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  • Repeat PSA Test

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    Old 09-14-2020, 02:40 PM   #1
    JWPMP
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    Repeat PSA Test

    We were just told that Jim should have a repeat PSA test before his MRI Friday (Sep 18th)
    It sounds like there are activities to be avoided. Would riding a horse be one of them? Or a long truck drive?
    Don't know if that is even an issue but I did read that cycling could impact the results
    Thank you
    Paula & Jim

    Age 64 years old
    7/14/20. First PSA test ever 53.5
    7/23/20. DRE Multinodular Indurated Prostate
    9/18/20 MRI at UCSF
    10/02/20 Multi Fusion Biopsy at UCSF

    Last edited by JWPMP; 09-14-2020 at 02:41 PM. Reason: wrong date

     
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    Old 09-14-2020, 03:09 PM   #2
    ASAdvocate
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    Re: Repeat PSA Test

    Sexual activity, horse, bike, or motorcycle riding. Weight lifting. Those are the ones I usually hear mentioned.
    __________________
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    Six biopsies from 2009 to 2019. Three were were positive with 5% Gleason(3+3) found.

     
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    Old 09-14-2020, 03:58 PM   #3
    JWPMP
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    Re: Repeat PSA Test

    great, thank you
    The nurse said avoid sex, and "strenuous" exercise for 48 hours...open to interpretation Lol

     
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    Old 09-14-2020, 04:23 PM   #4
    Prostatefree
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    Re: Repeat PSA Test

    Avoid sex includes any stimulation of the prostate. No masturbation. No DREs.

     
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    Old 09-14-2020, 07:44 PM   #5
    Southsider170
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    Re: Repeat PSA Test

    53 is a pretty high PSA, double checking a ballistic PSA is smart idea definitely.

     
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    Old 09-14-2020, 08:22 PM   #6
    JWPMP
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    Re: Repeat PSA Test

    Quote:
    Originally Posted by Southsider170 View Post
    53 is a pretty high PSA, double checking a ballistic PSA is smart idea definitely.
    pretty scary number.
    hope this next test isn't any higher.
    thank you

     
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    Old 09-14-2020, 08:24 PM   #7
    JWPMP
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    Re: Repeat PSA Test

    Quote:
    Originally Posted by Prostatefree View Post
    Avoid sex includes any stimulation of the prostate. No masturbation. No DREs.
    Thank you for further clarification.
    Some things should be obvious, but actually are not

     
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    Old 09-15-2020, 04:58 AM   #8
    Michael F
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    Re: Repeat PSA Test

    Hi & Welcome P&J! In your case, the activities listed above will have no significant impact on a PSA result that is > 50 ng/ml. Regardless, any activities that could potentially cause a PSA elevation should be avoided.

    The fact that you are at UCSF is highly encouraging as you will be in the care of top PCa Clinicians, if or when diagnosed.

    There have been tremendous advancements in the diagnosis and treatment of PCa in the last decade. It is not a cancer to fear but a cancer that can be cured or managed & controlled for many many years.

    Good luck with the MRI & Fusion Biopsy (Bx). The vast majority of men who have undergone prostate Bx, have found it to an uncomfortable experience but not unbearable. The thoughts leading up to it were far worse than the actual Bx procedure!

    Best wishes for a favorable Path Report.

    Keep us updated!

    MF
    __________________
    PSA: Oct '09 = 1.91, Oct '11 = 2.79, Dec '11 = 2.98 (PSA, Free =13%)
    Jan '12: Biopsy: 1/12 = G7 (3+4) & 5/12 = G6
    March '12: Robotic RP: Left: PM + EPE => MD excised additional adjacent tissues
    Pathology: Gleason (3+4) pT3a pNO pMX pRO c tertiary pattern 5 / Prostate Size = 32 grams / Tumor = Bilateral: 20% / PNI: present
    uPSA Range: 0.017 - 0.039 at 105 Months Post Op: Mean = 0.023 (n = 25)
    LabCorp: Ultrasensitive PSA: Roche ECLIA
    Continence = Very Good (≥ 99%) ED = present

     
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    Old 09-15-2020, 05:58 AM   #9
    IADT3since2000
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    Re: Repeat PSA Test

    Ideally, you want repeat tests further apart, but often circumstances are not ideal.

