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    Old 11-18-2020, 03:12 PM   #1
    JWPMP
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    Bone Scan

    Jim had the Whole Body Bone Scan at UCSF yesterday.
    anterior and posterior whole body planar images, supplemented by additional lateral images of the head and neck, oblique images of the chest, and oblique images of the pelvis.
    No suspicious foci of tracer activity.
    No evidence of osseous metastases.
    The Nurse and Dr Carroll's office both messaged me first thing this morning with "good news".
    Its the first we've gotten in four months.
    MO appointment December 1st.
    I expressed concern, but they said do not fret, if there was any area of concern, they would have squeezed him in earlier.
    So, now the freaking out stops and the real work begins.
    The rubber is about to hit the road, but at least now we feel like he has a good chance to manage this for many years.

    Thank you all
    Paula (Jim)

    Age. 64 years
    7/14/2020. First PSA ever 53.5
    9/2020. PSA 66.3
    9/2020. MRI. T4 Tumor. Entire prostate involved. Two suspicious nodes. Seminal invasion. Rectal wall invasion.
    10/2020. Biopsy G9
    10/2020. RO recommending HT 24 months with injections 1 to 6 months. Begin Radiation after 2 to 3 months, 44 sessions.
    Bone Scan 11/2020. No evidence of osseous metastases

     
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    Old 11-18-2020, 07:34 PM   #2
    DjinTonic
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    Re: Bone Scan

    Excellent bone-scan news! This means it's looking good that, even though the PCa may have left the prostate locally, the RT will zap it all goodbye!

    Best wishes,

    Djin
    __________________
    69 yr at Dx, BPH x 20 yr, 9 (!) neg. Bx, PCA3-
    7-05-13 TURP for BPH (90→30 g) path neg. for PCa, then 6-mo. checks
    6-06-17 Nodule on R + PSA rise on finasteride: 3.6→4.3
    6-28-17 Bx #10: 2/14 cores: G10 (5+5) 50% RB, G9 (4+5) 3% RLM
    Nodule negative for PCa. Bone scan, CTs, X-rays: neg.
    8-7-17 Open RP, negative frozen sections, Duke Regional Hosp.
    SM EPE BNI LVI SVI LNI(5L, 11R): negative, PNI+, nerves spared
    pT2c pN0 pMX, G9 (4+5) 5% of prostate (4.5x5x4 cm, 64 g)
    Dry; ED OK with sildenafil
    Decipher 0.37 (Low Risk), uPSA: 0.010 (3 mo.)...0.013 (2 yr. 10 mo.)

     
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    Old 11-19-2020, 06:23 AM   #3
    IADT3since2000
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    Re: Bone Scan

    What wonderful news!

    .Jim

    - - - - - - - - - - - - - - - - - - - - - - - -
    Diagnosis Dec 1999 PSA 113.6 (first ever), age 56
    Gleason 4+3=7 (J. Epstein, JHU), all cores +, most 100%; "rock hard" prostate with ECE - stage 3, PNI, PSADT determined later 3-4 months; technetium bone scan and CT scan negative; prognosis 5 years.
    Later ProstaScint scan negative except for one suspicious small area in an unlikely location. ADT Lupron as first therapy, in Dec 1999, then + Casodex in March 2000, then + Proscar and Fosamax in Sep 2000. Rejected for surgery January 2000; offered radiation but told success odds were low; switched to ADT only vice radiation in May 2000, betting on holding the fort for improved technology; PSA gradual decline to <0.01 May 2002. Commenced intermittent ADT3 (IADT3) with first vacation from Lupron & Casodex. Negative advanced scans in 2011 (NaF18 PET/CT for bone) and 2012 (Feraheme USPIO for nodes and soft tissue). With improved technology, tried TomoTherapy RT, 39 sessions, in early 2013, plus ADT 3 in support for 18 months (fourth round of IADT3), ended April 2014. Continuing with Avodart as anti-recurrence shield. Current PSA remarkably low and stable at <0.01; apparently cured (Current PSA as of 9/4/2020). (Current T 128 9/4/20.) Supportive diet/nutrition, exercise, supportive medications during this journey, as well as switches in antiandrogen, 5-ARI, and bone drugs. Barely noticeable side effects from radiation; continuing low T, likely do to long use of ADT, but good energy and adequate strength. I have a lot of School of Hard Knocks knowledge, and have followed research, which has made me an empowered and savvy patient, but I have had no enrolled medical education.

