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Cancer: Prostate Message Board

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    Old 01-13-2020, 04:02 PM   #1
    georgesimpson
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    Hello everyone ...

    I guess I made it over from the other place.

    I'll be getting my 6mo PSA this month.

    Energy and body hair are still very much lacking.


    Georges.

     
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    Old 01-15-2020, 05:16 PM   #2
    nixter
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    Re: Hello everyone ...

    Best of luck. Keep us posted.

     
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    Old 01-16-2020, 04:46 AM   #3
    Michael F
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    Re: Hello everyone ...

    Quote:
    Originally Posted by georgesimpson View Post
    I guess I made it over from the other place.

    I'll be getting my 6mo PSA this month.

    Energy and body hair are still very much lacking.


    Georges.
    Hello G! Glad to see that you have made the migration from our FF (Former Forum)!

    Good luck with your upcoming PSA!

    MF
    __________________
    PSA: Oct '09 = 1.91, Oct '11 = 2.79, Dec '11 = 2.98 (PSA, Free =13%)
    Jan '12: Biopsy: 1/12 = G7 (3+4) & 5/12 = G6
    March '12: Robotic RP: Left: PM + EPE => MD excised additional adjacent tissues
    Pathology: Gleason (3+4) pT3a pNO pMX pRO c tertiary pattern 5 / Prostate Size = 32 grams / Tumor = Bilateral: 20% / PNI: present
    uPSA Range: 0.017 - 0.032 at 94 Months Post Op: Mean = 0.023 (n = 23)
    LabCorp: Ultrasensitive PSA: Roche ECLIA
    Continence = Very Good (≥ 99%) ED = present

     
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    Old 01-22-2020, 09:08 PM   #4
    georgesimpson
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    The PSA results are in...

    While not the lowest score I've ever gotten, I'll take 0.08! (in July it was 0.06)
    Maybe this is some of that "bounce" I've been told about?

    It has been a year since I've had a Lupron shot and 8mo's since I've taken Cassodex.

    There's always hope that energy (and body hair) will come back. (sooner rather than later!)

    I've emailed my RO as I can't recall if he's going to want me to get tested again in July or we're switching to a yearly test.

    Best regards in health and life to you all,

    g.

     
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    Old 01-23-2020, 07:01 AM   #5
    Steve135
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    Re: Hello everyone ...

    Hello back to you and welcome over to this new page for us. I have never been a fan of statement (PSA bounce), unless its use in conjuction with your first Casodex use ever! Some have reported that there PSA goes up and down over there testing period. This could be the assyers technique, but most likely it being that assyer being on vacation or out sick? I for one have only seen my PSA go up after BCR has occured and its was indicated in very early movement. There has never repeat never been a up then down with my PSA. When my PSA moved 0.024 it never stopped till I received new drugs! Going from 0.006 to 0.320 in only 3 months,before going back down after taken Xtandi! My PSA shows a up and down only between my URO and MO office which use two differnt labs. I say this cause I don't want that loose term PSA bounce being thrown around as it happens to all. Its my belief that if you PSA is moving up that's bad, this is based on if the treatment makes it go down its good right? When it comes to My PCa I don't have a cavilier attitude when PCa is running amock in my body! Just my 2 cents all based MY last 4 year 7 month journey with PCa.
    steve d
    ________________
    Diag. 56 DOB 2/59 PSA 01/14 2.0 6/15 2.4
    Biopsy 6/15 5 Gleason Score 8
    RP 10/15 Path 54g 5x4.2x2.8cm 4+3=7 Tumor location quadrants Bilateral
    Extra-capsular extensions present,SV no invasion
    Vascular invasion none, PNI ,Multicentricity multifocal
    Margins NP lN's 5 neg pT3a,N0
    PSA 10/16 0.1 1yr 02/7/17 0.4 02/15/17 0.5
    Pet Scan 2/17 Neg PSA 03/17 0.6 Axumin trial 17.4mm BCR rt. SVB Casodex + Trelstar
    04/17 SRT (42)
    08/17 PSA 0.1 Last 6 uPSA 0.006 uPSA 2/19 0.030 2nd BCR 5/19 0.235 5/30 0.32 6/19 0.34 7/19 0.06 8/19 0.08 9/19 0.056
    10/190 0.08 11/19 0.07 12/19 0.07
    7/19 Trelstar, Xtandi, Zoledronic Acid
    12/19 (3) SBRT Iliac bone liasion

     
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    Old 01-23-2020, 04:03 PM   #6
    georgesimpson
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    Re: Hello everyone ...

    Actually, the RO mentioned to me that it will fluxuate. While many of us find it odd, at Stage4 being at 0.08 with no Lupron+Cassodex is a win in my book.

    Now if it keeps going up, then there likely is still some cancer in there. (somewhere)

    My next check is in July!

    g.

     
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    Old 01-24-2020, 02:25 PM   #7
    IADT3since2000
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    Re: Hello everyone ...

    Hi George and welcome to this Board!

    I am also a veteran of radiation (nearly 7 years), but diagnosed back in 1999 with IADT3 as sole therapy from 2000-March 2013, then radiation with ADT continuing in support through April 2014.

    During that time I have been active in a support and education group, and quite a few of the attendees who have had radiation have experienced a bounce before their PSA settled down to a comforting and stable level. Also, the phenomenon of a bounce (or "bump") has been extensively researched. You can check that by going to www.pubmed.gov and doing a search like - prostate cancer AND radiation AND (bounce OR bump) . I just did that, with a filter to include only papers that had abstracts, and got a list of 95 papers.

    My own PSA has been extraordinarily low (at <0.01) for someone who has an intact prostate after radiation. That said, at one point after radiation, my PSA has risen to 0.02, which may have been a minor bounce.

    Good luck!

    Jim

    - - - - - - - - - - - - - - - - - - - - - - - -
    Diagnosis Dec 1999 PSA 113.6 (first ever), age 56
    Gleason 4+3=7 (J. Epstein, JHU), all cores +, most 100%; "rock hard" prostate with ECE - stage 3, PNI, PSADT determined later 3-4 months; technetium bone scan and CT scan negative; prognosis 5 years.
    Later ProstaScint scan negative except for one suspicious small area in an unlikely location. ADT Lupron as first therapy, in Dec 1999, then + Casodex in March 2000, then + Proscar and Fosamax in Sep 2000. Rejected for surgery January 2000; offered radiation but told success odds were low; switched to ADT only vice radiation in May 2000, betting on holding the fort for improved technology; PSA gradual decline to <0.01 May 2002. Commenced intermittent ADT3 (IADT3) with first vacation from Lupron & Casodex. Negative advanced scans in 2011 (NaF18 PET/CT for bone) and 2012 (Feraheme USPIO for nodes and soft tissue). With improved technology, tried TomoTherapy RT, 39 sessions, in early 2013, plus ADT 3 in support for 18 months (fourth round of IADT3), ended April 2014. Continuing with Avodart as anti-recurrence shield. Current PSA remarkably low at <0.01; apparently cured.. Supportive diet/nutrition, exercise, supportive medications during this journey, as well as switches in antiandrogen, 5-ARI, and bone drugs.

     
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