    While these activities will not make a huge difference in a PSA that is already so high, they could substantially alter a projection of the PSA Doubling Time, PSADT, which is the main reason for doing the repeat. It's important to make that retest as good a test of what the cancer is doing as possible.

    Good luck to you both.

    ….Jim

    - - - - - - - - - - - - - - - - - - - - - - - -
    Diagnosis Dec 1999 PSA 113.6 (first ever), age 56
    Gleason 4+3=7 (J. Epstein, JHU), all cores +, most 100%; "rock hard" prostate with ECE - stage 3, PNI, PSADT determined later 3-4 months; technetium bone scan and CT scan negative; prognosis 5 years.
    Later ProstaScint scan negative except for one suspicious small area in an unlikely location. ADT Lupron as first therapy, in Dec 1999, then + Casodex in March 2000, then + Proscar and Fosamax in Sep 2000. Rejected for surgery January 2000; offered radiation but told success odds were low; switched to ADT only vice radiation in May 2000, betting on holding the fort for improved technology; PSA gradual decline to <0.01 May 2002. Commenced intermittent ADT3 (IADT3) with first vacation from Lupron & Casodex. Negative advanced scans in 2011 (NaF18 PET/CT for bone) and 2012 (Feraheme USPIO for nodes and soft tissue). With improved technology, tried TomoTherapy RT, 39 sessions, in early 2013, plus ADT 3 in support for 18 months (fourth round of IADT3), ended April 2014. Continuing with Avodart as anti-recurrence shield. Current PSA remarkably low and stable at <0.01; apparently cured (Current PSA as of 9/4/2020). (Current T 99 6/5/20.) Supportive diet/nutrition, exercise, supportive medications during this journey, as well as switches in antiandrogen, 5-ARI, and bone drugs. Barely noticeable side effects from radiation; continuing low T, likely do to long use of ADT, but good energy and adequate strength.

    Last edited by IADT3since2000; 09-15-2020 at 05:59 AM. Reason: typo

     
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    Old 09-15-2020, 08:33 AM   #10
    Southsider170
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    Re: Repeat PSA Test

    Quote:
    Originally Posted by JWPMP View Post
    pretty scary number.
    hope this next test isn't any higher.
    thank you

    Needless to say. However you want a score that is a lot lower. The big number could have been due to infection or trauma in the short term to the prostate and may be back to normal. Things like a punch to the groin, a colonoscopy or receptive anal sex can affect PSA scores.

    And of course, the possibility of a mistake in the test reading or administration could give you a bad result. People do sometimes make mistakes, that's why pencils have erasers.

     
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    Old 09-15-2020, 02:14 PM   #11
    JWPMP
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    Re: Repeat PSA Test

    Quote:
    Originally Posted by Michael F View Post
    Hi & Welcome P&J! In your case, the activities listed above will have no significant impact on a PSA result that is > 50 ng/ml. Regardless, any activities that could potentially cause a PSA elevation should be avoided.

    The fact that you are at UCSF is highly encouraging as you will be in the care of top PCa Clinicians, if or when diagnosed.

    There have been tremendous advancements in the diagnosis and treatment of PCa in the last decade. It is not a cancer to fear but a cancer that can be cured or managed & controlled for many many years.

    Good luck with the MRI & Fusion Biopsy (Bx). The vast majority of men who have undergone prostate Bx, have found it to an uncomfortable experience but not unbearable. The thoughts leading up to it were far worse than the actual Bx procedure!

    Best wishes for a favorable Path Report.

    Keep us updated!

    MF
    Thank you MF for the encouraging post...anxiety is off the charts this week. My husband is feeling such fear that his cancer is widespread and his mind is running amuck.. .and I struggle to keep my apprehension in check.

    Will keep you all posted.
    Nurse says she should be able to review the MRI with us Monday

    thank you

     
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    Old 09-15-2020, 02:17 PM   #12
    JWPMP
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    Re: Repeat PSA Test

    Quote:
    Originally Posted by IADT3since2000 View Post
    Ideally, you want repeat tests further apart, but often circumstances are not ideal.

