It appears you have not yet Signed Up with our community. To Sign Up for free, please click here....



Cancer: Prostate Message Board

  • Pump guys

  • Post New Thread   Reply Reply
    Thread Tools Search this Thread
    Old 05-14-2020, 06:14 PM   #1
    IceStationZebra
    Senior Member
    (male)
     
    Join Date: Jan 2020
    Posts: 131
    IceStationZebra HB UserIceStationZebra HB User
    Pump guys

    Okay fellas, for those of you who have worked with doctors on penile rehab after surgery...can you spare some advice?

    Five months out from surgery and I had one halfie erection and nothing else. 5mg of cialis daily sometimes supplemented with an extra 5mg on fun nights. No effect other than 1/20th the size of normal erections.

    My surgeon once thought pumps were effective at preserving/restoring penis function but said that the data didn't pan out that it had any overall benefit.

    I would like to try it if for no other reason than to be able to help out with the wife's needs. So I bought one but I bought one off the net and I am sure it will not have medical therapeutic instructions.

    I don't want to get carried away and have it explode like a hot dog in a microwave....end up staring down at a bloody tube of penis murder.

    So how often did your doc suggest to start off and did the instructions change once you got used to the pump?

    Any advice would be greatly appreciated!

     
    Reply With Quote
    The Following User Says Thank You to IceStationZebra For This Useful Post:
    h0m34dmin (05-28-2020)
    Sponsors Lightbulb
       
    Old 05-20-2020, 12:59 PM   #2
    djust
    Junior Member
    (male)
     
    Join Date: Feb 2016
    Posts: 21
    djust HB User
    Re: Pump guys

    Doc told me to use the pump morning and evening 10 times for 20 seconds each time equal to 20 times a day.

    I did that for the first 4 months now I just use it in the mornings.
    I had to give myself a break because I hate it so much.

    Only used it once with the constriction rings for actual sex and it was horrible and I told my wife that was the one and only time for using it that way.
    Having a rubber band snapped on your little buddy is not for me.

    I am using trimix now and am still getting use to it but it is way better than the rings the pump comes with.

    Still taking a daily dose of sildenafil and was taking 5 at a time on the weekends but it seems I am working just as well as the pills on my own anyway.

    I do see progress from where I was last Nov after surgery till today but can't really say the pump helped with that.
    I do think maybe the pump has given me back what I had before surgery so maybe the torture is worth it I don't know.
    __________________
    Age 55
    PSA 3.5 7-16 PSA 4.18 7-17 PSA 3.66 8-17 PSA 4.99 7-18
    Biopsy 8-18 Diagnosed 8-18 12 Cores 1 Core 5% positive Gleason 6
    PSA 5.3 11-18 PSA 6.01 2-19 PSA 6.73 6-19
    3T MRI 6-19 MRI Guided Fushion Biopsy 19 cores 7-18-19
    Left Mid Lat 3+4 3mm 25% Left Apex Lat 3+4 2mm 15% ROI RM TZA 3+4 17MM 27%
    PSA week before surgery 11-5-19 7.6
    RALP 11-11-2019 MD Anderson
    pT2
    First Post Surgery PSA .064 12-24-2019 Local URO
    First Post Surgery PSA from Surgeon at
    MDA 2-11-20 0.0

     
    Reply With Quote
    The Following User Says Thank You to djust For This Useful Post:
    h0m34dmin (05-28-2020)
    Old 05-20-2020, 01:10 PM   #3
    IceStationZebra
    Senior Member
    (male)
     
    Join Date: Jan 2020
    Posts: 131
    IceStationZebra HB UserIceStationZebra HB User
    Re: Pump guys

    Quote:
    Originally Posted by djust View Post
    Doc told me to use the pump morning and evening 10 times for 20 seconds each time equal to 20 times a day.

    I did that for the first 4 months now I just use it in the mornings.
    I had to give myself a break because I hate it so much.

    Only used it once with the constriction rings for actual sex and it was horrible and I told my wife that was the one and only time for using it that way.
    Having a rubber band snapped on your little buddy is not for me.

