to happen again.

    *sigh* Everyone says "it'll be fine' and I have to smile and not burst their bubble!

     
    Sponsors Lightbulb
       
    Old 07-30-2012, 03:36 AM   #2
    completed
    Junior Member
    (female)
     
    completed's Avatar
     
    Join Date: Jul 2012
    Location: canada
    Posts: 36
    completed HB User
    Re: Adenocarcinoma in situ : waiting on cone biopsy results

    I totally understand what you are saying about not wanting to burst peoples bubble. These waits are the longest of our lives. I had my pap on june 1st and haven't even had my colposcopy or ecc yet. There are days when feel like i am going insane and no one is noticing. It's okay to cry and it's okay to worry. It's definitely normal. Staying busy doesn't always make it go away but you have to think positive. Whatever it is you will handle it. There are good days and bad but kids do help. I find that nothing makes me feel better than spending time with my boys. Take comfort in your kids.

    Did they say how long it will be before you get your results?

     
    Old 07-30-2012, 12:59 PM   #3
    sunbird1
    Junior Member
    (female)
     
    sunbird1's Avatar
     
    Join Date: Jul 2012
    Location: New Zealand
    Posts: 10
    sunbird1 HB User
    Re: Adenocarcinoma in situ : waiting on cone biopsy results

    I should have results by Friday (its Tues morning here). Tho I have a meeting with the school on Friday to discuss my oldest boy which I always find stressful, I really hope I don't get bad news before I go to that (or y'know, bad news at all )

    Well my distraction for today is going to get my wisdom tooth out
    - the only good part of that is that I get some valium

    I wake up each morning thinking about abnormal cells and hysterectomy, I think the reason my tooth is sore is because I grind my teeth every night from the stress!

    When is your colposcopy? What were your pap results?

    Last edited by sunbird1; 07-30-2012 at 01:00 PM.

     
    Old 07-31-2012, 05:08 AM   #4
    completed
    Junior Member
    (female)
     
    completed's Avatar
     
    Join Date: Jul 2012
    Location: canada
    Posts: 36
    completed HB User
    Re: Adenocarcinoma in situ: waiting on cone biopsy results

    Friday will feel like forever away. I am having an ultrasound tomorrow and colonoscopy on thursday ans everyday seems like a lifetime so i get how hard it is. My colposcopy is on aug 8th. They also have to do an ecc. my results were lsil and agc. My thead is just a couple down.

    I went to my doctor yesterday and he gave me sleeping pills and tried to put me off work. I asked to stay at work but we have requested i only work nights. My place of employment is very good so that is all taken care of. At least that is a little less stress.

    As far as your son goes i know problems in school for your kids are always stressful but stay positive. Lots of kids struggle and grow up to be very successful. Schooling is geared to one type of kid and not ebery kid fits in that line. He will find something he is good at and go from there. Just have to remember as a parent encourage encourage encourage. Let your kid know he isn't alone and no.matter what you will love and be there for him.

    Let me know when you get your results back!

     
    Old 07-31-2012, 05:47 AM   #5
    completed
    Junior Member
    (female)
     
    completed's Avatar
     
    Join Date: Jul 2012
    Location: canada
    Posts: 36
    completed HB User
    Re: Adenocarcinoma in situ: waiting on cone biopsy results

    Friday will feel like forever away. I am having an ultrasound tomorrow and colonoscopy on thursday ans everyday seems like a lifetime so i get how hard it is. My colposcopy is on aug 8th. They also have to do an ecc. my results were lsil and agc. My thead is just a couple down.

    I went to my doctor yesterday and he gave me sleeping pills and tried to put me off work. I asked to stay at work but we have requested i only work nights. My place of employment is very good so that is all taken care of. At least that is a little less stress.

    As far as your son goes i know problems in school for your kids are always stressful but stay positive. Lots of kids struggle and grow up to be very successful. Schooling is geared to one type of kid and not ebery kid fits in that line. He will find something he is good at and go from there. Just have to remember as a parent encourage encourage encourage. Let your kid know he isn't alone and no.matter what you will love and be there for him.

    Let me know when you get your results back!

