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Cancer: Kidney Message Board

Kidney Cancer


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Old 05-21-2004, 06:25 AM   #1
brandii9
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Kidney Cancer

Hi,

My partner has just been told that he has tumours on both his kidneys and another in his liver. He's waiting for an appointment to have an MRI to find out what exactly the tumours are but the Doctor's initial response to seeing the ultrasound results wasn't very positive. Does anyone know what the possible treatment for Kidney Cancer might be (if that's what it turns out to be) when both kidneys are affected ?

Praying that it's good news rather than bad, but wanting to be prepared.
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Old 05-23-2004, 12:13 AM   #2
William Y
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Re: Kidney Cancer

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Last edited by William Y; 07-06-2004 at 10:28 PM.

 
Old 05-23-2004, 05:33 AM   #3
brandii9
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Re: Kidney Cancer

Thank you for replying,

The doctor is hoping to get an MRI appointment in the next day or two. I hate seeing my partner suffer and not knowing what exactly is wrong is just making him sicker than he was anyway at the moment.

People complain about others nagging them but i so wish he'd not ignored both my nagging and the several referrals he's gotten during the past 6 months or so because he's had recurrent severe episodes of stabbing pains in his side/back but just kept putting off doing anything beyond attending emergency at the hospital to get pain killers because "he just didn't have time and he'd deal with it properly when he did".

I'll post something after he's had the MRI and whatever other tests the Specialist orders.

Thanks again

p.s. Part of why he put of doing anything sooner was also because his family has a history of kidney stones so he just assumed he might have some too.

Last edited by brandii9; 05-23-2004 at 05:40 AM.

 
Old 05-23-2004, 12:55 PM   #4
William Y
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Re: Kidney Cancer

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Last edited by William Y; 07-06-2004 at 10:29 PM.

 
Old 05-24-2004, 07:34 AM   #5
brandii9
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Re: Kidney Cancer

My partner is 37 and has been having the stabbing pains on and off for about 8 months. Prior to about 2 weeks ago he tended to get them when he was stressed. What has brought him to this point (where he has seen a Specialist and is constantly sick) is that he got the flu and his GP prescribed antibiotics. Two days after he started taking the antibiotics he felt worse than ever so went back to the doctor and was told that the antibiotics he'd been prescribed were new and very mild and should have no side effects at all. His symptoms are fevers that come and go, nausea/vomitting (he brings up blood when he vomits - this may actually be due to his possibly having stomach ulcers as well), he has traces of blood in his urine; and the sharp stabbing pains in his side/back that are so bad quite often that they double him over in pain. Yes he does smoke, quite heavily. His symptoms seem to be much worse in the evenings/night .. hence my other post asking if there is a medical reason why ailments seem to be worse at night.

Still waiting for the MRI appointment ... the doctor was operating all day today ... too many sick people in the world i guess *soft smile*.
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Old 05-24-2004, 04:27 PM   #6
William Y
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Re: Kidney Cancer

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Last edited by William Y; 07-06-2004 at 10:30 PM.

 
Old 05-25-2004, 07:11 AM   #7
brandii9
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Re: Kidney Cancer

Just a note to say that the Specialist finally rang back today and ............ can't get an appointment for a scan for 2 weeks !!! I can't help thinking that there is a lack of urgency in that ... our health services suck big time at the moment !
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Old 05-25-2004, 10:31 AM   #8
William Y
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Re: Kidney Cancer

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Last edited by William Y; 07-06-2004 at 10:31 PM.

 
Old 05-26-2004, 09:47 PM   #9
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Re: Kidney Cancer

Not to sound too glum, but renal cancer is notoriously difficult to treat, can be slowed down, but from what I understand is usually always fatal. Nonetheless keep fighting!
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Old 05-27-2004, 05:35 AM   #10
brandii9
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Re: Kidney Cancer

For now i'm holding on to the fact that until he has the MRI scan we don't know exactly what it is. I just struggle watching him because he suffers from onslaughts of gripping pains followed by extreme fatigue and then nausea on and off every day. He's preparing himself for the worst possible news on the basis that if he does that any news other than the worst will be wonderful ..

I've done some reading on renal cancer and given he has some kind of tumours on both kidneys as well as his liver if the news is that the tumours are cancerous i know treatment will be limited because the tumours are present in both kidneys ....

Anyway .. pushing those thoughts aside and trying to wait patiently till he has the scan .. *which happens to be on my b'day ... maybe that's a good sign .. i sure hope so !*
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Old 06-01-2004, 05:31 PM   #11
worknmom
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Re: Kidney Cancer

Quote:
Originally Posted by brandii9
For now i'm holding on to the fact that until he has the MRI scan we don't know exactly what it is. I just struggle watching him because he suffers from onslaughts of gripping pains followed by extreme fatigue and then nausea on and off every day. He's preparing himself for the worst possible news on the basis that if he does that any news other than the worst will be wonderful ..

I've done some reading on renal cancer and given he has some kind of tumours on both kidneys as well as his liver if the news is that the tumours are cancerous i know treatment will be limited because the tumours are present in both kidneys ....

Anyway .. pushing those thoughts aside and trying to wait patiently till he has the scan .. *which happens to be on my b'day ... maybe that's a good sign .. i sure hope so !*
My mother has kidney cancer. She had to have her left kidney taken out 2 years ago. Needless to it's back now it's in both of her lungs for which she had 40% taken out. They don't want to do anymore surgery at this point. The oncologist is wanting to start her on the proleukin shots to see if this will shrink and kill off this cancer. She has renal cell and all of the doctors tell us that radiation and chemo doesn't kill kidney cancer. I wish you all the luck in the world as I know what you are going through! Just keep his spirits up and don't let him give up!! Good Luck!