    While these activities will not make a huge difference in a PSA that is already so high, they could substantially alter a projection of the PSA Doubling Time, PSADT, which is the main reason for doing the repeat. It's important to make that retest as good a test of what the cancer is doing as possible.

    Good luck to you both.

    .Jim

    - - - - - - - - - - - - - - - - - - - - - - - -
    Diagnosis Dec 1999 PSA 113.6 (first ever), age 56
    Gleason 4+3=7 (J. Epstein, JHU), all cores +, most 100%; "rock hard" prostate with ECE - stage 3, PNI, PSADT determined later 3-4 months; technetium bone scan and CT scan negative; prognosis 5 years.
    Later ProstaScint scan negative except for one suspicious small area in an unlikely location. ADT Lupron as first therapy, in Dec 1999, then + Casodex in March 2000, then + Proscar and Fosamax in Sep 2000. Rejected for surgery January 2000; offered radiation but told success odds were low; switched to ADT only vice radiation in May 2000, betting on holding the fort for improved technology; PSA gradual decline to <0.01 May 2002. Commenced intermittent ADT3 (IADT3) with first vacation from Lupron & Casodex. Negative advanced scans in 2011 (NaF18 PET/CT for bone) and 2012 (Feraheme USPIO for nodes and soft tissue). With improved technology, tried TomoTherapy RT, 39 sessions, in early 2013, plus ADT 3 in support for 18 months (fourth round of IADT3), ended April 2014. Continuing with Avodart as anti-recurrence shield. Current PSA remarkably low and stable at <0.01; apparently cured (Current PSA as of 9/4/2020). (Current T 99 6/5/20.) Supportive diet/nutrition, exercise, supportive medications during this journey, as well as switches in antiandrogen, 5-ARI, and bone drugs. Barely noticeable side effects from radiation; continuing low T, likely do to long use of ADT, but good energy and adequate strength.
    I was surprised Jim, that they wanted one before the MRI...i figured closer to the end of the month, but at this point it doesn't seem to matter.
    Hoping for a non moving number at least
    thanks again

     
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    Old 09-15-2020, 02:19 PM   #13
    JWPMP
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    Re: Repeat PSA Test

    Quote:
    Originally Posted by Southsider170 View Post
    Needless to say. However you want a score that is a lot lower. The big number could have been due to infection or trauma in the short term to the prostate and may be back to normal. Things like a punch to the groin, a colonoscopy or receptive anal sex can affect PSA scores.

    And of course, the possibility of a mistake in the test reading or administration could give you a bad result. People do sometimes make mistakes, that's why pencils have erasers.
    I'll sure hope for ANY of those to factor in. The fact this his DRE was not normal doesn't give me much optimism.
    Thank you for mentioning those factors, though, it's still possible ...

     
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    Old 09-15-2020, 02:35 PM   #14
    Prostatefree
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    Re: Repeat PSA Test

    They changed health systems. This may be their first test at the new place. I can't imagine anything serious proceeding without verifying the first reported test performed elsewhere.
    __________________
    Born 1953; family w/PCa-grandfather, 3 brothers;
    7-12-04 PSA 1.9; 7-10-06 PSA 2.0; 8-30-07 PSA 3.2; 12-1-11 PSA 5.7; 5-16-12 PSA 4.76; 12-11-12 PSA 5.2; 3-7-16 PSA 7.2;
    3-14-16 TRUS biopsy, PCa 1%-60% across 8 of 12 samples, G3+3;
    5-4-16 DaVinci RP, Path-65g, lymph nodes, seminal vesicles, capsule, margin all neg, G3+4, T vol 35%, +pT2c, No Incontinence-6mos, Erections-14 months;
    6-30-20 PSA less than 0.02, zero club 4 yrs

     
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    Old 09-15-2020, 03:52 PM   #15
    JWPMP
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    Re: Repeat PSA Test

    Quote:
    Originally Posted by Prostatefree View Post
    They changed health systems. This may be their first test at the new place. I can't imagine anything serious proceeding without verifying the first reported test performed elsewhere.
    yes correct, this is the first test ordered by our new provider, but they are having it done at the same Quest Diagnostics that ran the original test.
    Is that odd?
    Thank you

     
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