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  • To All Those Recently Diagnosed, and Others - Conference Starting Friday

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    Old 09-09-2020, 12:21 PM   #1
    IADT3since2000
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    To All Those Recently Diagnosed, and Others - Conference Starting Friday

    Friday is the start of the “2020 Prostate Cancer Patient Conference”. Please see the thread below entitled The “2020 Prostate Cancer Patient Conference” – Soon to be Readily Accessible to All!

    This conference is virtual via Zoom, and free to all, but you have to do a simple registration. There is a block to ask questions if you scroll down. The question process is simple. I have already sent in a dozen questions of one to two sentences each. The moderator staff will triage the questions, and then, as I am visualizing it, Dr. Mark Moyad, MD, will put them to a speaker. Don't feel shy about submitting a question you may be concerned may seem dumb. We are all pretty naive in the early days just before and after diagnosis, and that's when we most need to have our questions answered.

    I traveled coast to coast to attend my first conference in 2000, and, despite having to fit it in during a busy time at work, I consider it the best investment I have ever made. I was able to make several important changes in my case management and treatment based on what I learned at just that first conference.

    ….Jim

    - - - - - - - - - - - - - - - - - - - - - - - -
    Diagnosis Dec 1999 PSA 113.6 (first ever), age 56
    Gleason 4+3=7 (J. Epstein, JHU), all cores +, most 100%; "rock hard" prostate with ECE - stage 3, PNI, PSADT determined later 3-4 months; technetium bone scan and CT scan negative; prognosis 5 years.
    Later ProstaScint scan negative except for one suspicious small area in an unlikely location. ADT Lupron as first therapy, in Dec 1999, then + Casodex in March 2000, then + Proscar and Fosamax in Sep 2000. Rejected for surgery January 2000; offered radiation but told success odds were low; switched to ADT only vice radiation in May 2000, betting on holding the fort for improved technology; PSA gradual decline to <0.01 May 2002. Commenced intermittent ADT3 (IADT3) with first vacation from Lupron & Casodex. Negative advanced scans in 2011 (NaF18 PET/CT for bone) and 2012 (Feraheme USPIO for nodes and soft tissue). With improved technology, tried TomoTherapy RT, 39 sessions, in early 2013, plus ADT 3 in support for 18 months (fourth round of IADT3), ended April 2014. Continuing with Avodart as anti-recurrence shield. Current PSA remarkably low and stable at <0.01; apparently cured (Current PSA as of 9/4/2020). (Current T 99 6/5/20.) Supportive diet/nutrition, exercise, supportive medications during this journey, as well as switches in antiandrogen, 5-ARI, and bone drugs.

     
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