    I am using trimix now and am still getting use to it but it is way better than the rings the pump comes with.

    Still taking a daily dose of sildenafil and was taking 5 at a time on the weekends but it seems I am working just as well as the pills on my own anyway.

    I do see progress from where I was last Nov after surgery till today but can't really say the pump helped with that.
    I do think maybe the pump has given me back what I had before surgery so maybe the torture is worth it I don't know.
    Thank you for the reply. Very helpful information.

    So just to be clear did you pump to the desired length, turn the machine off and leave mr Johnson in there with the suction for the duration of the 20 seconds or leave the machine on for all 20 seconds?

    I actually received it yesterday. I had envisioned a flat bottomed john boat with a 5 hp motor trying to navigate offshore white caps. But sweet fancy moses, within 5 seconds or less it was like I was 18 again. Holy smoke it is magic.

    The issue I had was that it has 4 power settings. I only used the first setting. But to turn it off you have to keep hitting the power button through medium, fast and super fast. So it's a bit of an art form to stop the slow setting and progress through the rest before it rips my penis off my body.

    Unfortunately mine didn't come with the rubber rings so by the time I win the tug of war to break the seal and get it off, it isn't usable. Kind of like having a tug of war with a rottweiler.

    Ugh. I don't want the shots but that may be where I'm headed. I'm not sure when to make that call.

     
    Reply With Quote
    The Following User Says Thank You to IceStationZebra For This Useful Post:
    h0m34dmin (05-28-2020)
    Old 05-21-2020, 10:55 AM   #4
    djust
    Junior Member
    (male)
     
    Join Date: Feb 2016
    Posts: 21
    djust HB User
    Re: Pump guys

    Mine just has a button that has to be depressed for the vacuum pump to run and if it has good seal i only have to push the button for 5-10 secs, any longer than that and it gets painful. I push the button then start a timer and when it gets uncomfortable I release the button and at the 20 second mark I release the vacuum then start all over again.

    The shots were painful in the beginning but are getting better, still trying to dial in the dose, it seems I need more when I inject on the left side.
    I have only done it about times so far and the first time was definitely the hardest mostly mental but it gets easier after that.
    __________________
    Age 55
    PSA 3.5 7-16 PSA 4.18 7-17 PSA 3.66 8-17 PSA 4.99 7-18
    Biopsy 8-18 Diagnosed 8-18 12 Cores 1 Core 5% positive Gleason 6
    PSA 5.3 11-18 PSA 6.01 2-19 PSA 6.73 6-19
    3T MRI 6-19 MRI Guided Fushion Biopsy 19 cores 7-18-19
    Left Mid Lat 3+4 3mm 25% Left Apex Lat 3+4 2mm 15% ROI RM TZA 3+4 17MM 27%
    PSA week before surgery 11-5-19 7.6
    RALP 11-11-2019 MD Anderson
    pT2
    First Post Surgery PSA .064 12-24-2019 Local URO
    First Post Surgery PSA from Surgeon at
    MDA 2-11-20 0.0

     
    Reply With Quote
    Old 05-22-2020, 07:33 AM   #5
    Prostatefree
    Senior Member
    (male)
     
    Join Date: Dec 2019
    Posts: 225
    Prostatefree HB UserProstatefree HB UserProstatefree HB UserProstatefree HB User
    Re: Pump guys

    Quote:
    Originally Posted by IceStationZebra View Post
    Ugh. I don't want the shots but that may be where I'm headed. I'm not sure when to make that call.