     
    Old 07-31-2012, 06:09 AM   #6
    Allanniah
    Junior Member
    (female)
     
    Allanniah's Avatar
     
    Join Date: Jul 2012
    Location: Adelaide South Australia
    Posts: 19
    Allanniah HB User
    Re: Adenocarcinoma in situ: waiting on cone biopsy results

    Good luck with your results.

    I'm nearing the end of my abysmal 8 week wait - my cone came back AIS with poor margins do I've had to wait to be fully healed up for a repeat colp+ecc+punch biopsy which is happening this Friday.

    I'm hoping to have my results by Wednesday next week - I'm all too familiar with the dark cloud that you're currently under.

    This is my second cone - and due to the size the last one I can have before it's virtually a trachelectomy but not nearly as neat. The first weeks of waiting we're hell - the last two haven't been as bad, but I'm sure the handful of days between Friday and results will seem like an eternity.

     
    The following 2 users give hugs of support to: Allanniah
    sally97 (08-01-2012),sunbird1 (07-31-2012)
    Old 07-31-2012, 01:33 PM   #7
    sunbird1
    Junior Member
    (female)
     
    sunbird1's Avatar
     
    Join Date: Jul 2012
    Location: New Zealand
    Posts: 10
    sunbird1 HB User
    Re: Adenocarcinoma in situ: waiting on cone biopsy results

    Allaniah - 8 weeks! That is such a long time to wait!! Seems unfair...

    Completed, I read your thread, you have been in limbo for a while now, must be very hard.

    After reading yr thread, now I feel like I want a colonoscopy too as my aunt also passed away very close in age to what I am now with CC. Hard to try and keep a lid on hyperchondria tho, I also am noticing other aches and muscle twitches and worrying that adenocarcinoma is everywhere and causing troubles but my rational brain tells me off. Some days it loses the argument tho and the crazy comes out

    It can be exhausting keeping it under control and being at home by myself most of the day makes it worse.

    I chickened out of getting my wisdom tooth out at the dentist yesterday (still had the vailum tho, so thats a bonus LOL). He has referred me to an oral surgeon so that is good, means I can be asleep for it. Teeth really make me anxious. I have a feeling tho that my pain in my jaw is from the general I had with the cone biopsy, they must have cranked my jaw open during the anaesthetic as it is starting to settle now.

     
    Old 07-31-2012, 02:35 PM   #8
    OH73
    Member
    (female)
     
    Join Date: May 2012
    Location: Bay County, FL
    Posts: 58
    OH73 HB UserOH73 HB User
    Re: Adenocarcinoma in situ: waiting on cone biopsy results

    Hi there ladies. So sorry to hear about the AIS results - I was right there with you a few weeks ago. The waiting for the cone results is the WORST! I called my gyn/onc's office every day starting at 7 days after the cone. (Hey, he said 7-10 days...) They were wonderful about it though and I finally got 'the' phone call from the doc on day 10. I honestly thought I was going to lose my mind waiting for the phone to ring. But I did my best to put on my happy face at work - I learned that the best place to let a few tears sneak out is when you're alone in the car. But no matter how you handle it - it's still going to wear you out. No matter how hard you try not to think about it, it's still there. And it sucks.

    My only advice it so learn what you can about it so you can ask your doc good questions, lean on those you love, and try to get your rest when you can. I only say that 'rest' part because since my cancer journey started, I've been running on about 4 hours of sleep a night. I finally gave in to napping when I can a week or 2 ago. It helps. Can't wait until after surgery when I can take my drugs and have a cancer-free sleep!

    Please come back and let us all know how the test results come back. It looks like there are quite a few of us going through the same thing, unfortunately.

    ~Samantha

    Last edited by OH73; 07-31-2012 at 02:36 PM.

     
    Old 07-31-2012, 03:36 PM   #9
    Allanniah
    Junior Member
    (female)
     
    Allanniah's Avatar
     
    Join Date: Jul 2012
    Location: Adelaide South Australia
    Posts: 19
    Allanniah HB User
    Re: Adenocarcinoma in situ: waiting on cone biopsy results

    Samantha - I know what you mean about sleep. I caved three weeks ago and went into my GP broke down(because i was compound overtired) and admitted I wasn't sleeping. If I did manage to drift off (normally not till 2:30am after lying awake for 4 hours, I'd wake up with a panic attack believing that my fiancée/cat/brother had died and I'd have to sneak up close to them to check they were breathing. (my 23year old brother lives with us while he tries to sort out a few issues in his life).