     
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    Old 11-19-2020, 07:16 AM   #4
    Steve135
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    Re: Bone Scan

    Great news! We need this kind of boost. Now onward to treatments.
    steve d

     
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    Old 11-19-2020, 07:31 AM   #5
    JWPMP
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    Re: Bone Scan

    Quote:
    Originally Posted by DjinTonic View Post
    Excellent bone-scan news! This means it's looking good that, even though the PCa may have left the prostate locally, the RT will zap it all goodbye!

    Best wishes,

    Djin
    Thank you Djin!
    What a journey you've all been through.
    Ours is just beginning.
    Appreciate your willingness to share your experiences and knowledge.

    Paula

     
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    Old 11-19-2020, 07:35 AM   #6
    JWPMP
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    Re: Bone Scan

    Quote:
    Originally Posted by IADT3since2000 View Post
    What wonderful news!

    .Jim

    - - - - - - - - - - - - - - - - - - - - - - - -
    Diagnosis Dec 1999 PSA 113.6 (first ever), age 56
    Gleason 4+3=7 (J. Epstein, JHU), all cores +, most 100%; "rock hard" prostate with ECE - stage 3, PNI, PSADT determined later 3-4 months; technetium bone scan and CT scan negative; prognosis 5 years.
    Later ProstaScint scan negative except for one suspicious small area in an unlikely location. ADT Lupron as first therapy, in Dec 1999, then + Casodex in March 2000, then + Proscar and Fosamax in Sep 2000. Rejected for surgery January 2000; offered radiation but told success odds were low; switched to ADT only vice radiation in May 2000, betting on holding the fort for improved technology; PSA gradual decline to <0.01 May 2002. Commenced intermittent ADT3 (IADT3) with first vacation from Lupron & Casodex. Negative advanced scans in 2011 (NaF18 PET/CT for bone) and 2012 (Feraheme USPIO for nodes and soft tissue). With improved technology, tried TomoTherapy RT, 39 sessions, in early 2013, plus ADT 3 in support for 18 months (fourth round of IADT3), ended April 2014. Continuing with Avodart as anti-recurrence shield. Current PSA remarkably low and stable at <0.01; apparently cured (Current PSA as of 9/4/2020). (Current T 128 9/4/20.) Supportive diet/nutrition, exercise, supportive medications during this journey, as well as switches in antiandrogen, 5-ARI, and bone drugs. Barely noticeable side effects from radiation; continuing low T, likely do to long use of ADT, but good energy and adequate strength. I have a lot of School of Hard Knocks knowledge, and have followed research, which has made me an empowered and savvy patient, but I have had no enrolled medical education.
    Thank you Jim!!
    Was completely "prepared" ( so to speak) for bad news.
    Would feel a "wee" bit better with a PET scan, but the Radiologist assured Jim this was a very accurate test. It however, was not the F18 or something like that, that you referred to in an earlier thread. But right now we're claiming our first victory in a long series of battles ahead.
    Thanks again!!
    Paula

     
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    Old 11-19-2020, 08:12 AM   #7
    JWPMP
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    Re: Bone Scan

    Quote:
    Originally Posted by Steve135 View Post
    Great news! We need this kind of boost. Now onward to treatments.
    steve d
    Thanks Steve!
    A bit of good news sure helps the mindset for what's to come. 😊
    Paula

     
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    Old 11-19-2020, 06:33 PM   #8
    GuyBMeredith
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    Re: Bone Scan

    Wonderful! This is the type of news we all like to hear. Just wonderful!
    __________________
    Diagnosed at age 73 Feb 2019 DRE indicates nodule PSA 2.8 Aug 2019 PSA 3.1 Urologist suggests biopsy in Oct Results of biopsy: 2 of 12 cores positive. Low volume T2b, intermediate risk, GS 3+4, PSA 3.10, prostate cancer, perineural invasion. Followed up with MRI to help decide between surgery and IMRT. MRI shows suspicious PIRADS 5 lesion measuring 2.cm in diameter, with associated left neurovascular bundle involvement. Started 6 month lupron series Feb 2020, 28 sessions of high dose IMRT Apr 15, 2020. Sexual functions okay except ejaculate has changed. Without libido it is an academic process that requires much focus. July 27 first measure of PSA and total testosterone. PSA: .13 ng/dl Total testosterone is less than 12 ng/dl.