    One year after your RP. And then, imo, only if there has been no improvement and injections will be your go to for your remaining years.
    __________________
    Born 1953; family w/PCa-grandfather, 3 brothers;
    7-12-04 PSA 1.9; 7-10-06 PSA 2.0; 8-30-07 PSA 3.2; 12-1-11 PSA 5.7; 5-16-12 PSA 4.76; 12-11-12 PSA 5.2; 3-7-16 PSA 7.2;
    3-14-16 TRUS biopsy, PCa 1%-60% across 8 of 12 samples, G3+3;
    5-4-16 DaVinci RP, Path-65g, lymph nodes, seminal vesicles, capsule, margin all neg, G3+4, T vol 35%, +pT2c, No Incontinence-6mos, Erections-14 months;
    12-8-19 PSA less than 0.02, zero club 3.5 yrs

     
    Reply With Quote
    Old 05-22-2020, 07:38 AM   #6
    Prostatefree
    Senior Member
    (male)
     
    Join Date: Dec 2019
    Posts: 225
    Prostatefree HB UserProstatefree HB UserProstatefree HB UserProstatefree HB User
    Re: Pump guys

    Quote:
    Originally Posted by IceStationZebra View Post
    Ugh. I don't want the shots but that may be where I'm headed. I'm not sure when to make that call.

    One year after your RP. And then, imo, only if there has been no improvement and injections will be your go to for your remaining years.

    Your young profile indicates you will make a full recovery whether it takes 1 year or two. Mess around with devices if you want as long as they are no risk. Although, the injections were not a no risk experience for me. So, it's different for everyone.

    Keep losing weight and get some weight bearing exercising in. It lifted my libido more than anything else I tried. Simple. Simple isn't easy.
    __________________
    Born 1953; family w/PCa-grandfather, 3 brothers;
    7-12-04 PSA 1.9; 7-10-06 PSA 2.0; 8-30-07 PSA 3.2; 12-1-11 PSA 5.7; 5-16-12 PSA 4.76; 12-11-12 PSA 5.2; 3-7-16 PSA 7.2;
    3-14-16 TRUS biopsy, PCa 1%-60% across 8 of 12 samples, G3+3;
    5-4-16 DaVinci RP, Path-65g, lymph nodes, seminal vesicles, capsule, margin all neg, G3+4, T vol 35%, +pT2c, No Incontinence-6mos, Erections-14 months;
    12-8-19 PSA less than 0.02, zero club 3.5 yrs

     
    Reply With Quote
    Old 05-22-2020, 07:50 AM   #7
    IceStationZebra
    Senior Member
    (male)
     
    Join Date: Jan 2020
    Posts: 131
    IceStationZebra HB UserIceStationZebra HB User
    Re: Pump guys

    Quote:
    Originally Posted by Prostatefree View Post
    One year after your RP. And then, imo, only if there has been no improvement and injections will be your go to for your remaining years.

    Your young profile indicates you will make a full recovery whether it takes 1 year or two. Mess around with devices if you want as long as they are no risk. Althought, the injections were not a no risk experience for me. So, it's different for everyone.

    Keep losing weight and get some weight bearing exercising in. It lifted my libido more than anything else I tried. Simple isn't it. Simple isn't easy.
    Thanks for the feedback.

    I think the pump will help for now. I'm willing to wait but just don't want to wait beyond a point where I miss something that i should have done.

     
    Reply With Quote
    Old 05-23-2020, 03:34 PM   #8
    JakeNCDC
    Newbie
    (male)
     
    JakeNCDC's Avatar
     
    Join Date: May 2020
    Location: NoVA
    Posts: 3
    JakeNCDC HB User
    Re: Pump guys

    A pump by itself has never helped me. My penis just has no reaction from a pump UNLESS it has something going on already -- being it I was able to get a 33%-50% erection on my own and then use the pump or I use it after I taken some Sildenafil (Viagra). I almost always use it to try to get a little more erection when I have one from what ever method. Best thing about a pump is that while both Sildenafil and Trimix don't give me the size I used to have, I can use the pump with these other things and at least stretch it out to max size - although I am certain that even then, I am not as big as before surgery.

    back to pumps. I have one that works on batteries comes with rings and was recommended on another board about ED, and I have a cheap one that is manual. I get just as good as results from my cheap manual one as I do from my more expensive one.
    __________________
    Current Age: 57
    PSA: 4.3 July 2017
    PSA:4.4 Oct. 2017
    Biopsy: Dec 2017 (Age 55) 9-12 cores positive with some at 6 and some at 3+4=7
    RALP: May 14, 2018 at Johns Hopkins
    Final pathology: organ confined but cancer throughout the organ. No positive margins. PT2, final Gleason: 3+4=7
    PSA: 3 months after RALP: 0.0
    PSA has remained 0.0 or