    Pills got me a few days of uninterrupted rest but I really don't want to be addicted (and I enjoy them enough for that to be a risk) so i only have them when completely necessary.

    Sunbird- I know what you mean about the raging hypochondria. You talk yourself into so many possibilities. I want a chest CT done fast! I was a smoker for over a decade and convinced myself it was in my lungs too.

    But it also has its down sides when you are aware you might be being a little bit of a hypo - I've been having constant, fairly mild to moderate abdo pain for the last 2 weeks with sudden sharp spikes when I'm sitting in my chair at work that take my breath away. I've been mentally calling myself a wuss, telling myself over and over that it's just psychosomatic - or even hyper awareness of the area - but with my appointment looking on Friday I wonder if there has been a serious problem that I've overlooked through beating myself up. Sending you all thoughts and prayers

    Amanda

     
    Old 08-02-2012, 05:14 AM   #10
    SandyMN
    Member
    (female)
     
    SandyMN's Avatar
     
    Join Date: Jul 2012
    Location: Wall MN USA
    Posts: 54
    SandyMN HB UserSandyMN HB UserSandyMN HB UserSandyMN HB User
    Re: Adenocarcinoma in situ: waiting on cone biopsy results

    Sunbird, it is hard to not stress about it! Thank god my sister and a couple of friends want to listen cause my hubby sure doesn't. So I feel like I stuff it all inside, too. I agree with samantha that the car is a good place for tears, pair a drive with a good song like Tim mcgraw's live like you were dying, and you are sure to have a good cathartic cry.

    allaniah, I feel the need to ask you about your sudden pains, as I have been having them too, but have been trying to tell myself that they are psychosomatic as well! They are almost always in the left side of my vagina which is on the same side that I have an enlarged, cystic ovary. I wonder if the ovary is getting bigger and pressing on a nerve?!

    All I can say is waiting sucks!

    Definetly let us know how everything goes with both of you! So many people stop posting before they get to the end of their diagnostic puzzle....it is a bummer.

    Sandy

     
    Old 08-02-2012, 03:43 PM   #11
    sunbird1
    Junior Member
    (female)
     
    sunbird1's Avatar
     
    Join Date: Jul 2012
    Location: New Zealand
    Posts: 10
    sunbird1 HB User
    Re: Adenocarcinoma in situ: waiting on cone biopsy results

    I hear you with the hubby in denial, have one here too. Not a lot of support really as he is busy trying to ignore it! I tried OH73's joke about not being able to do something because I have cancer.... got a stony faced "NO you don't." LOL, no sense of humour!

    Didn't really want to labour the point about what a carcinoma actually is tho, as again bubble bursters are just no fun...

    I have turned my phone off this morning cos I really don't want to get bad news before going to the meeting with the teacher. This teacher is LOVELY but she is prone to tears when she says nice things about my boy (she is a sweetheart), and I am a sympathetic cryer at the best of times! The Dean will be at the meeting too, so Reeeally don't want to burst into tears!

    Went to the gym today and had "what doesn't kill you makes you stronger" on my MP3 player and the first verse nearly had me in tears mid-run on the treadmill! Managed to suck it up by the chorus tho, phew. Not a good look at the gym!

    (am pretty pleased can run on the treadmill 7 days post cone biopsy tho, not sure if I should - but I can and I did, SO THERE doctors :P)

    UPDATE: My lovely doctor found me even tho I was hiding from her, with good news. It was adenocarcinoma in situ, but it was non invasive (not even a little bit) with clear superficial and deep margins. She postponed my appt with her for another 6mths for a followup colposcopy, ECC, and biopsy then.

    YAAY! I am definitely not psychic because I had money on it being bad news.

    Last edited by sunbird1; 08-02-2012 at 04:35 PM.

