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Cancer: Pancreatic & Liver Message Board

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    Old 12-26-2019, 10:44 AM   #1
    ddessert
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    Forum Changes

    It looks like not many members from the CancerForums have committed to this forum. What changes would you like to see that would make it more interesting?
    __________________
    Dec 2010 - back/abd pain
    May 2011 - Unresectable stage III, 2.5cm tumor
    Jun-Aug 2011 - Gem/Cis, 9 rounds
    Oct-Nov 2011 - IMRT+Xeloda
    Oct 2011-Sep 2012 - shrinking tumor
    Aug 2012 - Downgraded to stage IIA
    Sep 2012 - Whipple, T3N0M0, 0.5cm tumor, 0/16 lymph nodes
    Sep 2012-May 2019 - NED
    Mar 2013-present - NCT01088789
    Jun 2019- NCT03805919
    @pancanology

     
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    Old 12-26-2019, 02:50 PM   #2
    RamblinWreck
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    Re: Forum Changes

    Implement the longer signatures !!

     
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    Old 12-26-2019, 04:44 PM   #3
    ddessert
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    Re: Forum Changes

    Quote:
    Originally Posted by RamblinWreck View Post
    Implement the longer signatures !!
    I was able to add a signature a few days ago but I donít think they show in the mobile version of the site.

     
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    Old 12-31-2019, 05:20 PM   #4
    Jamiepat
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    Re: Forum Changes

    signatures were definitely one of the most helpful features of the old board.

     
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    Old 01-17-2020, 04:43 PM   #5
    Dand334
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    Re: Forum Changes

    I'm here & will be posting more

     
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    Old 01-17-2020, 04:49 PM   #6
    Dand334
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    Re: Forum Changes

    Agree with longer signature. Also photos added to our posts.

     
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    Old 01-18-2020, 03:33 AM   #7
    Sparkle Lolie
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    Re: Forum Changes

    Quote:
    Originally Posted by ddessert View Post
    It looks like not many members from the CancerForums have committed to this forum. What changes would you like to see that would make it more interesting?
    One of the most valuable things we lost was the knowledge contained in the stickied threads. Although it will take time, I'd really like to see similar stickies evolve here.

    I also think that establishing a "worried" forum similar to the one on CancerForums might make the these forums more attractive, although if it weren't for "worried" posts in the lymphoma forum there'd be barely any threads at all.

    I know that when I was first looking for information during my CRC scare, CancerForums came up towards the top in a Google search. I didn't come across this site at the time so it can't have been in the top results.

    As I think the attractiveness of these forums to former CancerForums posters depends a great deal on how busy they individual boards are, the broader question might be how to drive traffic to the boards for specific cancers.

     
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    Old 02-06-2020, 09:59 AM   #8
    breg613
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    Re: Forum Changes

    Hi,
    It's hard to get used to this new forum. Signature and stickies were very useful. I also would prefer to have the liver and pancreas in separate sections.

    Brigitte

     
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    Old 02-06-2020, 11:43 AM   #9
    ddessert
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    Re: Forum Changes

    The room keeps telling me there is a new post to this thread by breg613, but it does not show up in the thread. NSFHB?

    Edit: Hah! After I posted this, Brigitte's message showed up.

    I would also change the responsiveness of this forum. Waaaay too slow to actually post after hitting the button. I'm always posting the same message twice.
    __________________
    Dec 2010 - back/abd pain
    May 2011 - Unresectable stage III, 2.5cm tumor
    Jun-Aug 2011 - Gem/Cis, 9 rounds
    Oct-Nov 2011 - IMRT+Xeloda
    Oct 2011-Sep 2012 - shrinking tumor
    Aug 2012 - Downgraded to stage IIA
    Sep 2012 - Whipple, T3N0M0, 0.5cm tumor, 0/16 lymph nodes
    Sep 2012-May 2019 - NED
    Mar 2013-present - NCT01088789
    Jun 2019- NCT03805919
    @pancanology

     
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    Old 02-06-2020, 03:00 PM   #10
    breg613
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    Re: Forum Changes

    Hi David!
    I saw my post. Only 12 lines for the signature: that is a little short and there is no formatting possible. Not reader friendly.