     
    Reply With Quote
    Old 05-24-2020, 06:19 AM   #9
    Prostatefree
    Senior Member
    (male)
     
    Join Date: Dec 2019
    Posts: 225
    Prostatefree HB UserProstatefree HB UserProstatefree HB UserProstatefree HB User
    Re: Pump guys

    Quote:
    Originally Posted by IceStationZebra View Post
    Thanks for the feedback.

    I think the pump will help for now. I'm willing to wait but just don't want to wait beyond a point where I miss something that i should have done.
    The only thing you can do is to continue to use it. The devices and methods really don't matter. It won't recover its ability to hold the blood until the nerves recover. That takes time. Nothing else.

    Your not missing anything except patience and the peace that comes with it. Been there, done that. It's like watching a pot boil. It seems like forever. Stop resisting it. Easier said than done of course.

     
    Reply With Quote
    Old 05-24-2020, 06:25 AM   #10
    IceStationZebra
    Senior Member
    (male)
     
    Join Date: Jan 2020
    Posts: 131
    IceStationZebra HB UserIceStationZebra HB User
    Re: Pump guys

    Quote:
    Originally Posted by Prostatefree View Post
    The only thing you can do is to continue to use it. The devices and methods really don't matter. It won't recover its ability to hold the blood until the nerves recover. That takes time. Nothing else.

    Your not missing anything except patience and the peace that comes with it. Been there, done that. It's like watching a pot boil. It seems like forever. Stop resisting it. Easier said than done of course.
    Yes, absolutely. With the pump I achieve a nice erection and before I can even get the device off, it has lost most of the erection.

    I will say that after using the pump some erection remains and it seems that if we try to fool around it is more responsive, so I will keep exercising.

     
    Reply With Quote
    Old 05-24-2020, 06:31 AM   #11
    IceStationZebra
    Senior Member
    (male)
     
    Join Date: Jan 2020
    Posts: 131
    IceStationZebra HB UserIceStationZebra HB User
    Re: Pump guys

    Quote:
    Originally Posted by JakeNCDC View Post
    A pump by itself has never helped me. My penis just has no reaction from a pump UNLESS it has something going on already -- being it I was able to get a 33%-50% erection on my own and then use the pump or I use it after I taken some Sildenafil (Viagra). I almost always use it to try to get a little more erection when I have one from what ever method. Best thing about a pump is that while both Sildenafil and Trimix don't give me the size I used to have, I can use the pump with these other things and at least stretch it out to max size - although I am certain that even then, I am not as big as before surgery.

    back to pumps. I have one that works on batteries comes with rings and was recommended on another board about ED, and I have a cheap one that is manual. I get just as good as results from my cheap manual one as I do from my more expensive one.
    Thanks for the feedback. I wonder if it is your pump because mine is amazing. I thought it would take 5 minutes but nope, if clowns did x rated parties I could have a new career! It went from limp to full erection in 5 seconds or less. I was just trying it out after cleaning it so I did it without any lubes, so it was quite painful.

    I'm taking the cialis 5mg a day to help healing more than anything. The doc said I could try an extra 5 to see if that helps but the max dose is 20 mg. I might try 15 or 20 mg once and see if it will work.

    I will say it was nice to see that it can work even by artificial means. I guess I just have to continue waiting for more healing.

    Thanks all

     
    Reply With Quote
    Old 05-24-2020, 11:06 AM   #12
    JakeNCDC
    Newbie
    (male)
     
    JakeNCDC's Avatar
     
    Join Date: May 2020
    Location: NoVA
    Posts: 3
    JakeNCDC HB User
    Re: Pump guys

    Quote:
    Originally Posted by IceStationZebra View Post
    Thanks for the feedback. I wonder if it is your pump because mine is amazing. I thought it would take 5 minutes but nope, if clowns did x rated parties I could have a new career! It went from limp to full erection in 5 seconds or less. I was just trying it out after cleaning it so I did it without any lubes, so it was quite painful.