     
    Old 08-03-2012, 05:18 AM   #12
    SandyMN
    Member
    (female)
     
    SandyMN's Avatar
     
    Join Date: Jul 2012
    Location: Wall MN USA
    Posts: 54
    SandyMN HB UserSandyMN HB UserSandyMN HB UserSandyMN HB User
    Re: Adenocarcinoma in situ: waiting on cone biopsy results

    That is awesome! Now if you can just get it off of your mind for a while.

    and, by the way, who says women are the weaker sex! I find you all amazing and inspiring, how you take it all in stride, keep on going about your daily lives...

     
    Old 08-03-2012, 11:14 AM   #13
    OH73
    Member
    (female)
     
    Join Date: May 2012
    Location: Bay County, FL
    Posts: 58
    OH73 HB UserOH73 HB User
    Re: Adenocarcinoma in situ: waiting on cone biopsy results

    Yay Sunbird! So happy to hear you're good to go! Fantastic news. And wow - back to the gym 7 days post-cone? I was in agony at the 7 day point. But then again, my gyn/onc took a huge cone. Maybe that's the difference. Congrats again on the good news from the doctor, and thanks for coming back and posting the news. It's really nice to see good things on here.

     
    Old 08-03-2012, 02:43 PM   #14
    sunbird1
    Junior Member
    (female)
     
    sunbird1's Avatar
     
    Join Date: Jul 2012
    Location: New Zealand
    Posts: 10
    sunbird1 HB User
    Re: Adenocarcinoma in situ: waiting on cone biopsy results

    thanks The relief is HUGE, I feel like a weight has been lifted.

    Yeah, my specialist was a little surprised re: the gym I think. In all fairness my running is like most peoples fast walking LOL... slow jogging. She did tell me that I shouldn't have sex tho until after my period ie. not for another 2-3wk. I can jog with it but wouldn't want to touch it IYKWIM! It definitely sounds like yours was deeper than mine, ouchies!


    Will be thinking of you on the 8th OH73. I managed to weasel out of my hysterectomy but think it will be on the cards in the future because I will need to be watched closely, as the lesion was not a visible one on colposcopy. With my blood clotting stuff will hold off as long as I can tho!

    Hugs and huge thanks to everyone here for your support, its so nice to be able to talk about it when your family refuses to acknowledge it You guys are great

     
    Old 08-04-2012, 02:16 AM   #15
    Allanniah
    Junior Member
    (female)
     
    Allanniah's Avatar
     
    Join Date: Jul 2012
    Location: Adelaide South Australia
    Posts: 19
    Allanniah HB User
    Re: Adenocarcinoma in situ: waiting on cone biopsy results

    Quote:
    Originally Posted by Sandydvm View Post
    allaniah, I feel the need to ask you about your sudden pains, as I have been having them too, but have been trying to tell myself that they are psychosomatic as well! They are almost always in the left side of my vagina which is on the same side that I have an enlarged, cystic ovary. I wonder if the ovary is getting bigger and pressing on a nerve?!
    Hijacking sunbirds thread a little here ..... The pains got bad on Thursday so I went to my GP. He sent me into hospital. I had appendicitis. I had my appendix removed on Friday morning laproscopically - missing my appointment for follow up colp / biopsy.


    I'm home now, in a buggerly load of pain and trying not to focus on the fact that I now must wait until the 14th for my follow up- but still happy that it wasn't all in my head in a Strange way.

     
    The following user gives a hug of support to Allanniah:
    sunbird1 (08-04-2012)
    Closed Thread




    Thread Tools Search this Thread
    Search this Thread:

    Advanced Search

    Posting Rules
    You may not post new threads
    You may not post replies
    You may not post attachments
    You may not edit your posts

    BB code is On
    Smilies are On
    [IMG] code is Off
    HTML code is Off
    Trackbacks are Off
    Pingbacks are Off
    Refbacks are Off




    Sign Up Today!

    Ask our community of thousands of members your health questions, and learn from others experiences. Join the conversation!

    I want my free account

    All times are GMT -7. The time now is 10:32 PM.





    © 2022 MH Sub I, LLC dba Internet Brands. All rights reserved.
    Do not copy or redistribute in any form!