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Old 10-29-2006, 06:27 AM   #1
Mom2ntn
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Starting something new

Well, after all my bad reactions to Oxaliplatin, we've opted to discontinue using it.

My question is, being a Stage 3a with only one of 18 lymph nodes involved, what are my options now without the oxy? I'd love to have some ideas before I see the oncologist tomorrow morning!

Thanks all!
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Old 10-29-2006, 06:58 AM   #2
gocatsgo
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Re: Starting something new

Hi,

I also had to stop the ox due to side effects. I went on straight up 5FU, then had to stop that too. I ended up on Xeloda and did two extra cycles because I tolerated it so well.

I believe that some new drugs have been recently approved for colorectal cancer. Avistan, Pentanumub (probably not spelling that right!). I would ask your oncologist about those drugs.

Good luck! My oncologist did say that even the couple of cycles I was able to get in there probably helped, so I'm sure yours did too.

Take care,
Cats

 
Old 10-29-2006, 09:53 AM   #3
Jeni61
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Re: Starting something new

Hi, gang -- I think they are now calling Penumatib (don't even know if I have that one right !!) Vectibix.

Doesn't that name sound like one of those British breakfast cereals, all grit and no flavor, good-for-you ??

I am sometimes on The Colon Club and some folks there that are stage 3 are doing Avastin, I guess as part of a study.

Avastin and Vectibix are just stage 4 drugs, correct ?

But is there a way to get them as a stage 3 ???

I am ignorant here, folks, but you would think, given what we face, they would give us folks waivers, or something, and let us try this stuff.

I would really like to learn this. After my surgery, I am going to get a 2nd op in oncology from Fred Hutchinson Cancer Center and try to find this out.

Jeni

 
Old 10-29-2006, 12:11 PM   #4
Anders
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Re: Starting something new

Mom,

I agree with what was said above. Because you can not use the Oxyplatin, you should be able to use Avastin.

When I had chemo a few yrs ago, Oxyplatin was only available to those with stage 4. The day I was to start my first treatment, my Dr. pulled me aside, said new information had come to her attention, she had placed some calls, was waiting to hear back and that I may be starting a new chemo program. I started my chemo a week later with Folfox (5FU, Leucolorin, Bova, and OXYPLATIN). About 3 mths into my chemo regiment, Oxyplatin and Folfox was approved for stage 3.

My Dr. had to fight the insurance company to get me on the Oxyplatin, then she had to fight them to get a port installed in me (which is why I did my first treatment in my hand). I don't recommend that approach for anyone, for 3 days I was unable to use that hand. Today these procedures are considered normal for stage 3.

And from what I have read, yes there are many stage 3 patients getting Avastin.

Talk to your oncologist, is your Dr. recommending anything. Please don't give the fight. Keep up posted.

Lee

 
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