    I'm taking the cialis 5mg a day to help healing more than anything. The doc said I could try an extra 5 to see if that helps but the max dose is 20 mg. I might try 15 or 20 mg once and see if it will work.

    I will say it was nice to see that it can work even by artificial means. I guess I just have to continue waiting for more healing.

    Thanks all
    My Uro surgeon at JH was not a fan of taking regular "therapeutic" doses of Viagra/Cialis. I see a lot of people say their doctors prescribed it for taking soon after surgery. Mine told me it was not backed by evidence and it would just cost me a lot of money and give me headaches. The one thing he did say that was true, is that a lot of the times I take Viagra I have a headache and stuffy nose for half a day later. Sometimes its kind of bad and other times its ok. Cialis was even worse for me. But I am finally to the point where Viagra or generic sildenafil is working. I get about the same reaction from 40-60 mg as I do from 100. Also what can help, and there is some evidence of this and noted on Mayo that taking the supplement L-Arginine can help either by itself or taken with Viagra/Cialis. L-Arginine and L-Citrulline increase the amount of nitrate oxide in your blood which helps with increased blood flow. My ED Uro acknowledged that this may be a beneficial combination also.
    __________________
    Current Age: 57
    PSA: 4.3 July 2017
    PSA:4.4 Oct. 2017
    Biopsy: Dec 2017 (Age 55) 9-12 cores positive with some at 6 and some at 3+4=7
    RALP: May 14, 2018 at Johns Hopkins
    Final pathology: organ confined but cancer throughout the organ. No positive margins. PT2, final Gleason: 3+4=7
    PSA: 3 months after RALP: 0.0
    PSA has remained 0.0 or

     
    Reply With Quote
    Old 05-26-2020, 08:50 AM   #13
    djust
    Junior Member
    (male)
     
    Join Date: Feb 2016
    Posts: 21
    djust HB User
    Cool Re: Pump guys

    Most of my regiment pump,pills,shots comes from Dr Mulhalls book.

    He says that if there is no response from the pills within 4 months go to the shots.

    I don't shoot up often but I am still hoping they are a kickstart for the nerves and my response is definitely getting better.

    May not be hard enough for penetration with no help at all but are now having some spontaneous sex again without help !

    Progress
    __________________
    Age 55
    PSA 3.5 7-16 PSA 4.18 7-17 PSA 3.66 8-17 PSA 4.99 7-18
    Biopsy 8-18 Diagnosed 8-18 12 Cores 1 Core 5% positive Gleason 6
    PSA 5.3 11-18 PSA 6.01 2-19 PSA 6.73 6-19
    3T MRI 6-19 MRI Guided Fushion Biopsy 19 cores 7-18-19
    Left Mid Lat 3+4 3mm 25% Left Apex Lat 3+4 2mm 15% ROI RM TZA 3+4 17MM 27%
    PSA week before surgery 11-5-19 7.6
    RALP 11-11-2019 MD Anderson
    pT2
    First Post Surgery PSA .064 12-24-2019 Local URO
    First Post Surgery PSA from Surgeon at
    MDA 2-11-20 0.0

     
    Reply With Quote
    Reply Reply




    Thread Tools Search this Thread
    Search this Thread:

    Advanced Search

    Posting Rules
    You may not post new threads
    You may not post replies
    You may not post attachments
    You may not edit your posts

    BB code is On
    Smilies are On
    [IMG] code is Off
    HTML code is Off
    Trackbacks are Off
    Pingbacks are Off
    Refbacks are Off




    Sign Up Today!

    Ask our community of thousands of members your health questions, and learn from others experiences. Join the conversation!

    I want my free account

    All times are GMT -7. The time now is 03:40 AM.





    © 2020 MH Sub I, LLC dba Internet Brands. All rights reserved.
    Do not copy or redistribute in any form!