     
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    Old 11-19-2020, 08:02 PM   #9
    HighlanderCFH
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    Re: Bone Scan

    Glad to hear your good news. The relief one experiences at such news is almost indescribable.

    He now has a battle plan that you both can feel confident with and have every reason to expect a great victory in the end.

    Even better, a serious case like this -- with the great test results -- can serve as a model of hope for others also just starting down this road with similar stats.

    Good luck!!
    Chuck




    Quote:
    Originally Posted by JWPMP View Post
    Jim had the Whole Body Bone Scan at UCSF yesterday.
    anterior and posterior whole body planar images, supplemented by additional lateral images of the head and neck, oblique images of the chest, and oblique images of the pelvis.
    No suspicious foci of tracer activity.
    No evidence of osseous metastases.
    The Nurse and Dr Carroll's office both messaged me first thing this morning with "good news".
    Its the first we've gotten in four months.
    MO appointment December 1st.
    I expressed concern, but they said do not fret, if there was any area of concern, they would have squeezed him in earlier.
    So, now the freaking out stops and the real work begins.
    The rubber is about to hit the road, but at least now we feel like he has a good chance to manage this for many years.

    Thank you all
    Paula (Jim)

    Age. 64 years
    7/14/2020. First PSA ever 53.5
    9/2020. PSA 66.3
    9/2020. MRI. T4 Tumor. Entire prostate involved. Two suspicious nodes. Seminal invasion. Rectal wall invasion.
    10/2020. Biopsy G9
    10/2020. RO recommending HT 24 months with injections 1 to 6 months. Begin Radiation after 2 to 3 months, 44 sessions.
    Bone Scan 11/2020. No evidence of osseous metastases

     
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    Old 11-19-2020, 09:19 PM   #10
    JWPMP
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    Re: Bone Scan

    Quote:
    Originally Posted by GuyBMeredith View Post
    Wonderful! This is the type of news we all like to hear. Just wonderful!
    Thank you Guy...so glad we finally had some positive news to share.
    Paula

     
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    Old 11-19-2020, 10:15 PM   #11
    JWPMP
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    Re: Bone Scan

    Quote:
    Originally Posted by HighlanderCFH View Post
    Glad to hear your good news. The relief one experiences at such news is almost indescribable.

    He now has a battle plan that you both can feel confident with and have every reason to expect a great victory in the end.

    Even better, a serious case like this -- with the great test results -- can serve as a model of hope for others also just starting down this road with similar stats.
    Good luck!!
    Chuck
    Thats a good point Chuck! I read through so many cases of high risk advanced cancer, looking for some shred of hope...
    And "indescribable" is right.
    I was at work when I got the messages and just sobbed with relief. The elephant was off my chest.
    I don't expect that Jim will be "cured " even though there is some possibility. But at least now i feel like he'll outlive it.
    Thank you
    Paula

     
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    Old 11-19-2020, 10:36 PM   #12
    HighlanderCFH
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    Re: Bone Scan

    You are very welcome, Paula. Another bright thought is how medical advances will keep happening as we move through the future.

    It sounds like he has an excellent chance of living out his full lifespan and, as they say, "dying with it and not because of it."

    Take care!
    Chuck



    Quote:
    Originally Posted by JWPMP View Post
    Thats a good point Chuck! I read through so many cases of high risk advanced cancer, looking for some shred of hope...
    And "indescribable" is right.
    I was at work when I got the messages and just sobbed with relief. The elephant was off my chest.
    I don't expect that Jim will be "cured " even though there is some possibility. But at least now i feel like he'll outlive it.
    Thank you
    Paula

     
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    Old 11-20-2020, 02:01 PM   #13
    JWPMP
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    Re: Bone Scan

    Quote:
    Originally Posted by HighlanderCFH View Post
    You are very welcome, Paula. Another bright thought is how medical advances will keep happening as we move through the future.

    It sounds like he has an excellent chance of living out his full lifespan and, as they say, "dying with it and not because of it."

    Take care!
    Chuck
    Another good thought to hold on to 😁😁
    Again, thank you

     
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    Old 11-21-2020, 12:45 AM   #14
    HighlanderCFH
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    Re: Bone Scan

    Quote:
    Originally Posted by JWPMP View Post
    Another good thought to hold on to 😁😁
    Again, thank you

    Always glad to help whenever I can.

     
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