 
Old 06-15-2004, 12:39 AM   #12
brandii9
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Re: Kidney Cancer

My partner has now had the MRI, the specialist sent the results to another dr for his opinion as the results were abnormal/puzzling. He was told today that he has a tumour in one kidney that appears to be dormant and benign and one in his liver which is cancerous and quite advanced (60% of his liver) and is inoperable. The specialist said the tumour in his kidney may have initially contained cancer cells and for some unknown reason changed but that may be how he came to get it in his liver. He said the only possibility my partner has over overcoming the cancer is chemotherapy.. This is not the news we were hoping to hear but now that we know we can move on to fighting it. I'm still feeling numb at the news and confused by the Specialist telling my partner that he may need to travel to another city for the chemotherapy, when we live in a major city that has oncology units.

My heart goes out to you and your mother .. thank you for the message. I'll do all i can to keep him positive because i believe that a positive attitude can help in conquering things.
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Old 06-15-2004, 10:24 AM   #13
William Y
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Re: Kidney Cancer

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Last edited by William Y; 07-06-2004 at 10:33 PM.

 
Old 06-15-2004, 06:35 PM   #14
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Re: Kidney Cancer

Hi there and do not dispare but get prepared for the literal fight for your life. As easy as it will get let yourself focus on the negative prospects just remember that as long as there is life there is a fighting chance....but only to those who have the fighting attitude....a never give uo attitude...have a chance! As best you can....save your tears for when and if the battle is lost. Medical research backs me up on this as it has been proven that in many different medical conditions a "positive mental attitude" gives you a better chance at recovery than just giving up. I'm not saying you are but the temptation will raise its ugly head all too often from this point forward. You must stay psitive and be focused AND pro-active when it comes to doctors and treatment options.

I know a lot about kidney cancer as I was diagnosed with it 6 years ago and underwent successful surgery to have it removed. As I am apt to do I did a ton of research on this subject and still do to an extent. I was blessed with this ugly tumor being detected by a CT when my urologist was looking for something else. It was only 1.5mm in size which it tiney for a kidney tumor since they are not ussually discovered until there are symptoms associated with it's size and growth such as blood in urine or especially lower back pain. Usually by the time these symptoms appear the tumor is quite large and possibly spreading as seems to be in your case. Since my tumor....actually called Renal Cell Carcinoma (kidney cancer)....was so small and located on an outer lobe of hte kidney I was spared any chemotherapy or radiation. However your "partners" case is more challenging and this is why it is time to FIGHT (i.e stay positive, focused and pro-active) to have a chance to save your partners life.

I am including some links at the end of this response which will take you sites that detail what this cancer is all about and possib le ways to deal with it. I have included a link that gives you access to all of the relevent "clinical studies" for new experimental treatments for Renal Cell Carcinoma. This is a last resort for those who are facing the gravest prognosis....which thankfully is not where your at. Just in case though this link should be kept on the back burner.

Here is my advice for what it's worth:
1) Don't let a General Practioner handle this in any way as they are ill equiped for this type of illness and they are pressured (in one way or another) NOT to run expensive tests. This is no time to go cheap if you can.

2) Do research and find a recommended oncolgist/urologist in your area or a nearby "large" city. Try to find the best "cancer hospital" in your area and transfer your fight to those on the cutting edge of treaments. If none is nearby the next best thing would be a "teaching hospital" as they too are on the cutting edge of treaments. The number one cancer hospital in the nation is MD Anderson Hospital located in the Medical Center in Houston Texas. This is where you go for the absolute best all around cancer treatment but there are many fine cancer hospitals around the country.

3) READ READ READ. Knowledge is power and you may be of value to your partners fight and recovery if you know the questions to ask and some of the answers as well.

4) Look into "complimentary treatments" that utilize both "conventional medicine" as well as "alternative medicine" (i.e. certain mushrooms, nutrients, herbs, etc...) See Dr. Weil [ removed ] Don't neglect using moder medicine but try to incorporate as much alternative medicine as you can. You must fight with ALL the weapons at your disposal.

5) Get yourself into a cancer support group for loved ones with cancer and get your partner into a support group for kidney cancer or just cancer. There can be GREAT support found at a church nearby. So many of them want to help you.

6) If you are agnostic/athiest....re-evalute your beliefs. Prayer has been shown to produce positve changes in blood in lab studies. See: [ removed ]

Here are some informative/helpful links:

[ removed ]


[ removed ]


[url]http://clinicaltrials.gov/ct/action/GetStudy[/url]

[ removed ]


[ removed ]


Please forgive the typos and misspellings.....I type lousy.

I wish you and your partner the very best of luck and blessings.

Last edited by moderator2; 06-15-2004 at 07:51 PM. Reason: Do not post any kind of information to find commercial websites. Please carefully review the Healthboards.com Policies and Guidelines. Click on Posting Rules at the top left of this page. Thank you!

 
Old 06-16-2004, 10:35 PM   #15
positive4u
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Re: Kidney Cancer

Other than the interferons, there are at least 3 NEW drug therapies that are showing promise against renal carcinoma. Anyone with advanced renal cancer may benefit from enrolling in clinical trials now being done.
Positive4U

 
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