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  • Symptoms and Dr Frustration!

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    Old 08-08-2012, 11:15 PM   #1
    JJPNW's Avatar
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    Exclamation Symptoms and Dr Frustration!

    Hello all,
    I am 31 with two children. In 2007 I was diagnosed with cervical dysplasia, which was treated with LEEP and cryo. I had my second child in 2008 and had a tubal, and shortly after the dysplasia returned and I had a total hyst (leaving ovaries) in 2010.
    About 3 1/2 weeks ago, I started having strange symptoms. I began having menstrual type pain that would come and go in my left/ center pelvic region. I also began having urinary frequency and urgency. I went to my GP and was first treated for kidney stones, which I have a hx of. As the pain got worse, they thought it was possibly a UTI, or pyelonephritis. I did two rounds of Cipro. All my labs came back clean. Then they thought maybe I was having bladder spasms. They gave me pyridium and Valium. Nothing helped.
    The pain grew more intense and constant. It began radiating into my leg and lower back. I started breaking out (I have had perfect skin my entire life), and over the last week have lost over 10 lbs. My GP referred me for an ultrasound, which we were waiting on insurance approval for.
    Saturday night, the pain got so bad, I ended up in the ER, where I finally had an ultrasound (both abdominal and transv). They found a 3.4x3.7 inch mass on my left ovary. It did not specify anything else on the radiology report (I read it). My labs came back fine, except elevated WBC.
    Both my mom and aunt had uterine cancer, and another aunt had breast cancer. My GP ran a CA 125, which came back normal, but still referred me to the women's clinic today.
    I saw the doctor at the women's clinic today, who did nothing more than tell me to wait and see if it went away. She did not do another ultrasound (which my GP specifically requested), did not seem concerned about the fact that I have lost so much weight in such a short amount of time, and told me to take pain pills and deal with it.
    I do not want to just "take pain pills and deal with it." I am in pain. I am frustrated. I know that something is not right with my body.
    Should I be concerned? Should I push for more testing? Could my symptoms really be nothing to worry about??

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    Old 08-09-2012, 04:54 AM   #2
    SandyMN's Avatar
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    Re: Symptoms and Dr Frustration!

    Push for more testing! That is ridiculous that they don't look into your pain and elevated WBC count!

    Good luck!

    Old 08-17-2012, 12:46 AM   #3
    Sam460's Avatar
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    Location: Preston,Lancs,UK
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    Re: Symptoms and Dr Frustration!

    I'm a husband who cared for my wife diagnosed with ovarian cancer. that was successfully treated eight years ago. It was a dramatic extended time in our lives, with a number of factors paying a key role. 1.Discovery by accident through blood detected in urine, at an eye clinic doing pre tests for pressure in her eyes -Glaecoma. 2. Prompt action by our General Practitioner (doctor) 3. Specialist checkup -> scan . The operator called in the Specialist IMMEDIATELY having seen a suspected mass. 4. Decision to operate in three weeks -> pre op checks , then a discovery of verry low blood counts -> transfusion, complete tests operate. 5. Five days in hospital -> four days later case conference with wife & myself. 6. Immediate start on Chemo (before lab tests came back) 7. six chemo sessions. Then periodic checkups at first monthly>three monthly> six months> annual.
    The mark test on her blood pre operation was 3550 - huge , fortunately this then crashed and thereafter remained below the norm .
    Whilst we, my wife & I could never have beat the cancer alone. Constantly researching OC by this writer ensured , the right questions could be asked at every stage, we could force action if there appeared to be an unexplained problem. e.g. She was having to be repeated given blood transfusions because the blood counts were not returning adequately after chemo. Eventually after three failures to tackle the problem, the specialist was . himself quizzed (previously registrar & support nurse) - He then reduced the dose, which sorted out the problem. But had we not studied the drug advice, , that was different by the manufacturer to the actual treatment program ,we probably would have continued to put up with the setup. Yes! Chemo knocks
    you & the carer for six, but it completes the purging of the patient's system
    Hope this helps.

    Last edited by Administrator; 10-01-2012 at 06:50 AM.

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    hysterectomy, ovarian cancer, ovarian cyst, severe pain

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