    I agree, very slow to be posted. It seems to require the approval of the moderator. Are you the moderator on this forum?
    __________________
    Feb 2016 Borderline resectable PDAC - STAGE 3
    Mar-May 2016 FOLFIRINOX 3 cycles (6 infusions) + CYBERKNIFE SBRT Radiation
    Jun 2016 WHIPPLE surgery + portal vein and right hepatic artery reconstructions
    Sep-Nov 2016 FOLFOX for 3 cycles (6 infusions)
    Sep 2016 Molecular profiling (Know Your Tumor) KRAS (G12D, G12R), TP53 (H214R)
    Sep 2016 to Aug 2018 NED
    Aug 2018 Biopsy - PDAC mets in lungs
    Sep 2018 to Sep 2019 First clinical trial - Abraxane + RX3117 (cousin to Gemcitabine)
    Sep 2019 Switch to second trial AbGn-107
    Jan 2020 AbGn-107 stopped - Progression with pleural effusion and lesion on rib #6
    Feb 2020 Onyvide + 5FU; Thoracentesis, then catheter placement; SBRT rib #6

     
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    Old 02-10-2020, 08:11 PM   #11
    RamblinWreck
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    Re: Forum Changes

    Dave:

    I will go with your two suggestions:

    1. Implement an even longer signature.

    2. Split into liver and pancreatic cancer forums.

    Tony Kehoe a.k.a., RamblinWreck (though most folks just say I am a wreck)
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    57 year old Wife's PC:
    4-19 - Constipation. "You're old, take Miralax".
    7-15-19 - Urgent Care says "BS" on "Miralax"
    7-19-19 - Abd CT Scan reveals pancreatic mass
    7-26-19 - Biopsy confirms adenocarcinoma
    8-8-19 - Start FOLFIRINOX once every two weeks.
    9-20-19 - End first four rounds of FOLFIRINOX.
    9-27-19 - CT scan reveals tumor reduced ~ 40%
    10-4-19 - Onc suggests chemo chng bec CA19-9 obtained at 1st & 2nd treatments is high. NO CA19-9 obtained at 3rd & 4th treatments. ONLY one CA19-9 post treatment initiation. I demand CA19-9 test before switchig.
    10-5-19 - CA19-9 test ~ 10 weeks after treat start is 9700. Staying with Folfirinox

     
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    Old 02-19-2020, 06:04 PM   #12
    ddessert
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    Re: Forum Changes

    Quote:
    Originally Posted by breg613 View Post
    I agree, very slow to be posted. It seems to require the approval of the moderator. Are you the moderator on this forum?
    LoL!
    __________________
    Dec 2010 - back/abd pain
    May 2011 - Unresectable stage III, 2.5cm tumor
    Jun-Aug 2011 - Gem/Cis, 9 rounds
    Oct-Nov 2011 - IMRT+Xeloda
    Oct 2011-Sep 2012 - shrinking tumor
    Aug 2012 - Downgraded to stage IIA
    Sep 2012 - Whipple, T3N0M0, 0.5cm tumor, 0/16 lymph nodes
    Sep 2012-May 2019 - NED
    Mar 2013-present - NCT01088789
    Jun 2019- NCT03805919
    @pancanology

     
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    Old 02-19-2020, 06:07 PM   #13
    ddessert
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    Re: Forum Changes

    Quote:
    Originally Posted by RamblinWreck View Post
    2. Split into liver and pancreatic cancer forums.
    The reply seems to be that if enough people post, it will be considered.

    But if the house youíre invited to is not welcoming in the first place, are you going to go in and stay?
    __________________
    Dec 2010 - back/abd pain
    May 2011 - Unresectable stage III, 2.5cm tumor
    Jun-Aug 2011 - Gem/Cis, 9 rounds
    Oct-Nov 2011 - IMRT+Xeloda
    Oct 2011-Sep 2012 - shrinking tumor
    Aug 2012 - Downgraded to stage IIA
    Sep 2012 - Whipple, T3N0M0, 0.5cm tumor, 0/16 lymph nodes
    Sep 2012-May 2019 - NED
    Mar 2013-present - NCT01088789
    Jun 2019- NCT03805919
    @pancanology

     
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